Meningioma tumor

Posted by nannymitch @nannymitch, Apr 12 11:22am

Hi, I had a Meningioma tumor removed in 2013 but in December I was told it was back, my Dr said we would check in a years time, I just was wondering if anyone knew how fast it grows

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Profile picture for Randy Shields @randallshields56

@mkoch well my update, it is not growing in my brain and still cancer free and just have some whoops to jump through, but all in all i am doing good today and in good spirits, wish i could bottle the way i feel most the time and sell it or give it to the ones needing a good outlook along with good feelings despite being in pain most the time but that is part of growing old. You occasionally do something you pay for later. then have to have a few added days to recoup. got off track but that is ok. for now smile and have a blessed day.

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Thank you for your response.

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Profile picture for Maryann @mkoch

@randallshields56: Randy, you are such an inspiration. You're always so positive. I think we're both in the club of you just keep putting one foot in front of the other and doing the best that ya' can.

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@mkoch a great outcome either way and I'll take it. Got hurt a week ago Friday and today is first day with pain level now tolerable so I can start exercising tomorrow 🙃

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Profile picture for Maryann @mkoch

@randallshields56: Randy, you are such an inspiration. You're always so positive. I think we're both in the club of you just keep putting one foot in front of the other and doing the best that ya' can.

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Thank you our start for a positive group.

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Profile picture for Randy Shields @randallshields56

Thank you our start for a positive group.

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@randallshields56 I know they have groups where you can just check in and start a new conversation. I believe it would be nice to have a listing of just feeling good about your day or thankful for that something that made your day awesome 👌

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I have been diagnosed with a meningioma.... it has grown from 2.1 x 2.4 x 0.7 cm to 3.9 x 3.2 x 1.6 cm (AP x TRV x CC) from 2022 ro 2026. My doc keeps saying to remove it is "elective" surgery..... not an emergency. So am I supposed to wait till it becomes and emergency?? I'm getting a second opinion in 4 days.... thanks everyone.

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Profile picture for ladytri @ladytri

I have been diagnosed with a meningioma.... it has grown from 2.1 x 2.4 x 0.7 cm to 3.9 x 3.2 x 1.6 cm (AP x TRV x CC) from 2022 ro 2026. My doc keeps saying to remove it is "elective" surgery..... not an emergency. So am I supposed to wait till it becomes and emergency?? I'm getting a second opinion in 4 days.... thanks everyone.

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@ladytri I am glad you are getting a second opinion. That seems very large. Are you having symptoms?

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Profile picture for deblee @deblee

@ladytri I am glad you are getting a second opinion. That seems very large. Are you having symptoms?

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@deblee Good Morning/afternoon/evening.. the only symptom I'm haveing is a headache in the morning..... I didn't even know about this till the CT scan in 2026 reported it (I went back to the report from 2022 and it's not mentioned). The neurosurgeon keeps saying removing it is "elective" surgery vs "emergency" I don't know if the neurosurgeon is saying "wait till it becomes an emergency" (don't like this approach) or is saying that to calms my nerves. My blood is also screwed up (anemia, early signs of CLL) so I don't know if surgery is an option until I get my blood issues resolved. Follow up with first neurosurgeon tomorrow (Wednesday) . Second opinion is Friday. I haven't been sick - except for colds - in years... This is really messing with my head. I work out 6x week, eat healthy, don't smoke, no drugs.....all the "right stuff" . Now this!

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Profile picture for ladytri @ladytri

@deblee Good Morning/afternoon/evening.. the only symptom I'm haveing is a headache in the morning..... I didn't even know about this till the CT scan in 2026 reported it (I went back to the report from 2022 and it's not mentioned). The neurosurgeon keeps saying removing it is "elective" surgery vs "emergency" I don't know if the neurosurgeon is saying "wait till it becomes an emergency" (don't like this approach) or is saying that to calms my nerves. My blood is also screwed up (anemia, early signs of CLL) so I don't know if surgery is an option until I get my blood issues resolved. Follow up with first neurosurgeon tomorrow (Wednesday) . Second opinion is Friday. I haven't been sick - except for colds - in years... This is really messing with my head. I work out 6x week, eat healthy, don't smoke, no drugs.....all the "right stuff" . Now this!

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@ladytri
I am so sorry you are having to deal with this. Hopefully, you will get more answers on Friday with your second opinion. My neurosurgeon does not think my meningioma is causing my symptoms and monitors it with an MRI each year. Mine is much smaller than yours, though.

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Profile picture for ladytri @ladytri

@deblee Good Morning/afternoon/evening.. the only symptom I'm haveing is a headache in the morning..... I didn't even know about this till the CT scan in 2026 reported it (I went back to the report from 2022 and it's not mentioned). The neurosurgeon keeps saying removing it is "elective" surgery vs "emergency" I don't know if the neurosurgeon is saying "wait till it becomes an emergency" (don't like this approach) or is saying that to calms my nerves. My blood is also screwed up (anemia, early signs of CLL) so I don't know if surgery is an option until I get my blood issues resolved. Follow up with first neurosurgeon tomorrow (Wednesday) . Second opinion is Friday. I haven't been sick - except for colds - in years... This is really messing with my head. I work out 6x week, eat healthy, don't smoke, no drugs.....all the "right stuff" . Now this!

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@ladytri: How wonderful that you are able to get your 2nd opinion so close to your appt. with the first neurosurgeon. A second opinion is of paramount importance. I think the neuro doc referring to removing the meningioma as an "elective surgery" is rather cavalier. Deciding to have breast implants is a true elective surgery; having a craniotomy to remove a meningioma is often one's only recourse if the tumor is too large to be radiated.

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Profile picture for ladytri @ladytri

@deblee Good Morning/afternoon/evening.. the only symptom I'm haveing is a headache in the morning..... I didn't even know about this till the CT scan in 2026 reported it (I went back to the report from 2022 and it's not mentioned). The neurosurgeon keeps saying removing it is "elective" surgery vs "emergency" I don't know if the neurosurgeon is saying "wait till it becomes an emergency" (don't like this approach) or is saying that to calms my nerves. My blood is also screwed up (anemia, early signs of CLL) so I don't know if surgery is an option until I get my blood issues resolved. Follow up with first neurosurgeon tomorrow (Wednesday) . Second opinion is Friday. I haven't been sick - except for colds - in years... This is really messing with my head. I work out 6x week, eat healthy, don't smoke, no drugs.....all the "right stuff" . Now this!

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@ladytri
From my personal experience, I agree on not planning to wait until it becomes an emergency. I waited because I didn’t know I had a meningioma until it bled, a stroke. I managed to call 911 before I passed out. I awoke 2 days later in the neuro ICU after emergency surgery. I was extremely lucky.

A small percentage of meningiomas bleed but if they do, the neurosurgeon who consulted with my son about performing the surgery, gave my odds of a meaningful life even with the surgery as 1 in 10. I most likely would die in the neuro ICU after the surgery. Without the surgery I most certainly would die.

Best wishes as you go forward.

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