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Meningioma tumor

Brain & Nervous System | Last Active: 19 hours ago | Replies (34)

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Profile picture for ladytri @ladytri

@deblee Good Morning/afternoon/evening.. the only symptom I'm haveing is a headache in the morning..... I didn't even know about this till the CT scan in 2026 reported it (I went back to the report from 2022 and it's not mentioned). The neurosurgeon keeps saying removing it is "elective" surgery vs "emergency" I don't know if the neurosurgeon is saying "wait till it becomes an emergency" (don't like this approach) or is saying that to calms my nerves. My blood is also screwed up (anemia, early signs of CLL) so I don't know if surgery is an option until I get my blood issues resolved. Follow up with first neurosurgeon tomorrow (Wednesday) . Second opinion is Friday. I haven't been sick - except for colds - in years... This is really messing with my head. I work out 6x week, eat healthy, don't smoke, no drugs.....all the "right stuff" . Now this!

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Replies to "@deblee Good Morning/afternoon/evening.. the only symptom I'm haveing is a headache in the morning..... I didn't..."

@ladytri
I am so sorry you are having to deal with this. Hopefully, you will get more answers on Friday with your second opinion. My neurosurgeon does not think my meningioma is causing my symptoms and monitors it with an MRI each year. Mine is much smaller than yours, though.

@ladytri: How wonderful that you are able to get your 2nd opinion so close to your appt. with the first neurosurgeon. A second opinion is of paramount importance. I think the neuro doc referring to removing the meningioma as an "elective surgery" is rather cavalier. Deciding to have breast implants is a true elective surgery; having a craniotomy to remove a meningioma is often one's only recourse if the tumor is too large to be radiated.

@ladytri
From my personal experience, I agree on not planning to wait until it becomes an emergency. I waited because I didn’t know I had a meningioma until it bled, a stroke. I managed to call 911 before I passed out. I awoke 2 days later in the neuro ICU after emergency surgery. I was extremely lucky.

A small percentage of meningiomas bleed but if they do, the neurosurgeon who consulted with my son about performing the surgery, gave my odds of a meaningful life even with the surgery as 1 in 10. I most likely would die in the neuro ICU after the surgery. Without the surgery I most certainly would die.

Best wishes as you go forward.