Does anyone experience shaky walking

Posted by luntb18 @luntb18, Jan 13, 2025

My walking gait is unsteady and wobbly

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

In reply to @bluerock1 "Yes." + (show)
Profile picture for bluerock1 @bluerock1

I am not well versed in symptoms of hydrocephalus.

REPLY
Profile picture for keithl56 @keithl56

I also have the same problem. I actually keep copies of some of my neurologist clinical notes in my glove box detailing my gait/balance issues (and my SMVD and lacunar strokes) since I could never pass a field sobriety test despite being completely sober should I ever get pulled over for some reason.

In October I had one of my bad episodes and if not for my wife would have fallen into a firepit! Instead of the firepit I ended up falling over a wall but fortunately avoided any serious injury.

My doctor prescribed vestibular therapy to try to help with the issue. I'm halfway through so it is too early to tell what impact it will have. It won't solve the problem but may help me cope with the symptoms.

Good luck!

Jump to this post

Hi,
I consider myself lucky as it doesn't affect my driving, yet! I can't drive stick anymore after shattering my Calcaneus on the left leg, so it doesn't bother me being the left leg that is usually at fault. I got the usual referral to physio but as we both decided no amount of physio can help with Dysautonomia why bother. What I'm doing everyday with keeping mobile is all the physio would have me do anyway. Mind you she may not be too pleased I dropped a stack of flooring timber on the foot yesterday, at least the nerves still work! Now if I could just get my shoe on again. Having a brain that figures out adjustments to the problem helps. Fortunately I'm still able to react quick enough to counter, but obviously not quick enough to catch what I drop!
What will come with time maybe a different story as I'm informed it will only deteriorate over time and I seem to constantly injure the left side predominantly. Murphy's law at work I guess.
Cheers

REPLY

I also have vestibular hypofunction which I'm doing vestibular retrain and also have neuropathy

REPLY

My daughter was diagnosed after genetic testing for HSP came back inconclusive. She has most of the symptoms of it so thats what her first neurologist based the diagnosis on. She is 35 years old and had been working a full time job with 3 girls and all of a sudden could not keep her balance. It is progressing very rapidly. Seems like something new happens every day now. I understand that it is supposed to be a slow progression but not for her. She has had numerous MRI's of C, T and L spine as well as the brain. Nerve conduction study EMG x2 normal. No family history of ANY paraplegia, paralysis. If anyone has any advice it would be greatly appreciated.

REPLY

I have progressively gotten terrible with walking due to dizziness. I am sure it is long covid and so do several doctors. Could it be that?

REPLY

For everyone everyone is dizzy and off balance, with no good answers, stability therapy is always good, but look up the steady coach Dr. Joni Arthur works with people with all kinds of dizziness

REPLY
Profile picture for wderryberry @wderryberry

My daughter was diagnosed after genetic testing for HSP came back inconclusive. She has most of the symptoms of it so thats what her first neurologist based the diagnosis on. She is 35 years old and had been working a full time job with 3 girls and all of a sudden could not keep her balance. It is progressing very rapidly. Seems like something new happens every day now. I understand that it is supposed to be a slow progression but not for her. She has had numerous MRI's of C, T and L spine as well as the brain. Nerve conduction study EMG x2 normal. No family history of ANY paraplegia, paralysis. If anyone has any advice it would be greatly appreciated.

Jump to this post

@wderryberry
Check with an ENT - try to get into a highly rated medical center to see a specialist.
It could be issues with her ears. There are many ear problems that can affect balance...too many to make any assumptions. But without a doubt, medical issues with the ears affect balance.

REPLY
Please sign in or register to post a reply.