I also have the same problem. I actually keep copies of some of my neurologist clinical notes in my glove box detailing my gait/balance issues (and my SMVD and lacunar strokes) since I could never pass a field sobriety test despite being completely sober should I ever get pulled over for some reason.
In October I had one of my bad episodes and if not for my wife would have fallen into a firepit! Instead of the firepit I ended up falling over a wall but fortunately avoided any serious injury.
My doctor prescribed vestibular therapy to try to help with the issue. I'm halfway through so it is too early to tell what impact it will have. It won't solve the problem but may help me cope with the symptoms.
Hi,
I consider myself lucky as it doesn't affect my driving, yet! I can't drive stick anymore after shattering my Calcaneus on the left leg, so it doesn't bother me being the left leg that is usually at fault. I got the usual referral to physio but as we both decided no amount of physio can help with Dysautonomia why bother. What I'm doing everyday with keeping mobile is all the physio would have me do anyway. Mind you she may not be too pleased I dropped a stack of flooring timber on the foot yesterday, at least the nerves still work! Now if I could just get my shoe on again. Having a brain that figures out adjustments to the problem helps. Fortunately I'm still able to react quick enough to counter, but obviously not quick enough to catch what I drop!
What will come with time maybe a different story as I'm informed it will only deteriorate over time and I seem to constantly injure the left side predominantly. Murphy's law at work I guess.
Cheers
Connect
Connect
Like
Helpful
Hug
I am not well versed in symptoms of hydrocephalus.
Hi,
I consider myself lucky as it doesn't affect my driving, yet! I can't drive stick anymore after shattering my Calcaneus on the left leg, so it doesn't bother me being the left leg that is usually at fault. I got the usual referral to physio but as we both decided no amount of physio can help with Dysautonomia why bother. What I'm doing everyday with keeping mobile is all the physio would have me do anyway. Mind you she may not be too pleased I dropped a stack of flooring timber on the foot yesterday, at least the nerves still work! Now if I could just get my shoe on again. Having a brain that figures out adjustments to the problem helps. Fortunately I'm still able to react quick enough to counter, but obviously not quick enough to catch what I drop!
What will come with time maybe a different story as I'm informed it will only deteriorate over time and I seem to constantly injure the left side predominantly. Murphy's law at work I guess.
Cheers
-
Like -
Helpful -
Hug
2 ReactionsI also have vestibular hypofunction which I'm doing vestibular retrain and also have neuropathy