Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

On what type of frequency did you the the SGB, how long until you saw results, and how long did they last. Do you find SGB treatment sustainable long term or has it had a therapeutic recovery treatment effect towards your symptoms? Lastly any side effects of SGB?

I had a total of 8 SGBs over 6 months. The following are the results of each block:
1 - The morning after the tension in my shoulders was TOTALLY gone after 8 months. It only lasted a day.
2 - One week later the second block, again, eliminated the shoulder tension and my internal tremors were gone. That lasted 4 days.
3 - 10 days following I was TOTALLY cured of all my symptoms. It was nothing less that miraculous... seriously. That lasted 4 weeks; I thought I was done with long covid. It came roaring back with some new symptoms: pain on my lower legs.
4 - I had the 4th block about 6 weeks after the 3rd; that did nothing. I think it was a bad block. You should get Hormer's syndrome (droppy eye) and a couple other side-effects that shows the shot hit the spot and was effect . You want to have these side-effects to show it was a productive shot. These side effects only last for several hours.
5 - I went to a new Doc who was more experienced in SGBs (this is important). The shot was effective but no changes to symptoms.
6-8 I got the final 3 blocks in a 2 week period as a last ditch effert forf the SGBs to work. The 1st had moderate effect and the last 2 did nothing.

That was the end of my SGB treatments.
Check out the article below. SGBs are being tested using Botox. I might try the in the future.
Next week I start a yet to be determined med that is used to treat "Essential Tremors"

Bottom line... The SGB is well worth a shot. Good luck.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10183214/

https://medhelpclinics.com/service/long-covid-clinic

Covid does neurological damage. I’d had long covid for 3.5 years and recently developed Epilepsy. My MRIs are essentially normal except for some microangiopathic change (narrowing of blood vessels) which can explain some long covid symptoms and now epilepsy. https://pubmed.ncbi.nlm.nih.gov/23393549/.

Yes. Check out dr Mobeen Syed. You can google him. JohnSchuerman

I was reading your post as a friend of mine recently told me of his tremors and I told him that I had read a lot about parkinson's crossover symptoms from covid, and now I read, not just from covid, but from the covid vaccine itself.

I wondered, as I haven't read your posts all the way, but only through Oct 2023, have you heard or studied anything about LDN?

I had retained gadolinium, a contrast dye, in my system from a MRA in 2017, and when I walked out I couldn't function; my brain wasn't functioning, and depth perception off, a whole host of things came. Doctor's told me it wouldnt be the contrast dye, although I had just had the mra with Multihance, which contains gadolinium (all stuff I learned later) and walked out the door from the scan, I immediately had all of these issues, so I know where it came from.

After a few years of doctors telling me it wouldn't have been the dye; it was good dye, and besides I would have to have had several scans with it for that to happen, etc., I even had another mra/mri but without the contrast dye to make sure that I didn't have a brain tumor for that was how it felt, and I was to have surgery in a month.
Radiologist assured me that that dye would not have done that to me. Funny; years later now, Multihance is the worst dye, and would have done that and it felt like it radiologists protecting their industry rather than the patients.
Eventually I was able to find a doctor in Chapel Hill, NC; he was researching, specializing and writing papers on the subject. I consulted with him, and sure enough there was gadolinium in my system, and I travelled to NC for several years to do chelation to pull it out, got most of it out and was feeling better.
In 2023, I had covid; had never been vaccinated for covid because I was told that my immune system was already compromised by the nuclear contrast dye that had been in my system for so long.
But I did get covid one time, and I know that I acquired some issues following that; a shortness of breath, horrible aches and pains, brain foggy again, etc.

I was still under the care of Dr Richard Semelka in NC and also did a study with a doctor from Stanford University; they both suggested I try LDN, starting at a low dose of 1.5mg and titrating up to 4.5mg; I am now at 3.0 mg and am feeling so well. After the first night of taking it at bedtime, I woke up feeling amazing, and within a week the shortness of breath that I had had that no one could explain following tests, went away , and my joint and muscle pains all went away, my sinus' cleared up and honestly have lost a couple of pounds; had been told that covid left behind metabolic syndrome, and I believe that to be true.

I don't know where you are on your journey right now, but would love to share the LDN guides that I found that have helped me immensely; they are insightful. I recall seeing Parkinson type symptoms listed on them as LDN being helpful.

These guides were made in part to share with our doctors who may not be aware of the benefits and LDN; and it is difficult trying to explain these thing to our doctors, and these guides helped me do that.

@lesligirl02 I find your story very interesting. My husband has been told his symptoms may be Parkinson’s!
Is there a brand of LDN that you are using?
He is currently taking augmented NAC along with other supplements but has seemed to level off and not improving. I will look into LDN.

Hi. When I was recommended and prescribed it; it was 2 doctors from out of town, one from Stanford and Dr Semelka in Chapel Hill, so I had to do my homework to find a pharmacy that compounded LDN, and after many calls I found Medtown Pharmacy on Beach Blvd Jax, FL to be very helpful, attentive and were able to answer all of my questions.

I had read that the fillers they use may interfere with the effectives of the LDN, so they told me they use lactose which is one of the ones that were okay to use. It helped me right away but I have always been an IBS person, but I kept taking it because it was correcting so many things in my system, my shortness of breath went away, muscle and joint pains went away, I felt really, really well; even my fingers that had always felt stiff and arthritic are now lovely, easy to move.

Because I had IBS I asked about another filler and tried a couple of different ones from 3 different pharmacies and I didn't feel anything when I tried their compounded LDN, so I went back and have stayed with Medtown because honestly, theirs is the only one that I could tell was working, and just started drinking Lactaid products and I am good!

I have read people say that they didn't feel any different and I tell them that I believe it could be the filler their pharmacist uses to compound the LDN; some of them interfere with the effectiveness of the medication.

I will share my LDN Research Trust Patient's Guide, Prescribing Physician's Guide, and Mental Health Guides that I have felt incredibly helpful to me. You can read about LDN; it is a medication they used long ago, but at higher doses for a different medical reasons and after studying it for years now, they have found where it is healing to the immune system, can even stop the progressive growth of certain cancers, etc.

Hope this helps! They created these guides to help us and to provide to our physicians so they understand what we are talking about. They are so worth the read!

@lesligirl02 i used LDN until it stopped working.
my suggestion is when you find an effective dose stay on it, don’t go higher.
when my tremors worsen i take a small dose of Valium which works really well. it is very hard to get a prescription, but the doctors know Valium is what works.

If you can get regular Naltrexone Tablets from a regular doctor and pharmacy you can Low Dose it yourself in liquid. I use to know the conversion ratios
it is probably still on line somewhere.