I was reading your post as a friend of mine recently told me of his tremors and I told him that I had read a lot about parkinson's crossover symptoms from covid, and now I read, not just from covid, but from the covid vaccine itself.
I wondered, as I haven't read your posts all the way, but only through Oct 2023, have you heard or studied anything about LDN?
I had retained gadolinium, a contrast dye, in my system from a MRA in 2017, and when I walked out I couldn't function; my brain wasn't functioning, and depth perception off, a whole host of things came. Doctor's told me it wouldnt be the contrast dye, although I had just had the mra with Multihance, which contains gadolinium (all stuff I learned later) and walked out the door from the scan, I immediately had all of these issues, so I know where it came from.
After a few years of doctors telling me it wouldn't have been the dye; it was good dye, and besides I would have to have had several scans with it for that to happen, etc., I even had another mra/mri but without the contrast dye to make sure that I didn't have a brain tumor for that was how it felt, and I was to have surgery in a month.
Radiologist assured me that that dye would not have done that to me. Funny; years later now, Multihance is the worst dye, and would have done that and it felt like it radiologists protecting their industry rather than the patients.
Eventually I was able to find a doctor in Chapel Hill, NC; he was researching, specializing and writing papers on the subject. I consulted with him, and sure enough there was gadolinium in my system, and I travelled to NC for several years to do chelation to pull it out, got most of it out and was feeling better.
In 2023, I had covid; had never been vaccinated for covid because I was told that my immune system was already compromised by the nuclear contrast dye that had been in my system for so long.
But I did get covid one time, and I know that I acquired some issues following that; a shortness of breath, horrible aches and pains, brain foggy again, etc.
I was still under the care of Dr Richard Semelka in NC and also did a study with a doctor from Stanford University; they both suggested I try LDN, starting at a low dose of 1.5mg and titrating up to 4.5mg; I am now at 3.0 mg and am feeling so well. After the first night of taking it at bedtime, I woke up feeling amazing, and within a week the shortness of breath that I had had that no one could explain following tests, went away , and my joint and muscle pains all went away, my sinus' cleared up and honestly have lost a couple of pounds; had been told that covid left behind metabolic syndrome, and I believe that to be true.
I don't know where you are on your journey right now, but would love to share the LDN guides that I found that have helped me immensely; they are insightful. I recall seeing Parkinson type symptoms listed on them as LDN being helpful.
These guides were made in part to share with our doctors who may not be aware of the benefits and LDN; and it is difficult trying to explain these thing to our doctors, and these guides helped me do that.
@lesligirl02 I find your story very interesting. My husband has been told his symptoms may be Parkinson’s!
Is there a brand of LDN that you are using?
He is currently taking augmented NAC along with other supplements but has seemed to level off and not improving. I will look into LDN.