Anyone Found Help/Explanation for Long Covid Neurological Symptoms?

Posted by robinholly @robinholly, Feb 13, 2022

Has anyone found some help and explanation for their neurological symptoms? Symptoms like tremors, dizziness, difficulty walking, tingling in legs and back, muscles twitches in legs, hand tremors, cognitive dysfunction, ringing in ears, pain and burning in toes and feet. I have these symptoms and more. I have been through MRI of brain and full spine, peripheral nerve testing, muscle function and short fiber nerve tests all in the normal range despite the symptoms. I have been on 900mg gabapentin daily with little improvement, then things got much worse after getting the booster last month. Would love to hear from some that have found help and explanation.

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Profile picture for julieilic @julieilic

I am going through similar.
I just read this new article.
It is very long but very good.

Excerpt From
“The Painful Truth About Long Covid”
Alan Levinovitz
WIRED

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@julieilic This is a grossly irresponsible, inaccurate article. The author ignores all medical research and essentially provides a non-medical opinion based on opinion not medical facts. Sick Times' cofounder and executive editor, Miles W. Griffis, did provide a rebuttal pointing out that this article leads to gaslighting and dismissal of people with Long COVID by doctors, therapists, researchers, colleagues, and friends and family.

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And btw one of the theory’s someone wrote in this article is the only thing that comes close to making sense to a debilitating condition that my neurologist is trying to help me with. So please. instead of this slamming post consider there may be an idea for some direction for me.

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You are grossly inappropriate there was actually one particular theory (concept) in article that makes sense to look at from r my debilitating condition ..which you have no idea .,.make sense to what I am experiencing.
So calm down

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Profile picture for onpainsufferer @onpainsufferer

@julieilic This is a grossly irresponsible, inaccurate article. The author ignores all medical research and essentially provides a non-medical opinion based on opinion not medical facts. Sick Times' cofounder and executive editor, Miles W. Griffis, did provide a rebuttal pointing out that this article leads to gaslighting and dismissal of people with Long COVID by doctors, therapists, researchers, colleagues, and friends and family.

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@onpainsufferer I agree that the article is substandard and irresponsible and it reinforces inaccuracies. Just about every day, I'm asked, "Are you feeling better yet? You shouldn't just lay around. Go get some exercise." And this is from friends who I expect more from. Even my PCP says things like, "You're just getting old. Maybe you should join a gym." His nurse said she'd never heard of long covid before I came in.

On a more positive note, I wanted to point out the latest news on the Health Rising website about long covid and ME/CFS research, "Major Study Validates a Long COVID Autoimmune Subset". Also, the ScienceDirect website has this article from Cell Reports Medicine ("Transfer of IgG from long COVID patients induces symptomology in mice").

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