Hi. When I was recommended and prescribed it; it was 2 doctors from out of town, one from Stanford and Dr Semelka in Chapel Hill, so I had to do my homework to find a pharmacy that compounded LDN, and after many calls I found Medtown Pharmacy on Beach Blvd Jax, FL to be very helpful, attentive and were able to answer all of my questions.
I had read that the fillers they use may interfere with the effectives of the LDN, so they told me they use lactose which is one of the ones that were okay to use. It helped me right away but I have always been an IBS person, but I kept taking it because it was correcting so many things in my system, my shortness of breath went away, muscle and joint pains went away, I felt really, really well; even my fingers that had always felt stiff and arthritic are now lovely, easy to move.
Because I had IBS I asked about another filler and tried a couple of different ones from 3 different pharmacies and I didn't feel anything when I tried their compounded LDN, so I went back and have stayed with Medtown because honestly, theirs is the only one that I could tell was working, and just started drinking Lactaid products and I am good!
I have read people say that they didn't feel any different and I tell them that I believe it could be the filler their pharmacist uses to compound the LDN; some of them interfere with the effectiveness of the medication.
I will share my LDN Research Trust Patient's Guide, Prescribing Physician's Guide, and Mental Health Guides that I have felt incredibly helpful to me. You can read about LDN; it is a medication they used long ago, but at higher doses for a different medical reasons and after studying it for years now, they have found where it is healing to the immune system, can even stop the progressive growth of certain cancers, etc.
Hope this helps! They created these guides to help us and to provide to our physicians so they understand what we are talking about. They are so worth the read!
@lesligirl02 i used LDN until it stopped working.
my suggestion is when you find an effective dose stay on it, don’t go higher.
when my tremors worsen i take a small dose of Valium which works really well. it is very hard to get a prescription, but the doctors know Valium is what works.