Why do I have “fibromyalgia “?

@lesligirl02 Interesting. I don't know what fillers my pharmacy uses, but since their LDN works well for me, it must be okay.

Not sure why I have fibromyalgia. I was unhappy after being physically abused and in a near miss when a bomb went off in London . I also got malaria and was out of it for a while. That was in my twenties and I am mid fifties now. To be honest never been right since my first trip to India, got Delhi belly etc. I did also drink ABIT too much in my 20's but don't drink any more. At the moment my pain is bad and I am only managing on pregabalin and amtripuline although I had some weird side effects like hallucinations and speech stutter and had to visit A and E last week.
Sorry to hear of other people's stories, I just wish doctors would fix us....🥺

@guineapiglover So sorry. I ask this question hoping that knowledge of cause will reveal a cure. Right now I’m taking 6 mg of LDN. I have not felt this good in a long time. I vacuumed 3 days in a row and cleaned house without resting often like before. I still have some pain however not too bad and my depression is just about gone. May be the endorphin part of taking the LDN. Hope it stays this way. So yes things could get better. Sending you blessings.

I’ve always believed Fibro is viral. I was diagnosed in 1982, when it was fibrositis. I was teaching in a primary grade school with an open-concept “team teaching” philosophy. I was in a team with six adults, all interacting daily. Half of us were diagnosed eventually with fibrositis, the first being the new-hire teaching assistant. She was young, healthy, active, and a ballet teacher on the side when she started to lose the use of her legs (a common symptom is legs feeling like dead weights - which I experienced when first being diagnosed). No other folks on the faculty were ever diagnosed with fibro to my knowledge - just half of my six member team. I was in my early thirties, diagnosed about a year after the first young teaching assistant was diagnosed. The third individual was my teaching assistant who was diagnosed a few years later (I think the virus might’ve been dormant in her, activating eventually while she was under stress. I, too, was stressed when diagnosed - going through a separation, working on my graduate degree, and teaching full time).

I've read a lot of articles and most say the exact cause is unknown. It's thought to involve changes in how the brain and spinal cord process pain signals, possibly influenced by genetics, infections, or physical and emotional stressors. Triggers can include injuries, surgeries, or significant emotional trauma, but sometimes symptoms develop without any clear trigger.

I doctored with so many specialists before I was diagnosed and then was offered several drugs, like Cymbalta and Lyrica. I read they aren't very effective and come with a lot of bad side effect, including addiction. For example, Cymbalta only helps about 20% of people who take it! And, there have been many lawsuits against the manufacturer saying the company didn't report how addictive it was to patients.

Finally, I read about LDN (low-dose Naltrexone) -- no doctors suggested it. It was a lifesaver for me and seemed to reset my body so my symptoms went away and I feel like a normal person again.