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Why do I have “fibromyalgia “?

Posted by jeannesf1 @jeannesf1, 2 days ago

Ive read and heard many times that fibromyalgia is caused by brain overreacting to pain, why do I have this problem with my brain? Has research gone beyond this question? Is it being researched at all? Lifestyle? Born with it? Physical or emotional trauma?

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daisy17 | @daisy17 | 18 hours ago
In reply to @lesligirl02 "@daisy17 For me, starting at the 1.5 mg dose, it worked for me immediately, but I..." + (show)
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@daisy17
For me, starting at the 1.5 mg dose, it worked for me immediately, but I will say that it is incredibly important which filler your compounding pharmacist uses. I think that is the difference between my feeling well immediately, and those who say it has to get into system.

I have tried other fillers because I am an IBS person, but when tried the others, I didn't feel a thing, so I think that is why fillers matter as they say at LDN Research Trust, because some fillers actually interfere with the effectiveness of the medication. I tried Avicel and glycine and felt nothing, and went back to my pharmacist who compounds with lactose; so I have had to come to the conclusion that FILLERS DO MATTER; as some can actually interfere with the effectivenss as I had read.

I am at 3.0 mg now and not even sure I need to go any higher.

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@lesligirl02 Interesting. I don't know what fillers my pharmacy uses, but since their LDN works well for me, it must be okay.

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guineapiglover | @guineapiglover | 14 hours ago

Not sure why I have fibromyalgia. I was unhappy after being physically abused and in a near miss when a bomb went off in London . I also got malaria and was out of it for a while. That was in my twenties and I am mid fifties now. To be honest never been right since my first trip to India, got Delhi belly etc. I did also drink ABIT too much in my 20's but don't drink any more. At the moment my pain is bad and I am only managing on pregabalin and amtripuline although I had some weird side effects like hallucinations and speech stutter and had to visit A and E last week.
Sorry to hear of other people's stories, I just wish doctors would fix us....🥺

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jeannesf1 | @jeannesf1 | 5 hours ago
In reply to @guineapiglover "Not sure why I have fibromyalgia. I was unhappy after being physically abused and in a..." + (show)
Profile picture for guineapiglover @guineapiglover

Not sure why I have fibromyalgia. I was unhappy after being physically abused and in a near miss when a bomb went off in London . I also got malaria and was out of it for a while. That was in my twenties and I am mid fifties now. To be honest never been right since my first trip to India, got Delhi belly etc. I did also drink ABIT too much in my 20's but don't drink any more. At the moment my pain is bad and I am only managing on pregabalin and amtripuline although I had some weird side effects like hallucinations and speech stutter and had to visit A and E last week.
Sorry to hear of other people's stories, I just wish doctors would fix us....🥺

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@guineapiglover So sorry. I ask this question hoping that knowledge of cause will reveal a cure. Right now I’m taking 6 mg of LDN. I have not felt this good in a long time. I vacuumed 3 days in a row and cleaned house without resting often like before. I still have some pain however not too bad and my depression is just about gone. May be the endorphin part of taking the LDN. Hope it stays this way. So yes things could get better. Sending you blessings.

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