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Why do I have “fibromyalgia “?

Posted by jeannesf1 @jeannesf1, Apr 22 7:32am

Ive read and heard many times that fibromyalgia is caused by brain overreacting to pain, why do I have this problem with my brain? Has research gone beyond this question? Is it being researched at all? Lifestyle? Born with it? Physical or emotional trauma?

Interested in more discussions like this? Go to the Fibromyalgia Support Group.

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Vanessa Valentine | @luvpets15 | May 12 5:01pm
In reply to @jeannesf1 "@bealillie I felt a better response to LDN when I asked doctor if we could go..." + (show)
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@bealillie I felt a better response to LDN when I asked doctor if we could go higher and am currently taking 6mg. I also changed to taking it in the morning instead of night and am sleeping better. I saw on this group someone taking half dose in morning and half at night, which I was going to try also.

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@jeannesf1 I could not take it at night because I've had sleep issues for years and am prone to awful nightmares due to 30 years of mental and psychological abuse in my marriage.

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Vanessa Valentine | @luvpets15 | May 12 5:07pm

Thank you SO much to all who replied. Since I'm on an extremely limited income, I can't afford to pay $100+ a month for something that might not work. I am taking ultramicronized PEA (after a recommendation on this site), which seems to be helping. It's only $30/month through Amazon.
https://www.google.com/search

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jayandminnie | @jayandminnie | May 13 11:59am

What does LDN stand for?

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jeannesf1 | @jeannesf1 | May 13 2:05pm

Also see other comments regarding low dose naltrexone in this Mayo Clinic group regarding dose and how it works for some of us.
https://www.clevelandclinicmeded.com/showcase/EKCC138/docs/1430_Hill_Dose.pdf

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Vanessa Valentine | @luvpets15 | May 13 6:52pm
In reply to @luvpets15 "@jeannesf1 I could not take it at night because I've had sleep issues for years and..." + (show)
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@jeannesf1 I could not take it at night because I've had sleep issues for years and am prone to awful nightmares due to 30 years of mental and psychological abuse in my marriage.

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@lesligirl02 - Thank you for the hug!

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daisy17 | @daisy17 | May 13 10:03pm
In reply to @jayandminnie "What does LDN stand for?" + (show)
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What does LDN stand for?

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@jayandminnie LDN stands for Low-Dose Naltrexone. Here is an article about it. There are many more articles on-line and also in this support group. https://www.drugs.com/medical-answers/low-dose-naltrexone-ldn-3570335/

If you have any more questions, I would be happy to answer them. I've been taking it for a year for my fibromyalgia and related severe insomnia and it has been a tremendous help to me.

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