Looking for what to expect as I consider Kidney Transplant

Posted by Sevkira @sevkira, Jul 11, 2017

Hi, I was wondering if anyone can give me more info on what to ask the transplant team when I go for my evaluation. I'm struggling with whether dialysis is better or a transplant. I know any surgey has risks.

Interested in more discussions like this? Go to the Transplants Support Group.

@mlmcg

I could have used this kind of help when I had my transplant, if I am able to help one person I can say "I did what I am suppose to do." Having come from a 'determined' family helped. (My grandmother raised 5 children by herself and they all graduated from high school during the depression.) Not having to cook for anyone else makes following my diet easy. (When my father found out he was on the edge of Type 2 Diabetes my mother said she was only going to cook one dinner, the one for my father. Everyone was happy my mother lost weight, my little brother lost weight, and my father never had to take pills or injections to keep his diabetes under control.)

I cannot believe being on dialysis only 9 weeks, you missed all the fun of meeting new people. Most were diabetic, or refused to follow the doctors orders and lost both legs, or gained over 200 pound after their first transplant which killed that kidney then had to go back on dialysis, there was one who had 3 kidney transplants and killed them all. By the way, these were all men, I do not if that says anything.

As far as how am I doing, the kidney is happy consider what I have put in through. When I see a new doctor I always tell them "The kidney comes first."

mlmcg

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@mlmcg, Thanks, I absolutely love these ideas! Rosemary

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@mlmcg

I could have used this kind of help when I had my transplant, if I am able to help one person I can say "I did what I am suppose to do." Having come from a 'determined' family helped. (My grandmother raised 5 children by herself and they all graduated from high school during the depression.) Not having to cook for anyone else makes following my diet easy. (When my father found out he was on the edge of Type 2 Diabetes my mother said she was only going to cook one dinner, the one for my father. Everyone was happy my mother lost weight, my little brother lost weight, and my father never had to take pills or injections to keep his diabetes under control.)

I cannot believe being on dialysis only 9 weeks, you missed all the fun of meeting new people. Most were diabetic, or refused to follow the doctors orders and lost both legs, or gained over 200 pound after their first transplant which killed that kidney then had to go back on dialysis, there was one who had 3 kidney transplants and killed them all. By the way, these were all men, I do not if that says anything.

As far as how am I doing, the kidney is happy consider what I have put in through. When I see a new doctor I always tell them "The kidney comes first."

mlmcg

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While this discussing has opened to the subject of eating and weight gain. Kristin, @keggebraaten, who is one of the transplant moderators on Connect, posted a new Transplant Blog. The blog posts are by the transplant staff. And today she posted one about weight gain after transplant! Is that great timing???

Here is the link if you want to check it out.
https://connect.mayoclinic.org/newsfeed-post/weight-gain-after-transplant-where-does-it-come-from-and-how-to-get-rid-of-it-2/
I think the ice cream part could be about me! Ice cream is my down fall - I jokingly call it my 'beverage' of choice since my transplant. And, "Yes" moderation is the necessity!
Rosemary

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@mlmcg

I could have used this kind of help when I had my transplant, if I am able to help one person I can say "I did what I am suppose to do." Having come from a 'determined' family helped. (My grandmother raised 5 children by herself and they all graduated from high school during the depression.) Not having to cook for anyone else makes following my diet easy. (When my father found out he was on the edge of Type 2 Diabetes my mother said she was only going to cook one dinner, the one for my father. Everyone was happy my mother lost weight, my little brother lost weight, and my father never had to take pills or injections to keep his diabetes under control.)

I cannot believe being on dialysis only 9 weeks, you missed all the fun of meeting new people. Most were diabetic, or refused to follow the doctors orders and lost both legs, or gained over 200 pound after their first transplant which killed that kidney then had to go back on dialysis, there was one who had 3 kidney transplants and killed them all. By the way, these were all men, I do not if that says anything.

As far as how am I doing, the kidney is happy consider what I have put in through. When I see a new doctor I always tell them "The kidney comes first."

mlmcg

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@rosemary - I found this very helpful and did think her timing was impeccable!

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@rosemarya

@lcamino, and kidney patients,
Recently a member made a comment in a different transplant thread that I feel might be informative in this thread about kidney transplant. I think that whether someone has PKD; is waiting for a transplant; has received a kidney transplant; and family and loved ones might benefit with a place to ask questions and share their experiences with polycystic kidney disease (PKD).

I invite members to join in with any questions or experiences.
Rosemary

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I have policystic kidney disease and have been on PD for over 5 years. I am stuck at the dental clearance part since insurance doesn't cover it. Waiting to have operation at UMC Las Vegas.

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@rosemarya

@lcamino, and kidney patients,
Recently a member made a comment in a different transplant thread that I feel might be informative in this thread about kidney transplant. I think that whether someone has PKD; is waiting for a transplant; has received a kidney transplant; and family and loved ones might benefit with a place to ask questions and share their experiences with polycystic kidney disease (PKD).

I invite members to join in with any questions or experiences.
Rosemary

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@aljoey, I want to welcome you to Mayo Clinic Connect. We are happy that you have joined into our kidney transplant discussion. Here on Connect, we support and encourage each other by sharing from our experiences. We also help each other by asking and answering questions, and to locate accurate medical information.
I am a liver/kidney recipient. Due to acute kidney failure, I had a short 9 weeks of dialysis, and I don't know much about polycystic kidney disease (PKD). However, I can help you to find information if you need any. And to answer questions, or to keep you company as you endure the waiting time.

So, is the dental clearance the only thing holding you back right now?
What would you like to know or how can we be of help to you?
Rosemary

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@rosemarya

@lcamino, and kidney patients,
Recently a member made a comment in a different transplant thread that I feel might be informative in this thread about kidney transplant. I think that whether someone has PKD; is waiting for a transplant; has received a kidney transplant; and family and loved ones might benefit with a place to ask questions and share their experiences with polycystic kidney disease (PKD).

I invite members to join in with any questions or experiences.
Rosemary

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I pray that you get your operation soon.

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@rosemarya

@lcamino, and kidney patients,
Recently a member made a comment in a different transplant thread that I feel might be informative in this thread about kidney transplant. I think that whether someone has PKD; is waiting for a transplant; has received a kidney transplant; and family and loved ones might benefit with a place to ask questions and share their experiences with polycystic kidney disease (PKD).

I invite members to join in with any questions or experiences.
Rosemary

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@aljoey, I've been thinking about you. I hope that you are progressing toward your transplant. And that you are feeling well.
I hope that 2018 will be a year of good health for you.
Rosemary

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@peterm53

Yes, Mayo Clinic in Jacksonville, Fl

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@sevkira, I want to let you know that I am thinking about you. I hope that you are feeling okay and making progress with your treatment.
I hope that 2018 will be a good year for you.
Rosemary

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@sevkira

Ok I was going to go with pd if I ever get to that point. I can't see how I could go to a center I have a set work schedule don't see how it would work without quitting my job. May I ask was your transplant through Mayo Clinic.

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There is a home hemo-dialysis option, if you have a willing and able caregiver. It is a team effort. My husband lost his transplanted kidney to immunotherapy earlier this year. We have been doing home hemo since March. http://www.nxstage.com/hcp/care-settings/home/

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@oregongirl, I invite you to read thru this discussion where many of our members have shared some experience with dialysis. @oregongirl, after reading the posts in this discussion, what questions would you like to ask.

I also want to mention the following members who have participated in this discussion in the past who might be available to talk to you.
@sevkira, @peterm53, @ca426, @lcamino, @aljoey, @dshaver, @mlmcg, @fauneconner, @coastalgal, @mattgnyc

Rosemary

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