Mayo Clinic Connect
Hi, I was wondering if anyone can give me more info on what to ask the transplant team when I go for my evaluation. I’m struggling with weather dialysis is better or a transplant. I know any surgey has risks.
Liked by IWantToBelieve, fauneconner, @tbirdmunchkin
@oregongirl It is not necessary for a living donor to be related. Our BIL was not. And blood type is a moot point, with cross-matching.
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@dshaver, There is currently a very active conversation happening with living kidney donors and in the transplant discussion “Living Donation:”. Here is the link to that discussion. https://connect.mayoclinic.org/discussion/living-donor/
Deshaver. I still have time to stop the progression of my kidney failure. Unless they are just being nice. My new diet starts tomorrow. I would probably turn down transplant as I am soon to be 76
Remember it's not just a "new diet" it is a new life-style.mlmcg
Liked by Rosemary, Volunteer Mentor
No salt..I am looking at recipes on line that would be good for me. I am a vegetarian so I really have to look for some good recipes.
I found some good recipes over 10 years ago on-line so there should be plenty now. Is that no added salt or no salt at all, because that maybe hard? I am on a low salt diet and could have been what was meant? There are some good spices that can be used in place of salt. If you have not talked with a Registered Dietitian you may want to. Good luck. mlmcg
Liked by Rosemary, Volunteer Mentor, Colleen Young, Connect Director
@oregongirl, Here are some low sodium recipes.
@mlmcg, I like that term, “new life-style”!
Yes we will beat cancer. I cannot thank all of you enough. My Lord knew you meant what you asked for on my behalf. I think as seniors we are conflicted. We don’t want memory loss so we pray please Lord keep my memory. Personally, I cannot think of any thing worse than alzheimers.
I was told that being old it is common to have Kidney issues. I find that hard believe. I have my own opinion how my surgery caused my issue. If I am going to need a transplant, if I am going to go thru the surgery, I want it done t Mayo in Minnesota. Can you give me any stats on Mayo,s success?
@oregongirl and @mimcg. My fault for not being clearer. I was agreeing with @mimcg, who is inspiring in having overcome her problems (30-something years ago, now), but what I wrote was to encourage @oregongirl who spoke of having RA. Assumed she meant rheumatoid arthritis. I considered getting a walker – one of these days, I shall fall for sure cause my balance isn’t so hot!!
If the med continues to make me sick As it does, I may have to give in to the pain and stop the med. I came very close to addiction to pain pills. I will not allow that into my life. It is hard when you have pain. Our pharmacy here has a capsule made from marijuana. Drs prescription needed. I assure you no addiction.
Eventually, I ended up with a cane. It kept my back straight and keep me stable. However drug I am on allows me great mobility.
@oregongirl, Here is the link to Mayo Kidney Transplant Department. There is lots of good information.
Ok I was going to go with pd if I ever get to that point. I can’t see how I could go to a center I have a set work schedule don’t see how it would work without quitting my job. May I ask was your transplant through Mayo Clinic.
Hi! I had my transplant 8 years ago but because I had a nephrologist that wasn’t that good, I went through the process of being set up for dialysis and only had it for 3 months before my transplant. I had PD and really disliked it. I told my husband if my transplanted kidney ever gave out I would never do dialysis again but this nxstage dialysis sounds very doable. I’m sorry your husband can never have another transplant but this type of dialysis seems to be easier to live with than the other two types currently offered. Thank you for sharing that!
@kidney09, I want to welcome you to Mayo Connect. Thank you for sharing your experience with us. That is the reason that Connect exists – for us, the patients, to share our experiences and to learn from each other, and to support and to encourage each other.
WoW! Congratulations on your 8 years of transplant history:-) I celebrate with you, because I am currently 8 years also! (will be 9 years in April).
What was the underlying condition that caused your need for dialysis and the transplant?
Liked by Jamie Olson
Is there a long recovery? Much pain? I really don’t know what I face yet. I see doctors next week. I know I don’t have cancer but I should get information on my Kidney next week.
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