Another incontinence questions, looking for similar experiences

@zintis ,

45 yr old here, just had RARP 4 weeks ago. I was quite incontinent the first 3 weeks. AT the 3 week mark I started to do the Kegels for the https://pcpep.org/ program. It is a 6 month free program.
....and no bullshit, a week later I went from changing 4 diapers/day, to going the entire day with only 1 diaper. Before I go to bed in the evening, i change to a fresh diaper, but in the morning it relatively dry. I feel the need to go during the night so i wake 2-3 times. Same during the day. I am starting to feel the urge and I go to the toilet.

I highly recommend the https://pcpep.org/ program. It is free and it also makes use of a biofeedback monitor, teaches various Kegel exercises, strength exercises, diet changes and many more,

I hope this helps.

Stay strong and be positive.
Dinu

Been there and done that. RP, almost three years ago and horrible incontinence. Started with one very nice PT and she knew nothing about men post RP with incontinence issues.

Then I found a DPT who specialized in pelvic floor issues for men. And especially for men post RP. She was amazing. I went from pads a day to most days dry except for the gym or hiking, then a small pad. It is far more than just Kegels.

Please find a DPT who specializes in men with pelvic floor issues. A regular DPT will be fairly clueless.

And watch your intake of coffee and other bladder irritants. That made a huge difference.

Let me know if you have any questions.

@folmajt
I have exactly similar symptoms. My RS was done 2-1/2 months ago. I wake up 4-5 times during the night and empty my bladder. My pelvic floor physical therapy will start on May 20. I am hoping good results may come out of that.
I am also doing kegels and excercise for 45 min. Every day which has not made any difference.

@dinu

Thanks so much for the information. I will definitely look into pcpep, one of my challenges is that I live in a very rural area. The men's pelvic floor specialist I located is 85 miles away, and insurance doesn't pay for it. Stay well!

Diet is another thing that can really impact the bladder. I don’t eat terribly spicy things generally, but these days, I avoid even mildly spicy things, like banana peppers, or hot pickles.

I have half-caff hot tea or decaf coffee, nothing carbonated, and no alcohol. I had my last drink Christmas Day and then my next one on Easter, and that’s been it (surgery was in early January) - I’ve got a fridge full of beer and bubbly, a rack full of wine, and a bar full of spirits, and it’s all just sitting there…nothing carbonated, either, and nothing with citric acid, so no OJ or oranges.

I was prescribed gemtessa I think it has helped. I am 15 months out progress was slow but steady. I also tried the biofeedback thing, which I think helped, and would I agree with what everybody is posted here, don't do too many certainly do kegels, combine with core or standing sitting, those things even walking is a good idea. It really just takes time.Most people with lots of exception take about a year or so, it's a pain\nBetter than cancer though

@clevelandguy
Just curious how many pads you use in a day.

@edinmaryland
Yes Better than cancer

@jrs619
Hi, I use one light pad(Depends) pad per every 24 hrs. Usually when I change the pad it has almost nothing in it. Somedays a little more, somedays a little less.

@thmssllvn
I had surgery in September 2025 and it's been a journey ever since. I leaked every time I walked to the bathroom or started making dinner after sitting in my office for a few hours at a time. Even after going to the bathroom, I would walk away and start leaking again. This happened almost every day for the first 3 months. I saw a UA who suggested Gemtesa which treats overactive bladders. It's expensive with no generic out yet, but I started that in November. It's really hard to say whether or not it has helped, but I have improved over the last few months with less or no leakage making it to the bathroom. Then I took my first trip this week with a flight to the midwest for work, and I was full of anxiety. I was relatively okay on the flights, but every night when I got back to my hotel room, the leakage was just like it was after surgery. I'm convinced that my anxiety makes it much worse which is not exactly something that I can control, but I do see a therapist which helps to talk about it. I have been back home for a couple of days now and I am hoping I get back to where I was before the trip.

Some guys have no incontinence issues where others really suffer. There just isn't a magical solution. I just hope with time while continuing to exercise and work on my kegels that I will keep improving. I hope you will as well because it absolutely sucks to have little or no control over leaks.