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Another incontinence questions, looking for similar experiences
My RP was about 3 months ago. I still have 0 control of urine when I'm standing/walking/moving, generally small amounts spurt out every minute or two (clearly it's not staying in the bladder). When I'm sitting, it generally doesn't leak out, and if I contract the pelvic floor on my way to the toilet, can usually empty fairly normally. At night it's kind of 1/2 and 1/2. When I wake (frequently) I'll get to the toilet and empty what's there, although if I sleep more soundly then it drains into the pad. Two months post op I had a pelvic scan as well as a cystoscopy, nothing abnormal has been revealed. During the cystoscopy the doctor had me tighten the external sphincter, which I did just fine. The PT guy also says that everything seems normal. I've been pulling up on the kegels since the catheter was removed post op. I've been doing various physical exercises for pelvic floor muscles, etc. So far nothing has made any difference to the issue. All the medical professionals are basically saying: "Hopefully it will improve." Any of you guys have a similar experience? Has anyone used one of those biofeedback gizmos with any success? I'm 67, fit, active, fairly slim.
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@zintis ,
45 yr old here, just had RARP 4 weeks ago. I was quite incontinent the first 3 weeks. AT the 3 week mark I started to do the Kegels for the https://pcpep.org/ program. It is a 6 month free program.
....and no bullshit, a week later I went from changing 4 diapers/day, to going the entire day with only 1 diaper. Before I go to bed in the evening, i change to a fresh diaper, but in the morning it relatively dry. I feel the need to go during the night so i wake 2-3 times. Same during the day. I am starting to feel the urge and I go to the toilet.
I highly recommend the https://pcpep.org/ program. It is free and it also makes use of a biofeedback monitor, teaches various Kegel exercises, strength exercises, diet changes and many more,
I hope this helps.
Stay strong and be positive.
Dinu
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3 ReactionsBeen there and done that. RP, almost three years ago and horrible incontinence. Started with one very nice PT and she knew nothing about men post RP with incontinence issues.
Then I found a DPT who specialized in pelvic floor issues for men. And especially for men post RP. She was amazing. I went from pads a day to most days dry except for the gym or hiking, then a small pad. It is far more than just Kegels.
Please find a DPT who specializes in men with pelvic floor issues. A regular DPT will be fairly clueless.
And watch your intake of coffee and other bladder irritants. That made a huge difference.
Let me know if you have any questions.
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1 Reaction@folmajt
I have exactly similar symptoms. My RS was done 2-1/2 months ago. I wake up 4-5 times during the night and empty my bladder. My pelvic floor physical therapy will start on May 20. I am hoping good results may come out of that.
I am also doing kegels and excercise for 45 min. Every day which has not made any difference.
@dinu
Thanks so much for the information. I will definitely look into pcpep, one of my challenges is that I live in a very rural area. The men's pelvic floor specialist I located is 85 miles away, and insurance doesn't pay for it. Stay well!
Diet is another thing that can really impact the bladder. I don’t eat terribly spicy things generally, but these days, I avoid even mildly spicy things, like banana peppers, or hot pickles.
I have half-caff hot tea or decaf coffee, nothing carbonated, and no alcohol. I had my last drink Christmas Day and then my next one on Easter, and that’s been it (surgery was in early January) - I’ve got a fridge full of beer and bubbly, a rack full of wine, and a bar full of spirits, and it’s all just sitting there…nothing carbonated, either, and nothing with citric acid, so no OJ or oranges.