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New here, 1.5 weeks post op Lobectomy….
Hello everyone and Thank you all for being here.
I was diagnosed with NSCLC, Stage 1b due to size.
Surgeon removed tumor along with RML.
Lymph nodes all benign, I am so grateful.
I will learn soon of treatment.
I’m hanging in there despite the expected pain,
Some difficulties with sleep as I see is common.
I’m walking, walking and walking some more, that really helps !
I don’t have any questions as of yet, hoping to help others if I can.
🙂
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Thank you so very much for your advice! I will ask my Oncologist the pros and cons for the continuing of the immunotherapy for one more year. I will post an update on my decision!
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2 Reactions@mamajite
Our daughter is a Physician assistant at Mayo. She is insisting me to do one more year of immunotherapy to make sure the tumor won’t come back. I’m going to do one more year of the immunotherapy treatment. Thanks!
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4 Reactions@paupau52 I'm sure her expertise and advice is coming from a place of love. 🥰 best of luck with your immunotherapy!
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1 ReactionThank you so very much for all the positive responses and advice! I’m so grateful to be able to share the same experiences from all of you ! It help me to know that I’m not alone! May God bless all of you always!
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6 ReactionsHi, I have a lobectomy in two weeks - my right lower lobe. I’m trying to learn what to expect, what to bring to the hospital, how to plan for recovery… it’s a lot. I hope that your recovery continues to go well and that the pain and discomfort subside quickly!
hi @easmith - welcome to mayo connect! surgery can definitely feel daunting. my must haves for the hospital are: phone charger, electrolyte powder, lip balm, hand lotion, respirator masks, HEPA air filter, and clothes that are easy on/off - sweats with a zip up top, slip on shoes. have you received a diagnosis already?
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1 Reaction@easmith
Hi, welcome !
I did the same, got as prepared as I could.
That definitely helped me.
I took toiletries to the hospital and yes as mamajite said, comfy sweat pants, loose waist and easy zip on off shirt, I chose a button up… as well a knee length zip up robe to walk the hospital hallway without that “ rear view breeze “ ….
The one thing I wished I had in the hospital was throat lozenges as I had the usual sore throat post surgery.
A small pillow for the ride home to cushion your side from pot holes and if you need to cough or sneeze, hugging that pillow makes a big difference.
I also found having extra bed pillows helpful, under my legs and at my sides especially the first few days.
Once home, I found a recliner was and still is most comfortable to sleep in as laying down flat is uncomfortable and not conducive to sleep for me.
I have an older recliner, a manual handle to recline back and such, so my husband has been doing that for me.
I also prepared food, freezing up serving sizes of chili, soup, quinoa… etc… so easy to just defrost.
And, stool softener … meds can be constipating.
If I think of anything else, I’ll let you know…
Thank you, yes my recovery is still going smoothly …
Sending you positive thoughts for your surgery 😊
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5 Reactions@mamajite Yes, lepidic adenocarcinoma stage 1b. Thank you so much for the suggestions!
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1 Reaction@daisydays Thank you!! It’s so helpful to hear about other’s experiences. I didn’t think about lozenges and stool softeners (for home) but it’s nice to have those things on hand when needed.
@easmith you're most welcome. I also have adenocarcinoma stage 1B. Have they tested you for biomarkers yet?