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My new pulmonologist told me Bronchoiectasis causes MAC

Posted by doberdoo @doberdoo, Feb 24, 2025

My new pulmonologist told me Bronchoiectasis causes MAC. The prior pulmonologists and Infectious Disease doctors all told me it is caused by SOIL. I am an avid gardener and know I have inhaled cactus/succulent soil many many times. Is he correct? I thought they were two different diseases or that MAC progressed to Bronchoiectasis. Can someone help me understand?

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jimpop738 | @jimpop738 | Apr 17 3:49pm
In reply to @doberdoo "Thank you for your response. I am very sorry to hear your own story and all..." + (show)
Profile picture for doberdoo @doberdoo

Thank you for your response. I am very sorry to hear your own story and all that you have been through. I wish the best for continued success in beating these horrible diseases.

So, I am right in thinking this pulmonologist knows nothing about MAC and I must find a new one. I put in quotes what he said that Bronchectasis causes MAC. As you so clearly explained, Bronchectasis is a disease and MAC starts as viral bacteria in the soil. My instinct is to file a complaint against him with the hospital. He is a danger to me and future patients. What do you advise regarding him?? Or anyone else who might read this? Would you report him?

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@doberdoo Maybe he was trying to say that bronchiectasis causes you to be more susceptible to Mac?

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rpec | @rpec | Apr 18 12:09pm

I had MAC almost 20 years ago, which I got from dirt because I loved working in yard. Was on 3 antibiotics for a year which got rid of the MAC and it has not returned but it did damage my lungs which made me susceptible to lung problems. I had pneumonia one time and then nocardia pneumonia. Got over all this and was doing well. About 10 years ago developed bronchiestis. Did ok with that. I did cough up mucus some but was able to exercise and do whatever I wanted to. Unfortunately it has progressed and in the last couple if years has given me extreme shortness of breath. Cannot do anything physical anymore. Sorry this is so long.

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myjourneybe | @myjourneybe | Apr 18 2:34pm
In reply to @ellieoak "Hi everyone, I like you have been living with Bronchiectasis and MAC most of my life...." + (show)
Profile picture for ellieoak @ellieoak

Hi everyone, I like you have been living with Bronchiectasis and MAC most of my life. My pulmonologist has me on Bactrim 2x a day, and a nebulizer 3 x day. Never has he told me that there were other treatments out there that would help. The aerokia , the vibration air vest, physical therapy, or massage people who have you lying on your side and the massage or pump your ribs .
Noah Greenspan did some videos that I just saw.
Check it out.
Noah@pulmonary-wellness.org

Noah@pulmonary-wellness.org

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@ellieoak
I know what you are going through. My pulmonologist never did any sputum tests, ct scans or breathing tests. When I started going to Mayo, it's like he is intimidated and gets mad at me. Usually you don't keep Dr's at Mayo forever but I think I need a new local pulmonologist too. Good luck. Sometimes these specialists are hard to find.

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