1. < Osteoporosis & Bone Health
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Does the anxiety or fear of this prognosis ever get better?

Posted by rudysmom @rudysmom, Apr 6 10:44am

Maybe it’s just me, but since my diagnosis a few weeks ago my anxiety is through the roof. I made appointments with 2 different Endocrinologist and I have my first appointment tomorrow, hoping it will help put me at ease. As soon as I wake up in the morning it’s the first thing I think of or even in the night if I wake up to roll over. The information is so overwhelming do this not that, then you’ll read something saying the total opposite. The statistic of 1 out of 2 women will get a fracture is mind numbing. I feel like I’m doomed no matter what I do. Every time I get a twinge in my back I now think, here we go. I’m 60 and have no other health problems and take no medications, yet. I exercise every day now and listen to books on tape to get mind focused on something else. I’m not afraid to do the work, just afraid of the future outcomes, which I know I can’t control, but anxiety and fear have their own ideas.

Interested in more discussions like this? Go to the Osteoporosis & Bone Health Support Group.

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deborahla | @deborahla | Apr 8 10:05am

She did PNP1 and CTX. PNP1 : 3/26 - Result was 27. (It was 52 12/25 and 102 5/25). CTX - 3/26 result was 410. (Prior Result was 456 5/25).

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daisy17 | @daisy17 | Apr 8 11:46am
In reply to @daisy17 "Yes, it does get better. It helps to remind yourself that bones change very slowly. So..." + (show)
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Yes, it does get better. It helps to remind yourself that bones change very slowly. So you have time to do research on medications, supplements, exercise and other things that can help.

For example, in Japan they prescribe high doses of Vitamin K in the forms of MK-4 and MK-7, which show promise in improving bone density with little to no side effects. I just posted a discussion on this today in this support group. I am taking two forms of Vitamin K in high doses: 180mcg Menaquinone-7 (MK7) - TrueVantage brand and 45,000 mcg (45 mg) of vitamin K2 (menaquinone-4) - Life Extension K2 High Potency brand

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@daisy17 Another supplement that has shown benefits is collagen supplements with Fortibone. The cheapest brand I found on Amazon was AlgaeCal brand. It's cheaper if you buy two at a time on their auto-ship program.

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ccduplass | @ccduplass | Apr 8 12:21pm

I feel you, it was and still is my battle even though I have gone ahead with TYMLOS, I too consider myself healthy and physically fit at 67 but then I see some women with serious complications with their backs and it makes me see where I could end up if I don’t do something about it, almost 4 months on TYMLOS and I am still afraid and stressed about it. I hope it gets better for you, look at your options and give it try, perhaps we should use this chat group more often to find community and share our fears about osteoporosis

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beachesanddreams | @beachesanddreams | Apr 8 9:04pm
In reply to @daisy17 "Yes, it does get better. It helps to remind yourself that bones change very slowly. So..." + (show)
Profile picture for daisy17 @daisy17

Yes, it does get better. It helps to remind yourself that bones change very slowly. So you have time to do research on medications, supplements, exercise and other things that can help.

For example, in Japan they prescribe high doses of Vitamin K in the forms of MK-4 and MK-7, which show promise in improving bone density with little to no side effects. I just posted a discussion on this today in this support group. I am taking two forms of Vitamin K in high doses: 180mcg Menaquinone-7 (MK7) - TrueVantage brand and 45,000 mcg (45 mg) of vitamin K2 (menaquinone-4) - Life Extension K2 High Potency brand

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@daisy17 I didn’t know this. It’s quite interesting. Is it for osteoporosis, osteopenia, or as a preventive medication?

Do you take on your own, or administered by a physician?

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dvargo | @dvargo | Apr 9 6:18am
In reply to @daisy17 "Yes, it does get better. It helps to remind yourself that bones change very slowly. So..." + (show)
Profile picture for daisy17 @daisy17

Yes, it does get better. It helps to remind yourself that bones change very slowly. So you have time to do research on medications, supplements, exercise and other things that can help.

For example, in Japan they prescribe high doses of Vitamin K in the forms of MK-4 and MK-7, which show promise in improving bone density with little to no side effects. I just posted a discussion on this today in this support group. I am taking two forms of Vitamin K in high doses: 180mcg Menaquinone-7 (MK7) - TrueVantage brand and 45,000 mcg (45 mg) of vitamin K2 (menaquinone-4) - Life Extension K2 High Potency brand

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@daisy17 same and showed great improvement
.

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daylemaples | @daylemaples | Apr 9 9:09am

bone markers are essential to timing and decision making.
Some doctors need to be “ nudged” even endocrinologists!!

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kfhoz | @kfhoz | Apr 9 11:27am
In reply to @beachesanddreams "@daisy17 I didn’t know this. It’s quite interesting. Is it for osteoporosis, osteopenia, or as a..." + (show)
Profile picture for beachesanddreams @beachesanddreams

@daisy17 I didn’t know this. It’s quite interesting. Is it for osteoporosis, osteopenia, or as a preventive medication?

Do you take on your own, or administered by a physician?

Jump to this post

@beachesanddreams I love it that @daisly17 has started a separate thread on Vitamin K esp Vitamin K2. She has some great links that address some of your questions in her posts there. Here is a link:
https://connect.mayoclinic.org/discussion/vitamin-k-high-doses-of-mk-4-and-mk-7-show-promising-results/

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daisy17 | @daisy17 | Apr 9 11:45am
In reply to @beachesanddreams "@daisy17 I didn’t know this. It’s quite interesting. Is it for osteoporosis, osteopenia, or as a..." + (show)
Profile picture for beachesanddreams @beachesanddreams

@daisy17 I didn’t know this. It’s quite interesting. Is it for osteoporosis, osteopenia, or as a preventive medication?

Do you take on your own, or administered by a physician?

Jump to this post

@beachesanddreams I think it would be beneficial for osteopenia and osteoporosis. I buy my supplements on Amazon. Here is what I'm taking, with no side effects noticed:
180mcg Menaquinone-7 (MK7) - TrueVantage brand and
45,000 mcg (45 mg) of vitamin K2 (menaquinone-4) - Life Extension K2 High Potency brand

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beachesanddreams | @beachesanddreams | Apr 9 2:30pm
In reply to @daisy17 "@beachesanddreams I think it would be beneficial for osteopenia and osteoporosis. I buy my supplements on..." + (show)
Profile picture for daisy17 @daisy17

@beachesanddreams I think it would be beneficial for osteopenia and osteoporosis. I buy my supplements on Amazon. Here is what I'm taking, with no side effects noticed:
180mcg Menaquinone-7 (MK7) - TrueVantage brand and
45,000 mcg (45 mg) of vitamin K2 (menaquinone-4) - Life Extension K2 High Potency brand

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@daisy17 I’ve made a copy, thank you. If you don’t mind my asking, how is your bloodwork? It’s great you are tolerating with no side effects - that’s very promising - but are your basic levels still good?

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beachesanddreams | @beachesanddreams | Apr 9 2:31pm
In reply to @kfhoz "@beachesanddreams I love it that @daisly17 has started a separate thread on Vitamin K esp Vitamin..." + (show)
Profile picture for kfhoz @kfhoz

@beachesanddreams I love it that @daisly17 has started a separate thread on Vitamin K esp Vitamin K2. She has some great links that address some of your questions in her posts there. Here is a link:
https://connect.mayoclinic.org/discussion/vitamin-k-high-doses-of-mk-4-and-mk-7-show-promising-results/

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@kfhoz Ooh, thanks for this! Hopping on now!

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