NAFLD (nonalcoholic fatty liver disease): Want to connect with others

Posted by mydogsbestfriend @mydogsbestfriend, Dec 11, 2023

I’m looking for anyone dealing with fatty liver

Interested in more discussions like this? Go to the Liver Diseases Support Group.

Profile picture for tisme @tisme

I had nafld doc says I dont anymore , I lost 30 kg , went on the fatty liver diet , cutting out all the crap, ate fresh, cut way down on carbs and sugar .

Jump to this post

@tisme Congratulations! I am happy to hear that you were successful in reversing the course of your liver disease. I think that you must have an amazing willpower and determination to have accomplished this.

What was the hardest part of maintaining your diet? How did your doctor react to the results?

REPLY

once my liver doc told me " you have bad nafld go see a dietician" I never saw him again. i found dieticians useless but I did find a doc I had heard about years ago who specialised is liver issues so I followed her diet. lost 30kg my family doc was amazed at my weight loss knowing what to cook wasnt easy and with arthritis and jaw issues being able to chew it , I ate a lot of turkey mince , and made lots of what was called detox soup which is basically vegetable soup and did all I could to cut right down or out on sugar and carbs , the amounts of sugars etc in foods wow. I stayed away from canned stuff ate fresh

REPLY
Profile picture for ladyesheryl @ladyesheryl

I have fatty liver disease and now high blood pressure, pretty sure I am going to be paced on blood pressure medicine but so far they all say don't take with liver disease. Any suggestions?

Jump to this post

@ladyesheryl High blood pressure drugs can destroy the kidneys, etc., which is what happened to my mother. I will never take them. There is a lot of information about blood pressure, but not so much from doctors. Some say it should rise as we get older.

But most importantly, it can be lowered by using a very good quality bio-feedback machine. Fifty years ago I used one for another health issue, but was able to control my blood pressure with it. Thirty plus years later I was trying some out and immediately got to where I lowered my blood pressure. It's like reaching years of meditation/control without the years spent. (I don't have the patience.)

It's really worth doing if you could afford a fine-tuned one, but it also might be possible to go to a place that sells them but lets you try them out to see if you can control blood pressure.

REPLY
Profile picture for rozy288 @rozy288

Weird usually your ALT in blood work is elevated like mine if non alcoholic fatty liver . Strange it’s normal and CT scan showed it ?
Maybe get bloodwork redone and see if ALT has gone up ⬆️?

Jump to this post

I had previously been comforted by my normal ALT and AST results - right up until I had a liver scan and saw with my own eyes the dreadful state of my almost-cirrhotic liver. I've been taking Milk Thistle for years...

REPLY

I have. NAFLD. I've even had my ethanol checked in the hospital. No alcohol in this body. I am interested though. Does anybody get itchy with this? I get really itchy in my head and my arms. I would just like to know if anyone else has the same problem.

REPLY
Profile picture for corinda @corinda

You are not alone, my dear. I also have Stage 3 (Bridging Fibrosis) diagnosed last October by Fiberscan. I am a 77 y/o female. I am an alcoholic. I had quit cold turkey for 30 years, but following a pedestrian/vehicle accident in which I was the pedestrian (life-flight to a Level 1 Trauma Center 90 miles from home; weeks there and in rehab; and after six months with my normal blood pressure zooming and feeling like "what's the use" I started drinking again.
That was 9 years ago. My AST and ALT have remained in low normal range, so I had no idea my liver was impaired until something showed up on an MRI and I was advised to have the scan.
This was quite a wake-up call. #1: My husband is an elderly disabled veteran who relies upon my caregiving, and #2: I still feel that I have some good years left to me.
So once again I gave up drinking, sugar, salt and all the other things I really craved - lost 20 # and holding.
Like you, I feel fine but I do get easily exhausted. When I hit that wall, I take a nap to refresh myself.
I hope this helps you.

Jump to this post

@corinda what kind of treatment you are doing for the Stage 3 bridging fibrosis

REPLY
Profile picture for christine5 @christine5

I have. NAFLD. I've even had my ethanol checked in the hospital. No alcohol in this body. I am interested though. Does anybody get itchy with this? I get really itchy in my head and my arms. I would just like to know if anyone else has the same problem.

Jump to this post

@christine5 yes,I do,I have NAFLD too,I get itchy in my hands and feet

REPLY
Profile picture for truthfinder @truthfinder

@christine5 yes,I do,I have NAFLD too,I get itchy in my hands and feet

Jump to this post

@truthfinder
My head and arms and legs get itchy.

Occasionally I'll take a benadryl.
It helps temporarily

REPLY

I was diagnosed with NAFLD a few years ago, because of blood work. No symptoms & never itchy. I started taking otc capsules of milk thistle. My primary doctor told me to lose weight & cut back on unrefined carbs. I have not told him about the milk thistle - my last blood work was in the normal range. I have cut back on sweets & unrefined carbs also. My profile at my doctor says I am ‘overweight’; they weigh me with all my clothes on ( I insist on removing shoes & coats). When I check a height/wright chart my weight is about 2 lbs past what would be ‘normal’. I’m disgusted with the medical profession!

REPLY
Profile picture for ferrer2024 @ferrer2024

@corinda what kind of treatment you are doing for the Stage 3 bridging fibrosis

Jump to this post

@ferrer2024 Hi. I wouldn't exactly call it "treatment" - I saw on an imaging report that I likely had cirrhosis of the liver, so I found a gastroenterologist in my medical group. She ordered the liver scan, gave me the results and suggested the following: no alcohol (not even non-alcoholic brew like O'Douls), no added salt or sugar, only fresh fruit (no dried fruit), limited carbs such as bread.
There is a drug called Rezdiffra, but I was turned down by Medicare because according to the government, I already have cirrhosis despite my diagnosis.

I returned to the practice after losing nearly 20 pounds and relegated to a medical assistant who was dismissive and, I would say, judgmental toward my drinking history. I have not returned.

I try to stay motivated about eating the right things. However, I am 77. I have opted not to deprive myself of a meal at my favorite Mexican restaurant and a frozen Margarita every month or so. I am not that big into self-denial, and I want to enjoy the time I have remaining.

I wish I could give you more information, but I think what I am doing is all that can be done for this stage of the disease. I wish you luck - and a nicer doctor!

REPLY
Please sign in or register to post a reply.