Any liver transplant patients experience kidney issues?

I agree with that. So many problems stem from transplant and my team grows. Now hematology, nephrology, endocrinology and urology, each with their own set of meds. I get concerned that their meds may not be good for liver issues. Hard to get a handle on on who is overseeing it all. Now mayo is “offering “ us to reduce our yearly evaluation s to an every other year if we meet criteria. It is our choice at this point, but the rapid growth of the hospital and department is some scary that the comprehensive care we received will be compromised. I pray not but I know transplant is getting swamped. Last visit there, my doctor told me they had 13 patients in transplant wing who were just transplanted. He said never had that volume before. Great thing to see for people. I hope they can rise up and meet the demand. Just my observation over the years I’ve been going there.

@mkhogan when I had my yearly visit with my transplant team at Mass General last week- it had been changed several times since June, my original appointment- I was disappointed. I came with a list of concerns and most were re directed to my PCP, local GI, or a nutritionist. My liver teams focus is decidedly narrowing and on one hand this is reassuring- they think my situation is currently no big deal and yet. They recommend further testing in areas that are not a concern, they are asking me to go to the lab more and still weigh in on areas of my health but from a greater distance. I also worry, trying not to over politicize, that the status of health care information, funding, access, and lack of direction around vaccines and infection control… feels like a confusing mess. My team has become far less transparent and informative about infection control, for instance. Please be kind in your responses if you feel otherwise. I think vulnerable people needing frequent access to health services will suffer at the hands of our current administration no matter where one lives. I personally feel that I need to be extra careful and pay attention because in the 4.5 years since my liver transplant, the world of protecting one’s health looks very different than it did when I first fell ill.

@katebw Hi Kate. Sample size of one but I had a couple of instances in the last month re your concerns. I have my 2 year coming up in a week. Last year it was a zoom meeting with one of the Mayo surgeons. This year they scheduled it with a Nurse Practitioner. While I also felt they think it was no big deal and was glad about that but as according to the local doctors the CT scan & ultra sound I had this month show worsening stenosis. I am sure the NP is very qualified and good but I declined Mayos invitation and called to reschedule with a Mayo DR. from the liver department. They agreed and now I will be on the zoom with one of the Drs. who I have worked with before. On the vacinations. I had a covid shot a little less than 6 months ago. But got a reminder to get another one asap (my insurance co not Mayo). I emailed stating I have always gotten them once a year. They replied they now want this every 6 months. I am guessing just for covid and not all vaccinations. Also re my immunosuppression. Don't know if any of this is applicable to you or helps but hope you get things to work out as you deem best. Best of luck.

@craigcraig Half a banana a day and cruciferous vegetables with every dinner resolved my magnesium issues. I hope it works for you.

I almost forgot to mention that I was prescribed THERA- M multivitamins even before I left the hospital and continue to take them. They contain 60 mg of magnesium which contributes to my daily intake, but it wasn't enough until I started reluctantly eating bananas.