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Any liver transplant patients experience kidney issues?

Transplants | Last Active: Apr 4 2:36pm | Replies (15)

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I agree with that. So many problems stem from transplant and my team grows. Now hematology, nephrology, endocrinology and urology, each with their own set of meds. I get concerned that their meds may not be good for liver issues. Hard to get a handle on on who is overseeing it all. Now mayo is “offering “ us to reduce our yearly evaluation s to an every other year if we meet criteria. It is our choice at this point, but the rapid growth of the hospital and department is some scary that the comprehensive care we received will be compromised. I pray not but I know transplant is getting swamped. Last visit there, my doctor told me they had 13 patients in transplant wing who were just transplanted. He said never had that volume before. Great thing to see for people. I hope they can rise up and meet the demand. Just my observation over the years I’ve been going there.

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Replies to "I agree with that. So many problems stem from transplant and my team grows. Now hematology,..."

@mkhogan when I had my yearly visit with my transplant team at Mass General last week- it had been changed several times since June, my original appointment- I was disappointed. I came with a list of concerns and most were re directed to my PCP, local GI, or a nutritionist. My liver teams focus is decidedly narrowing and on one hand this is reassuring- they think my situation is currently no big deal and yet. They recommend further testing in areas that are not a concern, they are asking me to go to the lab more and still weigh in on areas of my health but from a greater distance. I also worry, trying not to over politicize, that the status of health care information, funding, access, and lack of direction around vaccines and infection control… feels like a confusing mess. My team has become far less transparent and informative about infection control, for instance. Please be kind in your responses if you feel otherwise. I think vulnerable people needing frequent access to health services will suffer at the hands of our current administration no matter where one lives. I personally feel that I need to be extra careful and pay attention because in the 4.5 years since my liver transplant, the world of protecting one’s health looks very different than it did when I first fell ill.