← Return to Any liver transplant patients experience kidney issues?
DiscussionAny liver transplant patients experience kidney issues?
Transplants | Last Active: Apr 4 2:36pm | Replies (15)Comment receiving replies
Replies to "I agree with that. So many problems stem from transplant and my team grows. Now hematology,..."
Connect

@mkhogan when I had my yearly visit with my transplant team at Mass General last week- it had been changed several times since June, my original appointment- I was disappointed. I came with a list of concerns and most were re directed to my PCP, local GI, or a nutritionist. My liver teams focus is decidedly narrowing and on one hand this is reassuring- they think my situation is currently no big deal and yet. They recommend further testing in areas that are not a concern, they are asking me to go to the lab more and still weigh in on areas of my health but from a greater distance. I also worry, trying not to over politicize, that the status of health care information, funding, access, and lack of direction around vaccines and infection control… feels like a confusing mess. My team has become far less transparent and informative about infection control, for instance. Please be kind in your responses if you feel otherwise. I think vulnerable people needing frequent access to health services will suffer at the hands of our current administration no matter where one lives. I personally feel that I need to be extra careful and pay attention because in the 4.5 years since my liver transplant, the world of protecting one’s health looks very different than it did when I first fell ill.