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Anyone have Vagus nerve problems causing strange, unnerving symptoms?

Posted by joannemm34293 @joannemm30809, Mar 23, 2023

Does anyone else have debilitating symptoms that affects the entire body, especially in the morning hours, and my Arrhythmia Dr told me I have Vagus Nerve malfunctions that causes major issues where my heart goes off beat, I have to continually use the bathroom and I get an overall body feeling of just feel sick, rush of nausea etc.

I still have the overall muscle twitching and strange internal vibrations as well as tinnitus and thumping sounds in my right ear.

Does anyone else have Vagus nerve problems that cause strange, unnerving symptoms??

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billeekhof | @billeekhof | Mar 13 10:48pm
In reply to @ativ1207 "For the past 10 yrs my heart rate has been fluctuating from 185/110 to 70/55 with..." + (show)
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For the past 10 yrs my heart rate has been fluctuating from 185/110 to 70/55 with a lot of dizziness and have passed out 7 times. From my research I found that the vagus nerve basically sends signals to the brain which tells the heart to regulate blood flow. Have been to numerous cardiologists and neuroscientists who have not given me an answer for passing out and dizziness after doing all their tests. I mention the vagus nerve to the cardiologist in Florida after passing out and winding up in the hospital again and basically tell me it is not the Vargas nerve causing the passing out episodes, which I still think it is. I am frustrated after all these years with no answers .

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@ativ1207 I had the same probloms with dizziness an passing out so I have some kind of autoimmune thing no specific name but was told my vegas nerve was deterating an causing sudden dangerous blood pressure drops had nerve test as well as a million others but thats was what they said an no treatment to speak of

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ammiatx | @ammiatx | Mar 18 8:20am

Thank you for describing what I have been coping with. I have low blood pressure, but I live with a permanent ileostomy which was relocated a year ago.

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Teresa, Volunteer Mentor | @hopeful33250 | Mar 21 1:11pm
In reply to @billeekhof "@ativ1207 I had the same probloms with dizziness an passing out so I have some kind..." + (show)
Profile picture for billeekhof @billeekhof

@ativ1207 I had the same probloms with dizziness an passing out so I have some kind of autoimmune thing no specific name but was told my vegas nerve was deterating an causing sudden dangerous blood pressure drops had nerve test as well as a million others but thats was what they said an no treatment to speak of

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Hello @billeekhof and @ammiatx, and welcome to Mayo Clinic Connect.

I see that you both relate to the symptoms @joannemm30809 mentioned. How was your vagus nerve problem determined? Was it by a scan or simply by ruling out other possible diagnoses?

How are you feeling now?

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ammiatx | @ammiatx | Mar 22 1:45pm
In reply to @hopeful33250 "Hello @billeekhof and @ammiatx, and welcome to Mayo Clinic Connect. I see that you both relate..." + (show)
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Hello @billeekhof and @ammiatx, and welcome to Mayo Clinic Connect.

I see that you both relate to the symptoms @joannemm30809 mentioned. How was your vagus nerve problem determined? Was it by a scan or simply by ruling out other possible diagnoses?

How are you feeling now?

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@hopeful33250 I have had to do my own footwork to find any diagnosis for my various types of vertigo. I have had no tests, except at PT clinic for dizziness and balance. So I'm calling it my syncope episodes just that. I am high output ileostomy, FAP, colorectal cancer stage 3 survivor

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nycmusic | @nycmusic | Mar 23 9:53am
In reply to @ammiatx "@hopeful33250 I have had to do my own footwork to find any diagnosis for my various..." + (show)
Profile picture for ammiatx @ammiatx

@hopeful33250 I have had to do my own footwork to find any diagnosis for my various types of vertigo. I have had no tests, except at PT clinic for dizziness and balance. So I'm calling it my syncope episodes just that. I am high output ileostomy, FAP, colorectal cancer stage 3 survivor

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@ammiatx when I had some abdominal pain, our first guess was vagus nerve issues, but we quickly moved on to imaging which gave answers…it seems that vagus nerve issues are difficult to diagnose and treat…more info is welcome here.

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Teresa, Volunteer Mentor | @hopeful33250 | Mar 23 12:07pm
In reply to @nycmusic "@ammiatx when I had some abdominal pain, our first guess was vagus nerve issues, but we..." + (show)
Profile picture for nycmusic @nycmusic

@ammiatx when I had some abdominal pain, our first guess was vagus nerve issues, but we quickly moved on to imaging which gave answers…it seems that vagus nerve issues are difficult to diagnose and treat…more info is welcome here.

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@nycmusic

I appreciate your input. By imaging, do you mean a specific scan? If so, in what area of the body was the scan done?

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nycmusic | @nycmusic | Mar 23 4:44pm
In reply to @hopeful33250 "@nycmusic I appreciate your input. By imaging, do you mean a specific scan? If so, in..." + (show)
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@nycmusic

I appreciate your input. By imaging, do you mean a specific scan? If so, in what area of the body was the scan done?

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@hopeful33250 abdominal CT, colonoscopy…blood tests…these tests made the definite diagnosis of CRC in my case.

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Teresa, Volunteer Mentor | @hopeful33250 | Mar 23 7:29pm
In reply to @nycmusic "@hopeful33250 abdominal CT, colonoscopy…blood tests…these tests made the definite diagnosis of CRC in my case." + (show)
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@hopeful33250 abdominal CT, colonoscopy…blood tests…these tests made the definite diagnosis of CRC in my case.

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@nycmusic, is there a treatment plan in place?

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rashida | @rashida | Mar 24 1:04am
In reply to @nycmusic "@hopeful33250 abdominal CT, colonoscopy…blood tests…these tests made the definite diagnosis of CRC in my case." + (show)
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@hopeful33250 abdominal CT, colonoscopy…blood tests…these tests made the definite diagnosis of CRC in my case.

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@nycmusic what is CRC?

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nycmusic | @nycmusic | Mar 24 7:04am
In reply to @hopeful33250 "@nycmusic, is there a treatment plan in place?" + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

@nycmusic, is there a treatment plan in place?

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@hopeful33250 this was back in 2024…I was promptly tested, diagnosed with aggressive adenocarcinoma of transverse colon..due to my mutations, given immunotherapy, followed by surgery..pathology then indicated cancer-free…acting quickly made all the difference.

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