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Moods and Parkinson's Disease

Posted by Teresa, Volunteer Mentor @hopeful33250, Jun 1, 2017

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

I recently received an email from the National Parkinson's Foundation regarding moods as it relates to Parkinson's. They are offering a free downloadable book regarding this topic, here is the website where you can find the publication http://www.parkinson.org/sites/default/files/NPF-Mood.pdf. You can also order a free paper copy of the book at http://www.parkinson.org/pd-library/books/Mood-A-Mind-Guide-to-Parkinsons-Disease. It contains some very good information regarding why people with Parkinson's have problems with moods like depression, anxiety, irritability etc. and some helpful ideas for dealing with these moods, both with medicine as well as many self-help ideas.

Perhaps many of you have tried one or more of the suggestions in this publication. If so, please share with the group. We all learn from each other when we share our experiences.

Teresa

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

marie | @mariemarie | Jun 2, 2017
In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)
@knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

Jump to this post

Oh now i understand.Thanks Steve.

REPLY
knightkris | @knightkris | Jun 2, 2017
In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)
@knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

Jump to this post

Thank you

I will ask the PD counselor about support groups. I have one more session left, next week.

I also will check on NAMI to see if this organization exist hete in Vancouver BC Canada

My doctor is trying to help me out. I just am not a fan of to much medication. I already take meds for PD and Fibromyalgia as well as type 2 Diabetes. Then the sleep aids. Just to much.....

Thanks

Kristopher

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 2, 2017
In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)
@knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

Jump to this post

@knightkris I understand your reluctance to add another pill to your routine. Medications can be very helpful for sleep problems, though. I wish you well as look for treatments. Teresa

REPLY
knightkris | @knightkris | Jun 2, 2017
In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)
@knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

Jump to this post

I do have 3 different types of skeep medication now. I am just not fond of always having to take medication to sleep. And taking them I am awake in 4 hours

Thanks again

Kristopher

REPLY
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 2, 2017
In reply to @knightkris "Thank you Tressa. I will be ordering the hard copy of this book. Will let ypu..." + (show)
@knightkris

Thank you Tressa.
I will be ordering the hard copy of this book. Will let ypu know how it is anx how it applies to myself. What I can take away from it.

My biggest issue with PD is counseling. I onlyam able to receive a limitex amount of counseling sessions. 4 to br exact, then I need to pay. A same. Well I will ask to see what else is available.

Other than that I am experiencing severe sleep issues. Is this pary of having PD. This is what I have been told. Not sleeping, than too much sleep. Very aggravating

Thanks again

Jump to this post

@knightkris I am sorry to hear that you haven't found a medication that works for you all night. That must be puzzling for both you and your doctor. Best wishes for a good night's sleep. Teresa

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johnjames | @johnjames | Jun 3, 2017

Knighthins- can I ask if you have ever deal with constant pain in both legs from the Parkinson;s>? Thanks . JJames

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marie | @mariemarie | Jun 5, 2017

Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as long as i bike(stationary) and do BIG exercise each morning at home and attend pedaling for PD 3 times week at health club i feel better...not great but ok. Still trying to put my arms around the diagnosis.

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7 replies
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 5, 2017
In reply to @mariemarie "Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as..." + (show)
@mariemarie

Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as long as i bike(stationary) and do BIG exercise each morning at home and attend pedaling for PD 3 times week at health club i feel better...not great but ok. Still trying to put my arms around the diagnosis.

Jump to this post

@mariemarie You have a great program going! Teresa

REPLY
marie | @mariemarie | Jun 5, 2017
In reply to @mariemarie "Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as..." + (show)
@mariemarie

Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as long as i bike(stationary) and do BIG exercise each morning at home and attend pedaling for PD 3 times week at health club i feel better...not great but ok. Still trying to put my arms around the diagnosis.

Jump to this post

I'm trying. Thanks.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jun 6, 2017

So good to hear from you on Connect again, JJames (@johnjames). How are you doing?

REPLY
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