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Mentor

Parkinson's and Moods

Posted by Teresa, Volunteer Mentor @hopeful33250, Dec 2, 2016

Any of us with Parkinson's know that our moods are affected by this disorder. Much of it has to do with the change in the chemistry of our brains. There are good medications available to help us, however, there are other activities that can help as well. Exercises like Tai-Chi, yoga, and others can not only help our moods of depression and anxiety but can also increase our range of motion, and balance which are always problems with PD. I read a blog the other day from the Michael J. Fox website that took my fancy and I decided to share it with you all. It's about cartoons (probably not what you were expecting me to say)! Here is the link to the blog. Take a look and let's share something about humor and PD.
https://www.michaeljfox.org/foundation/news-detail.php

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Profile picture for marie
marie | @mariemarie | Jun 5, 2017
In reply to @mariemarie "Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as..." + (show)
Profile picture for marie @mariemarie

Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as long as i bike(stationary) and do BIG exercise each morning at home and attend pedaling for PD 3 times week at health club i feel better...not great but ok. Still trying to put my arms around the diagnosis.

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I'm trying. Thanks.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Jun 6, 2017
In reply to @hopeful33250 "Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy I recently..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

I recently received an email from the National Parkinson's Foundation regarding moods as it relates to Parkinson's. They are offering a free downloadable book regarding this topic, here is the website where you can find the publication http://www.parkinson.org/sites/default/files/NPF-Mood.pdf. You can also order a free paper copy of the book at http://www.parkinson.org/pd-library/books/Mood-A-Mind-Guide-to-Parkinsons-Disease. It contains some very good information regarding why people with Parkinson's have problems with moods like depression, anxiety, irritability etc. and some helpful ideas for dealing with these moods, both with medicine as well as many self-help ideas.

Perhaps many of you have tried one or more of the suggestions in this publication. If so, please share with the group. We all learn from each other when we share our experiences.

Teresa

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So good to hear from you on Connect again, JJames (@johnjames). How are you doing?

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2 replies
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johnjames | @johnjames | Jun 6, 2017
In reply to @hopeful33250 "Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy I recently..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

I recently received an email from the National Parkinson's Foundation regarding moods as it relates to Parkinson's. They are offering a free downloadable book regarding this topic, here is the website where you can find the publication http://www.parkinson.org/sites/default/files/NPF-Mood.pdf. You can also order a free paper copy of the book at http://www.parkinson.org/pd-library/books/Mood-A-Mind-Guide-to-Parkinsons-Disease. It contains some very good information regarding why people with Parkinson's have problems with moods like depression, anxiety, irritability etc. and some helpful ideas for dealing with these moods, both with medicine as well as many self-help ideas.

Perhaps many of you have tried one or more of the suggestions in this publication. If so, please share with the group. We all learn from each other when we share our experiences.

Teresa

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Hi Colleen- thanks for the note, I'm glad to be back- I was told I'm in stage 4 two weeks ago, it's started when I could get up from sitting down in a chair for over 45 minutes. I guess that one of the side affects of stage 4. One things I would like to ask everyone with Parkinson's- " Do you suffer from leg pain???" Thank you- and if so , what do you do that helps. Thank you, JJAMES.

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Profile picture for TNTRedhead
TNTRedhead | @tntredhead | Jun 7, 2017
In reply to @hopeful33250 "Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy I recently..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

I recently received an email from the National Parkinson's Foundation regarding moods as it relates to Parkinson's. They are offering a free downloadable book regarding this topic, here is the website where you can find the publication http://www.parkinson.org/sites/default/files/NPF-Mood.pdf. You can also order a free paper copy of the book at http://www.parkinson.org/pd-library/books/Mood-A-Mind-Guide-to-Parkinsons-Disease. It contains some very good information regarding why people with Parkinson's have problems with moods like depression, anxiety, irritability etc. and some helpful ideas for dealing with these moods, both with medicine as well as many self-help ideas.

Perhaps many of you have tried one or more of the suggestions in this publication. If so, please share with the group. We all learn from each other when we share our experiences.

Teresa

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@Jjames I have missed you and said prayers for you during the past few weeks. Wasn't sure if I was missing things or if things were not going well for you. My heart hurts for you but you have such a strong spirit. My Tom suffered from leg pain. - I think. He was unable to communicate but when II touched him, he hurt, I could tell. Nothing seemed to help him but he was at the beginning of the end. JJames, you are such a role model for all of us who have dealt with Parkinsons - in ourselves or someone we love - you are in my thoughts and my prayers. Please if I can help in any way let me know. I fee as if you are my friend because you helped me so very much by your kind words. Prayers, my friend, for healing acceptance, and no pain.

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1 reply
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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 7, 2017
In reply to @hopeful33250 "Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy I recently..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

Hello @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy

I recently received an email from the National Parkinson's Foundation regarding moods as it relates to Parkinson's. They are offering a free downloadable book regarding this topic, here is the website where you can find the publication http://www.parkinson.org/sites/default/files/NPF-Mood.pdf. You can also order a free paper copy of the book at http://www.parkinson.org/pd-library/books/Mood-A-Mind-Guide-to-Parkinsons-Disease. It contains some very good information regarding why people with Parkinson's have problems with moods like depression, anxiety, irritability etc. and some helpful ideas for dealing with these moods, both with medicine as well as many self-help ideas.

Perhaps many of you have tried one or more of the suggestions in this publication. If so, please share with the group. We all learn from each other when we share our experiences.

Teresa

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@tntredhead Thank you for still connecting with our Parkinson's group, it is good to know that you still think of us. We certainly appreciate the kind care you gave to Tom. Teresa

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3 replies
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johnjames | @johnjames | Jun 7, 2017
In reply to @mariemarie "Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as..." + (show)
Profile picture for marie @mariemarie

Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as long as i bike(stationary) and do BIG exercise each morning at home and attend pedaling for PD 3 times week at health club i feel better...not great but ok. Still trying to put my arms around the diagnosis.

Jump to this post

Marie- it's not easy, and after 3 years I still can't-but that's ok. We live each the best we can- spend time with friends and family and thank God we can see the beauty in the sky and the stars at night. You know when we were in battle -or on the battle field- at night in our fox holes we would look at the stars- and thank God for life. Hang in Marie- you will work through it in time- my prayers and friendship. JJAMES

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johnjames | @johnjames | Jun 7, 2017
In reply to @tntredhead "@Jjames I have missed you and said prayers for you during the past few weeks. Wasn't..." + (show)
Profile picture for TNTRedhead @tntredhead

@Jjames I have missed you and said prayers for you during the past few weeks. Wasn't sure if I was missing things or if things were not going well for you. My heart hurts for you but you have such a strong spirit. My Tom suffered from leg pain. - I think. He was unable to communicate but when II touched him, he hurt, I could tell. Nothing seemed to help him but he was at the beginning of the end. JJames, you are such a role model for all of us who have dealt with Parkinsons - in ourselves or someone we love - you are in my thoughts and my prayers. Please if I can help in any way let me know. I fee as if you are my friend because you helped me so very much by your kind words. Prayers, my friend, for healing acceptance, and no pain.

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TNTReshead- thank you for for kind works and thoughts- and of course your prayers mean allot to me. Thanks for brightening my day with what you said and feel- I pray our friendship will be apart of our journey with Parkinson's here through the Mayo Clinic: Colleen and the Clinic does a wonderful job and service to us. Blessings JJAMES

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johnjames | @johnjames | Jun 7, 2017
In reply to @hopeful33250 "@tntredhead Thank you for still connecting with our Parkinson's group, it is good to know that..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

@tntredhead Thank you for still connecting with our Parkinson's group, it is good to know that you still think of us. We certainly appreciate the kind care you gave to Tom. Teresa

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Teresa- how have you been? I don't know if your in Phoenix- but it was 109 yesterday, I would love to move San Diego JJames

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Profile picture for marie
marie | @mariemarie | Jun 8, 2017
In reply to @mariemarie "Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as..." + (show)
Profile picture for marie @mariemarie

Jjames. I know u r awaiting response from knighthines. I experience tightness in mornings but as long as i bike(stationary) and do BIG exercise each morning at home and attend pedaling for PD 3 times week at health club i feel better...not great but ok. Still trying to put my arms around the diagnosis.

Jump to this post

Johnjames, thank you for your inspiring kind words.
Marie

REPLY
Profile picture for Teresa, Volunteer Mentor
Mentor
Teresa, Volunteer Mentor | @hopeful33250 | Jun 8, 2017
In reply to @hopeful33250 "@tntredhead Thank you for still connecting with our Parkinson's group, it is good to know that..." + (show)
Profile picture for Teresa, Volunteer Mentor @hopeful33250

@tntredhead Thank you for still connecting with our Parkinson's group, it is good to know that you still think of us. We certainly appreciate the kind care you gave to Tom. Teresa

Jump to this post

@johnjames Hi JJames, No, I'm not in Phoenix and I feel for you with 109 degree temps, that sounds very difficult. I live in Michigan so while we might have temps in the high 80's right now, it is definitely cooler. I have been doing OK. It is always good to hear from you, your post about the times in the military help us all to put our own problems in perspective and I thank you for that! I do agree that Mayo Connect is a great place for us all to meet, connect and support each other. I hope that your wife is doing better. I'm so glad that you are a part of our group! Blessings, Teresa

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