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Reccover-TLC FYI

Posted by diverdown1 @diverdown1, Mar 11 10:07am

Attaching a screenshot of an email I got from Recover-TLC this morning in case anyone is interested. Peace to all of you.

Interested in more discussions like this? Go to the Post-COVID Recovery & COVID-19 Support Group.

Profile picture for quickstepper
quickstepper | @quickstepper | Mar 13 9:00am
In reply to @anney "@quickstepper IMPORTANT!! Got to: https://www.s4me.info/threads/long-covid-treatment-guide-patient-led-research-collaborative-rthm.49296/ Several really negative comments. This RTHM site is a FRAUD, and..." + (show)
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@quickstepper IMPORTANT!! Got to: https://www.s4me.info/threads/long-covid-treatment-guide-patient-led-research-collaborative-rthm.49296/ Several really negative comments.
This RTHM site is a FRAUD, and dangerous! From the site I've mentioned: "Leonid Schneider (data sleuth & scientific integrity journalist) has flagged this study because the authors have previously been involved in scientific fraud. The owner of the company, Dr Schai Efrati, has previously made claims that HBOT is an effective treatment for many conditions." Another comment: Turns out, only 40 patients were randomised to HBOT, and only 31 of them contributed data to the evaluation." Our biggest problem the millions of SCAMS out there. Give us the truth please! And if you're going to post something, check it out first. What a waste of time! Anney

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@anney thank you for pointing this out to us. You have just shown us the value of this forum. We share information and help each other navigate the information, good and bad, out there.

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Moderator
Colleen Young, Connect Director | @colleenyoung | Mar 13 4:47pm
In reply to @anney "@quickstepper IMPORTANT!! Got to: https://www.s4me.info/threads/long-covid-treatment-guide-patient-led-research-collaborative-rthm.49296/ Several really negative comments. This RTHM site is a FRAUD, and..." + (show)
Profile picture for anney @anney

@quickstepper IMPORTANT!! Got to: https://www.s4me.info/threads/long-covid-treatment-guide-patient-led-research-collaborative-rthm.49296/ Several really negative comments.
This RTHM site is a FRAUD, and dangerous! From the site I've mentioned: "Leonid Schneider (data sleuth & scientific integrity journalist) has flagged this study because the authors have previously been involved in scientific fraud. The owner of the company, Dr Schai Efrati, has previously made claims that HBOT is an effective treatment for many conditions." Another comment: Turns out, only 40 patients were randomised to HBOT, and only 31 of them contributed data to the evaluation." Our biggest problem the millions of SCAMS out there. Give us the truth please! And if you're going to post something, check it out first. What a waste of time! Anney

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@anney, just a quick reminder about the Community Guidelines https://connect.mayoclinic.org/blog/about-connect/tab/community-guidelines/

In particular, I underline item #4.
4. Respect all members.
- Disagreements are fine. But mutual respect is essential.

You're right that there are many scams out there. Unfortunately scams often look to be valid.

@quickstepper, I agree that the value of this forum is to share information and to help navigate to evidence-based information and discern the good from the bad.

The resource you shared clearly states:
"Important Note: The information provided here is for educational purposes only and is not intended as medical advice. It should not be used to diagnose, treat, cure, or prevent any medical condition. Instead, use it as a starting point for discussion with your healthcare provider. Always consult with a qualified healthcare provider before starting any new medication, supplement, device, or making changes to your health regimen."

Also note that the information on the website is AI-driven. With all AI, human oversight is required as outlined in this article:
- What is Generative AI? What does this mean on Mayo Clinic Connect? https://connect.mayoclinic.org/blog/about-connect/newsfeed-post/what-is-generative-ai-artificial-intelligence-what-does-this-mean-on-mayo-clinic-connect/

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