I am using inhaled colistimethate for the first tume

Lenorj did you have any symptoms that it was decided to treat pseudomonas or to prevent colonization

The infection showed up as , “few” cell. I had no other symptoms but my Dr. decided to treat it. No other reason as given.

@carlynic Why boil after using the sterilizer, is that necessary if I do not have any infection that I know of?

I nebulize colistimethate every other month every other day during that month. On the days I'm not nebulizing I take cipro 250mg. My ID doc took this route since I'm so prone to becoming antibiotic resistant. At first I was nebulizing 1.5 ml of colistimethate but that seemed to bother me. That was reduced to 1 ml (which is just a couple of deep breaths) and I seem to be OK with that. Take care my SOB friends!!!

@mpowers501 thanks for the helpfull info. I’ll let you know how I make out.

@picartist Please pardon the delay in responding to your question. After rinsing in Dawn solution, I use the Bololo baby bottle sterilizer once a day for all airway clearance equipment used that day - Eflow Rapid, Aerobika, saline nebulizer cups, toothbrushes. But once a week I boil everything instead of using the baby bottle sterilizer. Gives me a chance to clean the Bololo. Pari recommendations are to boil the eFlow Rapid nebulizer for 5 minutes to sterilize. This is just a system that seems to wok well for me.

@lenorj
I just got the results of my
Lates CT scan and it shows that my lungs are much improved after 2x daily inhaled 1.5 colistimethate. She wants me to continue with it for 6 more months Any one had experience with this levels of the drug for 6 months? Side effects?

@lenorj what is the price?

Do you mean the price for the drug? If so, I pay only $7.00for a new br month supply.

@lenorj I have been on Colistimethate 2x a day 150 ml 2weeks and n 2 weeks off
My last CT scan shows a great deal of improvement in my lungs and so far my cultures have not grown anything. I find that on the weeks that I inhale the colistimeate I am very tired and short of breath. On the weeks off I feel great and have lots of energy. I will be doing g this routine u til Oct when I see the pulmonologist again. It’s not easy, but beats feeling terrible all the time!