Connect
← Return to I am using inhaled colistimethate for the first tume
Discussion
I am using inhaled colistimethate for the first tume
MAC & Bronchiectasis | Last Active: Jun 14 12:48pm | Replies (25)Comment receiving replies
@lenorj I have been on Colistimethate 2x a day 150 ml 2weeks and n 2 weeks off
My last CT scan shows a great deal of improvement in my lungs and so far my cultures have not grown anything. I find that on the weeks that I inhale the colistimeate I am very tired and short of breath. On the weeks off I feel great and have lots of energy. I will be doing g this routine u til Oct when I see the pulmonologist again. It’s not easy, but beats feeling terrible all the time!
Replies to "@lenorj I have been on Colistimethate 2x a day 150 ml 2weeks and n 2 weeks..."
@lenorj - I have been on inhaled Colistimethate twice daily for two years. My Mayo Clinic pulmonologist thinks the Pseudomonas has colonized. The Colistimethate seems to help keep it at bay although I have had several flareups which required me to have PICC lines to administer Cefepime. I also have MAC, which for now, does not seem to be progressing. Five months ago I started Brinsupri and have definitely seen an improvement with the Bronchiectasis flares. I haven’t noticed any side effects with either the Colistimethate or the Brinsupri. I hope you will continue to have improved health.
Connect
I'm on colistamethate every other month, every other day of that month. The doc stretched it out because I'm so prone to developing resistance. On the every other we started at 1.5ml twice daily....NO WAY! SOB! My breathing tighted up to a very uncomfortable level. Reduced the dose to 1ml twice daily, same result. Now at 1ml once every other day. Even that makes me uncomfortable, but tolerable.