1. < Eye Conditions

Non arteritic ischemic optic neuropathy

Posted by Pedie @pedie, May 22, 2017

Over the past month 55 year old son has lost vision in one eye. He has seen an ophthalmologist, had an MRI, was told that nothing can be done. Are there any treatments for this.

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lioness | @lioness | Oct 2, 2019
In reply to @bgoren "Was anything special done to promote a good outcome for the cataract surgery considering you are..." + (show)
@bgoren

Was anything special done to promote a good outcome for the cataract surgery considering you are an NAION patient?

Thank you for sharing your experience!

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@bgoren I'm sorry if I gave you the wrong impression I didn't have NAION in my eyes I only responded to the post where weezy1935 was talking about cataract surgery I wanted to let her know how mine went . I'm sure the Dr you go to can advice you on this matter

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drealtormia | @drealtormia | Oct 30, 2019

I was just diagnosed with NAION I am 61, lost vision in my right eye. I heard there is clinic in Berlin, Germany doing therapy and electrical stimulation to relieve it. Does anyone know anything about this? It is called Fedorov

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1 reply
drealtormia | @drealtormia | Oct 30, 2019
In reply to @jamienolson "Hello @mlbondurant! Welcome to Mayo Clinic Connect. Thank you for posting. I was able to find..." + (show)
@jamienolson

Hello @mlbondurant! Welcome to Mayo Clinic Connect. Thank you for posting.

I was able to find a direct link to a clinical study being done at Mayo Clinic on patients diagnosed with Acute Non-Arteritic Anterior Ischemic Optic Neuropathy. http://www.mayo.edu/research/clinical-trials/cls-20253809

If reaching out to the Mayo Clinic is an option for you please refer to this link for appointment information. http://mayocl.in/1mtmR63

@mlbondurant, can you tell me what you have been doing thus far to protect your eye? Did your Ophthalmologist give you any suggestions?

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is the study closed? Did they find out anything?

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weezy1939 | @weezy1939 | Oct 31, 2019
In reply to @drealtormia "I was just diagnosed with NAION I am 61, lost vision in my right eye. I..." + (show)
@drealtormia

I was just diagnosed with NAION I am 61, lost vision in my right eye. I heard there is clinic in Berlin, Germany doing therapy and electrical stimulation to relieve it. Does anyone know anything about this? It is called Fedorov

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@weezy1939 I have NAION in both eyes.Have you seen a Mayo doctor? I have been told nothing can be done. Have you been told Fedorov can help NAION or other eye problems?

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drealtormia | @drealtormia | Oct 31, 2019

@weezy1939 I went to Bascom Palmer, here in Florida. No hope. Asked them about the Federov clinic in Berlin, no comment. I am going to fill out the info and see if I find out more. Maybe they will have verified testimonials. It is not surgery or injections, just electrical stimulation and therapy.

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1 reply
weezy1939 | @weezy1939 | Nov 1, 2019
In reply to @drealtormia "@weezy1939 I went to Bascom Palmer, here in Florida. No hope. Asked them about the Federov..." + (show)
@drealtormia

@weezy1939 I went to Bascom Palmer, here in Florida. No hope. Asked them about the Federov clinic in Berlin, no comment. I am going to fill out the info and see if I find out more. Maybe they will have verified testimonials. It is not surgery or injections, just electrical stimulation and therapy.

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@weezy1939 I was told the nerves? or what they are called and there are thousands of them have been destroyed. My NAION happened in right eye in 2011 so until this past winter I lived with that. Many people live with one eye and most of the time I forgot that I had very limited eyesight in right eye. It's unusual I was told that it happens in both eyes and I hope that is the case for you. My eye doctor who has been practicing for thirty years has only seen it 3 times in both eyes. Best of luck to you

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bgoren | @bgoren | Jan 5, 2020

I have NAION in my left eye. A month ago, I had cataract surgery in my right eye - and all went well. I now understand my left (NAION) eye also has a cataract. I'm trying to decide if its worth risking the small amount of sight I have in that eye to do the surgery. Has anyone had cataract surgery on an eye where they suffered NAION? If yes, what was the outcome? Thanks!

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1 reply
splq1955 | @splq1955 | Feb 17, 2020
In reply to @mlbondurant "Hi Ms. Young. I'm the son Pedie was referring to. My right eye was diagnosed with..." + (show)
@mlbondurant

Hi Ms. Young. I'm the son Pedie was referring to. My right eye was diagnosed with Non Arteritic Ischemic optic neuropathy in May. I am in great health, work out and am a home builder. I have none of the risk factors: diabetes, hypertension, sleep apnea. And I don't have atherosclerosis. The neuro ophthamologist said I had a "disk at risk", or a smaller opening through which the optic nerve and capillaries have to pass to enter the eye. The swelling that caused the damage to the optic nerve has subsided and the neuro ophth. said the right eye would neither get better or any worse. It's at 20/150. My main concern is doing all I can to protect the other eye. Any therapies, supplements, protocols that could help I'd love to know about. Thanks!

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Does pressure reducing drops treat naion

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2 replies
Moderator
Lisa Lucier, Moderator | @lisalucier | Feb 17, 2020
In reply to @splq1955 "Does pressure reducing drops treat naion" + (show)
@splq1955

Does pressure reducing drops treat naion

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@splq1955 - welcome to Mayo Clinic Connect.

Hoping members like @weezy1939 @drealtormia @pedie @greyhound3 @bgoren will share with you how they it their lives one with non-arteritic anterior ischemic optic neuropathy (NAION) have been treated.

Have you experienced any vision loss, splq1955?

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weezy1939 | @weezy1939 | Feb 18, 2020
In reply to @splq1955 "Does pressure reducing drops treat naion" + (show)
@splq1955

Does pressure reducing drops treat naion

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@weezy1939 MayoClinic doctor and my own eye doctor did not recommend anything except to take good care of my health. Lack of sight has caused me to slow down physically which then causes other problems. Hard to walk in crowds and winter weather so I am in Florida for a month where I can walk fast on beach and not bump into people. When I get back home I am having cataract surgery and hope it clears up what little sight I have. Have any of you had cataract surgery in eye with NAION? My doctor doesn't think it will help but hope I prove him wrong.

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