Support Group for Those of Us Living With Mild Dementia
I know there is a Dementia Caregiver Support Group.
I would like to have a group for people like me. I am entering the Mild Dementia phase from Mild Cognitive Impairment.
It’s frightening to think about my future.
Could a group for Dementia Patients be started?
Interested in more discussions like this? Go to the Aging Well Support Group.
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@craigbyrom yeah, my dreams can turn out that way too.
Crazy scenarios that don’t make sense and never end.
Sometimes I have to get up and walk around a bit for my mind to settle, otherwise the same dream will commence as soon as I close my eyes.
While they are very vivid, they soon fade during the day.
No rest for the wicked 😄. Regards, Ashley
Hello all
What a week, it just blew by.
I dreamt several dreams last night and woke from each one as if I was acting them out, not sure what to think.
Felt like I didn’t sleep well, but today was a day of clarity and ability to stay on task for the most part.
I enjoy these days!
At the same time it’s days like this that make me think I’m all good and subconsciously I’m waiting for it to sneak up on me and go away.
But for now and for today, I am grateful 😊
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2 Reactions@craigbyrom acting out dreams is part of the REM sleep disorder.
I do this sometimes too. It’s an indicator of MCI. Regards, Ashley
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1 Reaction@ashley43725
Rem sleep disorder can also be the result of trauma - assaults, sex assaults, traumatic family deaths, etc.
@craigbyrom hello Craig, in some ways I feel like I know you. The AA phrases you used brought back conversations that I had with my former husband. He uses the “suit up and show up” when he has to go to work.
A gratitude list is something we can consider doing if and when someone helps us. A caregiver has a thankless job so a list we can share with them would be a blessing for both.
For me, MCI in combination with other neurological disorders has really disrupted my life. I keep myself busy by painting, working jigsaw puzzles, and searching for bargains…
I’m glad you found us.
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3 Reactions@ashley43725 we are glad you found us. I hope we can all learn from each other.
I have a question. You were diagnosed with Lewy Body Dementia 2 years ago. That is a dementia.
What did your doctor say about your diagnosis? Did they give you the information in writing? I hope so, that way you will be able to recall what they said.
I’m confused about what you were told.
Please let us know.
Again, we are happy you found us!
Hello!
I was diagnosed with Lewy body disease, with MCI.
The dementia hasn’t developed yet.
Everything is in my medical charts and is well documented.
I am in the early stages of this disease, and manifestations are slowly coming to the forefront, dreaming, acting out dreams, etc. thanks for asking, Regards, Ashley
Not sure ,where I am. Still testing being done, but memory is getting worse.
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1 ReactionMy wonderful partner of 42 years had to quit working 2 years ago due to slowed mentation and what we believe is PD. We will meet with a neurological professional in 2 weeks. He's taken a 3.5 hour test and did well except for the pattern repetition with flashing lights. MRI of the brain looked good. He is dealing with panic attacks, intense anger, anxiety, and forgetfulness. Some minimal tremors upon waking. I've seen a personality change and know he's putting on a brave face, but we're both scared, frankly. Important meeting with neurologist upcoming.
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2 ReactionsUpdate, the MCI diagnosis I got several years ago has not changed. I’m still doing well most of the time.
The Ataxia diagnosis was not correct. I was instead diagnosed with Functional Neurological Disorder FND. That has given me all sorts of physical problems. It’s not a brain disease.
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