Support Group for Those of Us Living With Mild Dementia

@SusanEllen66

If I'm not mistaken that's what I have, too. FND is a part of the CSS umbrella (Central Sensitization Syndromes).

Either way, it's a lot to take in and manage. But it can be so helpful to know what it is so we can work with it, rather than against it.

Were you diagnosed at Mayo?

Well it’s 1:30 in the morning!
Tried to sleep but can’t; this week has really been that way.
Got about 4 hours sleep last night.
Im thinking my subconscious Is fearful of sleeping; have had a couple night terrors as I call them this week .
one where I was being attacked and when I woke up I swear I saw a figure standing over me and I was fighting it off until I realized it was all in my head.
It’s weird and embarrassing talking about these - what other would call crazy stories at least in my mind. But here I feel safe and think that I’m not alone.
Found that this week I’ve been a little on edge and irritable.
Okay I got that out, will try to go to sleep now.
Good night

I dreamt that I built a fire in the fireplace and didn’t open the damper. Smoke was pouring out into the living room. I woke up and could still see the smoke coming out of my bedroom wall. I turned on the light and it slowly went away, so I can relate. Very vivid, indeed. Regards, Ashley

@ashley43725
Thank you…
Seriously, thank you❤️
Like I say, I feel safe here talking about these experiences In hopes that others may relate and I relate to them.
Your description is exactly how my process happens.
And for that I am grateful; knowing that I’m not alone.
I’m sorry that you have to experience what you do in order to offer comfort to me through your story.

It helps me too bro!😎
Another experience I have had maybe a half dozen times also makes me curious if others are having similar instances.
I drove down to the post office in my hometown to drop off a package, as I parked the car everything around me started to look unfamiliar. I knew exactly where I was, but somehow couldn’t recognize anything on main street and wasn’t exactly sure where the post office was ( right beside me). The feeling left after 5 minutes or so but was very disconcerting.I have had the same experience in familiar grocery stores and wall mart. It seems the more external stimulus there is, people around, noise etc brings this on. Thankfully it only happens rarely. Once or twice while driving. Seems my mind can process only so much and goes into a “neutral “ mode. Regards, Ashley

@ashley43725

I’m reading all the comments in here about dimentia.
I know for a fact that I have it but did not think anything about it. Figured and always saying “just getting old”?

However I have noticed lately, basically in the last year more and more bad bad dreams. Violent. Maybe too many action movies, I said.

My question is. What kind of a doctor does one see to diagnose this fun event? My pcp always just looks at blood pressure and depression. Ok so that needs to be taken care of. I’m 82 and I feel these changes coming on. Do I just go on as usual and not worry about them?
Kathymj

@kathymj

If you are lucky enough to have a gerontologist I. Your area that may be a starting point. Otherwise you might tell your PCP that you want a referral to someone who can evaluate you.

@ashley43725 As a functioning individual with cognitive decline, i find myself being aware of the events that you mention.
Like you say not recognizing where you are, But yet it’s a familiar surrounding of years.
Mine too last about 5 ish minutes or so give or take and when my brain finishes rebooting, i get back on track.
But definitely aware afterward and during i think.
When im driving and that happens, i get a little scared sometimes.
In reality for me, it’s not that big of a deal that i forget where i am for a moment.
But i sure dont like it, feeling vulnerable.
Have an amazing day.

@pondering

No, I was diagnosed by my local neurologist.

It’s a life changing disorder.