Support Group for Those of Us Living With Mild Dementia

Hello All!
The replies are appreciated!
I have a strict day to day routine, I go to bed at the same time , get up in the morning at the same time and have arranged my daytime activities accordingly. Fortunately my work schedule is flexible enough for me to arrange it also. I do not share my condition to my fellow employees as the nature of my work would preclude this.
I have had a couple of hallucinations, but my biggest hassle with Lewy body is the epic dreaming. My nights are spent dreaming about 80% of the time and I wake up feeling like my mind has gone through a wringer. I tried klonopin, but the morning after hangovers interfered with my day.
I enjoy building scale models, planes, ships etc to help keep my mind flexible. I do find myself envious of “normal” people, those who do not have my concerns. Keeping busy also helps me to focus on other things in life , as I have noticed that such a disease can quickly overtake every aspect of your life.
I am currently enrolled in various research studies which I feel positive about, these include pet scans and MRI scans and the ever popular spinal tap.
I am 63 and still drive mostly to work and back. I forget names , appointments, medications and have a devil of a time following movies .Documentaries , however, are easy for me. Thanks again for the posts, Regards, Ashley

Those of us Living with mild dementia.!
Hi my name is Craig and I’m living with MCI/ Mild Dementia.
Well i come here to read others experience, strength and hope and remind myself i am not alone in this, i learned this in the rooms of NA and AA for many years.
I am getting to the point where i need to focus on shorter periods of time instead of tomorrow or next week, i focus on the next :30 minutes or even 5 minutes. Not all the time but today it was.
I do a lot of note taking; checklists in particular as i may forget what i was doing while I’m doing it.
So i look at my list and recognize what i was doing and pick back up.
This was very apparent today and for that i am Grateful.
I am grateful that i am aware, maybe not in the moment but at some point i am aware of my deviation.
I share these things; my experience, strength and hope because today was a rough day but i made it through.
I am trying to stay positive and fight off depression because where there is comfort in depression, there is no progress and depression has a terrible way of pulling me in making me think it is a safe place to be, but its not.
I suit up and show up each day, no one day is like the others. Never knowing what level of clarity (cognitive ability) i will have at any given moment.
My mind fades sometimes and find myself in the middle of a room where i must have just been staring at God knows what for how long in a daze.
Found myself standing at my bathroom sink eating a slice of pizza; its like i come out of a little dream or something.
Can you relate to any of this ?
Enough about me.
Thank you all for your experiences
Craig

It's an endless struggle to avoid clutter.
Clutter wastes our time and uses up our brain's energies.
I had a customer who kept a garbage can next to her mailbox.
The junk mail never made it past her front door!

A campaign to reduce clutter has been my focus for several days.
I decided it is time to end a project I've worked on for 6 years. It was a semi-success, and it's not likely to get better.
Today I removed two large objects and related tools out of my office.
The relief of having open space, and not having the project lurking in my mind are wonderful, and far greater than my grief at giving up something in which I'd invested much time, effort and hopes.
I've heard that "incomplete hopes" are the biggest attractors of clutter.

I wonder if our epic dreams are similar.
In mine it seems I’m always in some sort of maze that I can’t seem to find my way out of. The longer I go the more obstacles I encounter. Sometimes I find myself in a huge building ( monolithic) and as I try to find the exit, It becomes more complex, more things to go around, climb over etc. they all seem to share a common theme, trying to escape from the impossible.
It would be nice if epic dreams could be enjoyable 🙂, Regards, Ashley

craigbyrom
We are much alike in the memory/cognitive realm. I used to get disgusted with myself because my memory was failing (forgetting why I went to the kitchen, for example, or not being able to find a particular object which has always been in the same place, etc. I have been trying to keep a small note book with me to jot down ideas, problems as I go through the day, but even that gets old (PITA). Living alone I don't have to answer to anyone but when out with others I sometimes feel they are judging me. I'm learning to say to myself 'So what? This is me - take me or leave me'. I never thought I'd get this old (85) and now that I'm here I have to take the good with the bad.