How do you live with SVT

Posted by mscoleman @mscoleman, Jan 25 12:08am

Looking to see how others handle living with SVT. I was diagnosed with SVT a few months ago after wearing a heart monitor for a month. This was after dealing with the symptoms for about 4 months. I kept getting healthcare personnel telling me it was probably anxiety even when I told them it wasn't. I wish it had been anxiety vs this. Started metoprolol but it crashed my heart rate instead to 40. Now I only take it as needed for prolonged increased rate. I saw an EP and I'm considering ablation and wanted to know if anyone has had it done and if it worked. I'm at my wits end. My life is revolving around this. Afraid to drive, afraid to be alone. The episodes come out of nowhere where and mostly when I'm at rest and asleep and of course work. My life has changed and not for the better. I was outgoing. Any answers for me. Sorry about the long story. Thanks in advance.

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Profile picture for mscoleman @mscoleman

Thank you for sharing. I hope it gets better for you. It truly helps when you know your not alone.

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Yes it does! Thank you! Im doing much better.💜🩷

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Profile picture for gloaming @gloaming

@chezpl69 I don't doubt for a second that you have anxiety, and that it may be related to your intake of metoprolol. Could it be that the anxiety is a secondary effect because it IS causing your heart to enter bradycardia territory, and it is the sensations that accompany those periods of low HR that cause you to feel anxious? Just throwing that out. I hope you don't feel I'm dismissive....not intending that or for you to think that. I just haven't seen anyone say that the drug causes anxiety in them, only that they feel anxious due to how it makes them feel.

Which is 100% legitimate. I would run this past your cardiologist.

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@gloaming
Thanks, I hadn't thought about that. I realized my anxiety came because of lack of education as well. Knowing more about SVT and the treatment has given me comfort and decreased my anxiety with my episodes. I'm no longer on the Metoprolol. I'm now taking Verapamil and it is not as bad. My EP broke his wrist so I have to wait for the ablation. All in all I am definitely doing better! Thanks for the info.

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I suffered with SVT for over a year! I decided to do the ablation and it changed my life! No more episodes and back to working out again! So thankful! Hope you get some relief!

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Dear mscoleman,

I suffered with PSVT for 60 years until I had an ablation about 8 months ago. The palpitations are much better but not gone. Same with the PVCs. I think the results of a cardiac ablation vary widely. You never know what the outcome will be. My EP was convinced he solved my problem but alas, only half way.
When I was having episodes before the ablation, I noticed there was a very brief window where I could stop the palpation within the first few seconds by holding my breath. It didn't always work but frequently it did. I also noticed that for me, dehydration was a trigger so if I couldn't stop the SVT by holding my breath, I would then drink 2 or 3 glasses of water to rehydrate and it would resolve on its own.
The thing that would send me to the ER was electrolyte imbalance. If my magnesium or potassium was low, electrolyte hydration would stop the palpitation.
Idk if any of the things I mentioned will work for you but keeping hydrated and keeping some electrolyte powder in your home sure can't hurt.
Lastly, you have to be your own advocate. You would think in all those years I had PSVT, someone, a doctor or a nurse, would have mentioned dehydration as a trigger. Not once.
Best of luck, try not to worry.

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Profile picture for slw7252 @slw7252

I was diagnosed with SVT 18 months ago and had an ablation which unfortunately I was in that percentage that didn’t take care of it. I was like you stressing about it, wondering when the next episode would be prior to the ablation. After the ablation I just thought that was it and I was good. 4 months later occasional episodes started but I wasn’t anxious about them. My cardiologist felt that since the episodes were very sporadic medication wasn’t needed as I could stop them immediately with valsalva maneuver and I chose not to under go another ablation. 6 months later he decided I should take Metoprolol and Flecainide and yet nothing had changed. Reluctantly I started them but 10 days in had to stop Flecainide due to severe acid reflux symptoms. Still on the Metoprolol which I want to get off of. I found this forum accidentally after the ablation and it really helped with being anxious about the diagnosis as numerous people had stated they had SVT for many years and don’t let it take over their lives and haven’t had treatment for it. In the past 7 months I have had 3 episodes which last less than 1 minute and as I said can stop them with valsalva maneuver. You may be one of the people an ablation stops the episodes. if you are considering it I wouldn’t hesitate as it was a relatively easy procedure.

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@slw7252
I had SVT for 40 Years. It happened sporatically, and increased as the years went by and finally went to the Doctor in my 40th year because I had no life left, always having an episode. Everyone told me it was nerves or imaginary. Now I have life after the SVT ablation. Sooo much better. So far no SVT at all. Keeping my fingers crossed, the valsalva maneuver does not work for me at all. Hoping you have a wonderful life as you continue to cope. Maybe a secondary SVT ablation is in the cards for you.

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Profile picture for normage @normage

@slw7252
I had SVT for 40 Years. It happened sporatically, and increased as the years went by and finally went to the Doctor in my 40th year because I had no life left, always having an episode. Everyone told me it was nerves or imaginary. Now I have life after the SVT ablation. Sooo much better. So far no SVT at all. Keeping my fingers crossed, the valsalva maneuver does not work for me at all. Hoping you have a wonderful life as you continue to cope. Maybe a secondary SVT ablation is in the cards for you.

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@normage
So glad the ablation has worked out for you. I can stop an attack with the valsalva and mine are minimal at this time. 1 every 4-5 months so not looking at another ablation unless they become more frequent. Needless to say I was disappointed when episodes started 3 months after the ablation in 2024.

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I got on here hoping to find someone like me because I am defeated entirely at this point. . I am falling into deep depression over this and my life has come to a complete stop. I was told i had svt about 11 yrs ago because my HR was in the 130s for no reason I was just sitting around. No all of the sudden I have been to the ER 6 times in 3 weeks and I have had 10+ episodes within that time where my HR goes as high as the 180s. I just turned my monitor in and they said it will still be close to another 2 weeks before they even have the readings back. I have the highest anxiety all day every day in fear of the next episode. Any time I go to the ER it takes so long by the time I get there it has passed so NO ONE will help me. I could cry all day at this point. I am not seeing anyone saying they are having episodes frequently like this amd it's scaring me more. I had 3 in one day.

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If affordable, be treated elsewhere. You are not getting the medical care you deserve and need.
Call the 800 number of the closest top tier hospital system near you. Cleveland Clinic in Ohio is well known for helping new patients navigate their system to get seen, evaluated, and treated by the best of the best. Of course, you will need to send your medical records. When I called, I had an appointment set up by the end of the call.
There is almost nothing worse than feeling ignored by your doctor and dismissed to wait, wait, wait. Try to be proactive in seeking help in the right places. I think setting that goal for yourself may help in getting your mind off the worry and negativity. There is help available for you and a way back to normalcy. Go for it!

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Profile picture for jessirae @jessirae

I got on here hoping to find someone like me because I am defeated entirely at this point. . I am falling into deep depression over this and my life has come to a complete stop. I was told i had svt about 11 yrs ago because my HR was in the 130s for no reason I was just sitting around. No all of the sudden I have been to the ER 6 times in 3 weeks and I have had 10+ episodes within that time where my HR goes as high as the 180s. I just turned my monitor in and they said it will still be close to another 2 weeks before they even have the readings back. I have the highest anxiety all day every day in fear of the next episode. Any time I go to the ER it takes so long by the time I get there it has passed so NO ONE will help me. I could cry all day at this point. I am not seeing anyone saying they are having episodes frequently like this amd it's scaring me more. I had 3 in one day.

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Welcome @jessirae, I can't imagine how scary it is to make six trips to the ER in three weeks. Hoping you get some answers soon. I don't think you are alone and there are others here on Connect that may have some suggestions or information to share with you. I did find two other discussions started by members with similar symptoms.

-- High Tachycardia: https://connect.mayoclinic.org/discussion/high-tachycardia/
-- diagnosis or treatment for my 15 year old with tachycardia.: https://connect.mayoclinic.org/discussion/diagnosis-or-treatment-for-my-15-year-old-with-tachycardia/

Have you thought about seeking help at a teaching hospital or major health facility like Mayo Clinic?

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Profile picture for jessirae @jessirae

I got on here hoping to find someone like me because I am defeated entirely at this point. . I am falling into deep depression over this and my life has come to a complete stop. I was told i had svt about 11 yrs ago because my HR was in the 130s for no reason I was just sitting around. No all of the sudden I have been to the ER 6 times in 3 weeks and I have had 10+ episodes within that time where my HR goes as high as the 180s. I just turned my monitor in and they said it will still be close to another 2 weeks before they even have the readings back. I have the highest anxiety all day every day in fear of the next episode. Any time I go to the ER it takes so long by the time I get there it has passed so NO ONE will help me. I could cry all day at this point. I am not seeing anyone saying they are having episodes frequently like this amd it's scaring me more. I had 3 in one day.

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@jessirae you are not alone. I have short SVTs and nearly pass out, in 30 seconds it’s all over but the headache and weakness. My 30 day monitor showed 19 times SVT, I only realized 10 of them. I’ve spent the past 9 months and two trips to the hospital looking for the cause and treatment. I can’t drive because of the presyncope, which affects my job.
This is what landed me at Mayo with Neurology. I am on a waiting list for Cardiology and hoping that the collaboration between drs at Mayo will get me more answers.
Even if our symptoms vary, you’re not alone. It’s frustrating, yes, but I’ve been told over and over “if anyone can figure it out, Mayo can”
xx Hugs xx

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