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How do you live with SVT

Heart Rhythm Conditions | Last Active: 1 day ago | Replies (51)

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Profile picture for jessirae @jessirae

I got on here hoping to find someone like me because I am defeated entirely at this point. . I am falling into deep depression over this and my life has come to a complete stop. I was told i had svt about 11 yrs ago because my HR was in the 130s for no reason I was just sitting around. No all of the sudden I have been to the ER 6 times in 3 weeks and I have had 10+ episodes within that time where my HR goes as high as the 180s. I just turned my monitor in and they said it will still be close to another 2 weeks before they even have the readings back. I have the highest anxiety all day every day in fear of the next episode. Any time I go to the ER it takes so long by the time I get there it has passed so NO ONE will help me. I could cry all day at this point. I am not seeing anyone saying they are having episodes frequently like this amd it's scaring me more. I had 3 in one day.

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Replies to "I got on here hoping to find someone like me because I am defeated entirely at..."

Welcome @jessirae, I can't imagine how scary it is to make six trips to the ER in three weeks. Hoping you get some answers soon. I don't think you are alone and there are others here on Connect that may have some suggestions or information to share with you. I did find two other discussions started by members with similar symptoms.

-- High Tachycardia: https://connect.mayoclinic.org/discussion/high-tachycardia/
-- diagnosis or treatment for my 15 year old with tachycardia.: https://connect.mayoclinic.org/discussion/diagnosis-or-treatment-for-my-15-year-old-with-tachycardia/

Have you thought about seeking help at a teaching hospital or major health facility like Mayo Clinic?

@jessirae you are not alone. I have short SVTs and nearly pass out, in 30 seconds it’s all over but the headache and weakness. My 30 day monitor showed 19 times SVT, I only realized 10 of them. I’ve spent the past 9 months and two trips to the hospital looking for the cause and treatment. I can’t drive because of the presyncope, which affects my job.
This is what landed me at Mayo with Neurology. I am on a waiting list for Cardiology and hoping that the collaboration between drs at Mayo will get me more answers.
Even if our symptoms vary, you’re not alone. It’s frustrating, yes, but I’ve been told over and over “if anyone can figure it out, Mayo can”
xx Hugs xx

@jessirae hi, it is frightening when heart begins to race. I needed to no longer eat chocolate or caffeine or any thing with sugar and carbs, and I make sure I have electrolyte water to keep me hydrated. Also reading lots of books from library to get educated about this. This website is good to learn from. May you anxiety lesson as each day passes, yes.