Has anyone experienced ALL of these symptoms after Covid?

@bettyjackson I have the same as you...since March 2020. Using colloidal oat cream lotion from Canada for the overall dryness and LDN has given me about 50% of my energy back and minimized pain.

@vostie is LDN at a compounding pharmacy
Only??

@lkirnbauer
I did visit that clinic, but it was in 2024. Originally set for 4/1, they canceled and rescheduled for 9/11/24, a year and a half ago. Not much came from it; a anomaly in bloodwork which I'm following up on with a hematologist, a recommendation for "speech therapy" (aka cognitive rehab) at Shirley Ryan which I did for eight sessions, pretty useless, and a prescription for Amantadine which I never took, cuz side effects and little good research. I've continued with the NW/LC virtual monthly support group and find it helpful to learn how people manage, but really believe we were just research subjects. Was told I didn't need to come back, but I've continued to meet virtually every few months with the PA, Aasheeta Bawa, just to chat and see if any new treatments have been found ... so far nothing they recommend. I've learned everything I know about LC (going on year three for me) from this forum and from my own research. I do know others here have reported recovery of smell and taste, in spite of what Dr. K. told you. He spoke at a support group in the past few months .. he said "most people get better over time; we don't know why." He does have a way with words! Hope you've seen some improvement ...

@bettyjackson no…you can get regular strength naltrexone at 25 or 50 mg pills at a pharmacy if your doc will let you dissolve them in liquid and dose yourself. Typically ldn starts at a very small dose around 1.5 mg so most people have it compounded into pills or liquid. I get a 1.5. mg per ml strength liquid so I can easily increase or decrease the dose as I titrated up slowly to 4.5 mg.

@janeaddams Good to read that Koralnik now at least is admitting they don’t know why some folks get better and some don’t. I wish he would have told me that, but instead he just left me feeling hopeless. I could have given up right then and there, but I chose not to and am continuing to find any type of treatment that isn’t too invasive, to regain both my taste and smell. I am currently having Green Violet Laser Light Therapy through my Chiropractor’s office and that is seeming to help my sinuses as I am getting more frequent smells. I will continue to do that until I feel it’s no longer doing anything. There’s a women, who posts that she goes to different states with a Salt Tent and you sit in it and breathe it in. People have been known to get their senses back this way. I’m waiting to hear when she’s coming to Chicago. I’ll be signing myself up! Thanks for the encouraging words and much success to you on your health journey.

I have experienced all except hair loss and the nasal issues. I continue to have brain fog, fatigue, PEM, tingling in my hands and feet, gut issues, symptoms of interstitial cystitis, tinnitus, depression, headaches, joint pain, eye issues...this virus mimics other autoimmune diseases. I am tired of it as I am sure you all are as well. This week has been brutal actually. Emotionally I am tired and yet, I have to get up and thank goodness for my dogs and cats. I get up to feed them, etc. I am in graduate school online and I am supposed to graduate in August. Sometimes (like early this morning, as I slept 12 hours last night on and off) I wonder if I will even be able to work once I graduate. I am 55 and when I started this educational journey I was in the best shape of my life. I have to remind myself that I have to do what I can today. It is difficult sometimes to remember that.

@diverdown1 , I could have written a great deal of your story, though I have a bit more than twenty years on you. My husband is a retired surgeon and doesn’t go for any of my symptoms — he thinks I should have my head examined. Today is one of my worst, and even my regular physician isn’t on my team. It sucks. Good wishes to you. I’m thinking about looking for one of now many specialists in the field

Yes. I have all those since 2021. I take prescription drops for my eyes. Prescriptions for anxiety and swallow from paralyzed esophagus. Rest for sleep. Rollator for imbalance. And just go with the flow recognizing that I’m just treating symptoms- long covid will never go away.

@dvierheller I did forget to say that I have found floating and exercise in swim spa with. Wry warm water helps my joints and pain in general.

@suefish I have seen your name on this site and I am so sorry that your husband is disregarding your symptoms. I have had people in my family minimize my experiences as well. It is infuriating. I know what I am and have experienced these last 3+ years. I have to take it all just one day at a time or I freak out. I am also of the belief that trauma, stress, etc. is part of this. When a body is in fight or flight for long periods of time, it is not healthy. I believe and have seen research about cortisol and autoimmune disorders. I can only speak for myself, but my life has been full of fight or flight. Hang in there!!!