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@lkirnbauer
I did visit that clinic, but it was in 2024. Originally set for 4/1, they canceled and rescheduled for 9/11/24, a year and a half ago. Not much came from it; a anomaly in bloodwork which I'm following up on with a hematologist, a recommendation for "speech therapy" (aka cognitive rehab) at Shirley Ryan which I did for eight sessions, pretty useless, and a prescription for Amantadine which I never took, cuz side effects and little good research. I've continued with the NW/LC virtual monthly support group and find it helpful to learn how people manage, but really believe we were just research subjects. Was told I didn't need to come back, but I've continued to meet virtually every few months with the PA, Aasheeta Bawa, just to chat and see if any new treatments have been found ... so far nothing they recommend. I've learned everything I know about LC (going on year three for me) from this forum and from my own research. I do know others here have reported recovery of smell and taste, in spite of what Dr. K. told you. He spoke at a support group in the past few months .. he said "most people get better over time; we don't know why." He does have a way with words! Hope you've seen some improvement ...

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Replies to "@lkirnbauer I did visit that clinic, but it was in 2024. Originally set for 4/1, they..."

@janeaddams Good to read that Koralnik now at least is admitting they don’t know why some folks get better and some don’t. I wish he would have told me that, but instead he just left me feeling hopeless. I could have given up right then and there, but I chose not to and am continuing to find any type of treatment that isn’t too invasive, to regain both my taste and smell. I am currently having Green Violet Laser Light Therapy through my Chiropractor’s office and that is seeming to help my sinuses as I am getting more frequent smells. I will continue to do that until I feel it’s no longer doing anything. There’s a women, who posts that she goes to different states with a Salt Tent and you sit in it and breathe it in. People have been known to get their senses back this way. I’m waiting to hear when she’s coming to Chicago. I’ll be signing myself up! Thanks for the encouraging words and much success to you on your health journey.