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Mentor

Getting Prepared for Summer with PD

Posted by Teresa, Volunteer Mentor @hopeful33250, Apr 30, 2017

As we enter the spring season and anticipate the summer months, with warmer temperatures, I was wondering how many of you have more Parkinson's symptoms during the hot weather. I know that warm weather is certainly a problem for me. My gait and coordination in general become worse when I am in a hot car or walking in the sun. What is it like for you? Let's discuss how we can cope with warmer temperatures.

Here is a blog from the Michael J. Fox website that discusses exercise in warmer temperatures. https://www.michaeljfox.org/foundation/news-detail.php?ways-people-with-parkinson-can-stay-active-in-the-heat. I'm looking forward to hearing from you, @chrisj2491 @denie57 @johnjames @trouble4343 @ggopher @tntredhead @aperob @caryp43 @burgle @macbeth @knightkris @mariemarie @pjsammy.

Interested in more discussions like this? Go to the Parkinson's Disease Support Group.

Moderator
Colleen Young, Connect Director | @colleenyoung | Jul 16, 2017
In reply to @mari "I know a women - late 70's know her for 5 years, with Parkinson's - gets..." + (show)
@mari

I know a women - late 70's know her for 5 years, with Parkinson's - gets stem cells every few years. I never saw her shake - she has a low voice but is Very Active and in pretty good health.Mari<br><br>

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Hi @gulfer,
I see that you have taken an interest in the effectiveness of stem cells in the treatment of Parkinson's. The use of stem cell in Parkinson's and other neurodegenerative diseases that cause progressive deterioration: Alzheimer's disease, amyotrophic lateral sclerosis (ALS, also known as Lou Gehrig's disease), multiple sclerosis and multiple system atrophy is still in early days.

There is a great deal of hope and a great deal of hype about stem cells. That is why Mayo Clinic offers a free consult service. When you call the consult service, they will tell you about the availability of approved stem cell therapy at Mayo Clinic and elsewhere and for what conditions. They can also tell you about research studies that are actively recruiting participants. Furthermore, you can add your name to a database to be notified when additional studies and information become available. You can learn more about the Consult Service here http://www.mayo.edu/research/centers-programs/center-regenerative-medicine/patient-care/clinical-services/regenerative-medicine-consult-service.
Or call 1-844-276-2003 to speak with one of our experts.

REPLY
johnjames | @johnjames | May 29, 2018
In reply to @tntredhead "I can't remember if I told you or not but I lost my Tom known the..." + (show)
@tntredhead

I can't remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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Colleen- Have you heard of people with Parkinson's ( which I have ) ever have severe jerking in their sleep ? JSOUTH

REPLY
ggopher | @ggopher | May 29, 2018
In reply to @tntredhead "I can't remember if I told you or not but I lost my Tom known the..." + (show)
@tntredhead

I can't remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

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I kick like I’m in a race. It got some better once I was diagnosed and started Sinemet. Started Clonazepam recently but I don’t know if it affects the kicking yet. 

Steve 

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Mentor
Teresa, Volunteer Mentor | @hopeful33250 | May 31, 2018
In reply to @tntredhead "I can't remember if I told you or not but I lost my Tom known the..." + (show)
@tntredhead

I can't remember if I told you or not but I lost my Tom known the 25th.  I am having a difficult time so please remember me in your prayers as we go through the last rites tomorrow with full military honors.TrishThe Redhead

Jump to this post

Hi @johnjames

I am sorry that you have been dealing with so many health problems. Yes, activity during sleep is common with PD. I one time punched myself in the eye at night and my opthamologist thought I was a victim of domestic violence. He couldn't believe that PD folks can be that active while sleeping. We did a conversation on sleep problems on Connect, here is the link, https://connect.mayoclinic.org/discussion/sleep-disorders-parkinsons-video/. Please watch the video, it will help you will understand more about it.

I personally use a drug called Amantadine (it is usually prescribed for tremors) I find it helpful to use at night for the extra physical activity (that is the generic name for Symmetrel). It seems to help with the jerkiness, I understand there are others meds but this one works for me. Talk with your doctor and see what he/she suggests.

Nice to hear from you - keep in touch~

Teresa

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