Questions about the Fodmap Eating Plan - any success stories?

Posted by Teresa, Volunteer Mentor @hopeful33250, Jun 13, 2020

I will be starting on the fodmap eating plan next week and I'm looking for some suggestions about following this plan for the first four weeks. Did you have the guidance of a dietician? Did you find any books, recipes, YouTube videos that helped you? I'm also wondering how you went about the addition of foods after the four-week restricted period?

Any success stories (I'd really like to hear them). Anything that was particularly helpful or difficult for you?

@astaingegerdm @thull @nancybev

Interested in more discussions like this? Go to the Digestive Health Support Group.

Profile picture for dt61 @dt61

@sm80 frustrating at best, similar SIBO with additional issues that will in reality never be resolved.
My personal food map has been scrambled eggs, 4 times a day. I have grown to enjoy black and cayenne pepper for flavor.

Jump to this post

@dt61
Yikes, really, scrambled eggs four times a day? Wouldnt that lead to malnutrition? I feel for you. It's so frustrating.

REPLY

It seems most of us with SIBO are on our own. I spend way too much time trying to find solutions but the medical world just has been no help at all. I tried ryfaxin and it seemed to make my symptoms worse. The only thing for me is to follow the fodmap diet.
Has anyone tried the enzymes that you sprinkle on your food and it supposedly makes everything ok? Sounds too good to be true.

REPLY

I haven't done the 4 week elimination thing mostly because I can't find a dietician who specializes in SIBO that my insurance covers. I do follow the fodmap diet that I've sort of learned by trial and error as to what I can and cannot digest. Garlic and onion are big triggers for me. Good luck. I'll be very interested in learning if the process works for you.

REPLY
Profile picture for sm80 @sm80

My SIBO experience is a recurring nightmare. I have had two positive breath tests and have treated with antibiotics on 4 different occasions. My last breath test was a Trio-Smart test which showed methane overgrowth, which explained why I responded better to a round of two antibiotics at a time vs. just Rifaximin.

I tried Low FODMAP and it didn't do much to help the gut stuff I didn't identify anything particular that caused issues, and it also didn't reduce my symptoms. I did feel that it was leading me into an eating disorder and obsessive label checking.

The Trio Smart test is from Gemelli Biotech and they have webinars with Dr. Pimentel, a doctor doing extensive research on IBS, SIBO and IMO. I have attended several and find them very informative. Also there is a book called the Microbiome Connection by Dr. Mark Pimentel and Dr. Ali Rezaie which I found to be a good resource also. They recommend a low fermentation diet-not as restrictive as the low FODMAP and one in which you can go to a restaurant and still find something you can have.

I still struggle with gut problems and unfortunately a lot of GI providers don't know about or don't believe in SIBO so I've found I do a lot of research and then discuss it with my providers. It's exhausting and frustrating. Good luck on your journey!

Jump to this post

@sm80
I share all your frustrations...... it can take over your life. I am so nervous about getting sick that I've really restricted my diet and have lost 15lbs... trying not to lose any more.

REPLY
Profile picture for hallward @hallward

More… I’m trying to find a probiotic that helps with SIBO . Any recommendations?

Jump to this post

@hallward I have learned that SACCHAROMYCES BOULARDII helps with SIBO. Also oregano oil under the tongue. Best of luck.

REPLY

I agree with sm80 that the book by Dr. Mark Pimentel and dr. Ali Rezaie, “The Microbiome Connection” is very good and helps explain how the body works in dealing with our problems. One note: while garlic is bad ( in solid form) one dietitian recommended garlic infused olive oil, and that seems to be a non problem.
I have also started using supplements to fight the problem and one of the effective supplements which most agree, is Allicin (garlic). I asked a chat bot “What supplements help is dealing with IMO?” received a whole series of referenced supplements including Oregano Oil, Allicin, Atrantil and some others. Some attack the archaea, while others help in motility. Seems to help but I’m just starting. Good luck!

REPLY
Profile picture for annpeters @annpeters

@hallward I have learned that SACCHAROMYCES BOULARDII helps with SIBO. Also oregano oil under the tongue. Best of luck.

Jump to this post

@annpeters
Thanks, will look into both. Feels like we are on our own with this condition. My gastroenterologist just wants to do another colonoscopy ..........

REPLY
Profile picture for marylandbob @marylandbob

I agree with sm80 that the book by Dr. Mark Pimentel and dr. Ali Rezaie, “The Microbiome Connection” is very good and helps explain how the body works in dealing with our problems. One note: while garlic is bad ( in solid form) one dietitian recommended garlic infused olive oil, and that seems to be a non problem.
I have also started using supplements to fight the problem and one of the effective supplements which most agree, is Allicin (garlic). I asked a chat bot “What supplements help is dealing with IMO?” received a whole series of referenced supplements including Oregano Oil, Allicin, Atrantil and some others. Some attack the archaea, while others help in motility. Seems to help but I’m just starting. Good luck!

Jump to this post

@marylandbob
Thanks for the information.
I have tried the garlic infused olive oil and it does not bother me. Also, I have tried sauteing sliced garlic in olive oil and then removing the garlic before continuing with a recipe, and find that works ok as well.
Will look into the supplements.

REPLY
Profile picture for annpeters @annpeters

@hallward I have learned that SACCHAROMYCES BOULARDII helps with SIBO. Also oregano oil under the tongue. Best of luck.

Jump to this post

@annpeters - since you mentioned saccharomyces boulardii, a fungus and probiotic yeast, I thought you might be interested in this article Mayo Clinic published:

- Prebiotics, probiotics and the microbes in your gut: Key to your digestive health https://mcpress.mayoclinic.org/dairy-health/prebiotics-probiotics-and-the-microbes-in-your-gut-key-to-your-digestive-health/

REPLY
Profile picture for sm80 @sm80

My SIBO experience is a recurring nightmare. I have had two positive breath tests and have treated with antibiotics on 4 different occasions. My last breath test was a Trio-Smart test which showed methane overgrowth, which explained why I responded better to a round of two antibiotics at a time vs. just Rifaximin.

I tried Low FODMAP and it didn't do much to help the gut stuff I didn't identify anything particular that caused issues, and it also didn't reduce my symptoms. I did feel that it was leading me into an eating disorder and obsessive label checking.

The Trio Smart test is from Gemelli Biotech and they have webinars with Dr. Pimentel, a doctor doing extensive research on IBS, SIBO and IMO. I have attended several and find them very informative. Also there is a book called the Microbiome Connection by Dr. Mark Pimentel and Dr. Ali Rezaie which I found to be a good resource also. They recommend a low fermentation diet-not as restrictive as the low FODMAP and one in which you can go to a restaurant and still find something you can have.

I still struggle with gut problems and unfortunately a lot of GI providers don't know about or don't believe in SIBO so I've found I do a lot of research and then discuss it with my providers. It's exhausting and frustrating. Good luck on your journey!

Jump to this post

@sm80 tried that diet to see if it would help…it didn’t for me then, but I was developing CRC, so docs guided me on other diets along the way.

REPLY
Please sign in or register to post a reply.