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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@californiazebra thank you so much ❤️
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1 Reaction@californiazebra just got all tubes out now and I've got out of bed and went for a walk around the ward
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2 Reactions@jessie1990 I am so happy for you. Please keep getting as much sleep and rest as you can. Your body needs it.
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2 Reactions@tomrennie yes I am resting but the pain oh my lord 😫 they had to take two lobes over where tumor was sitting
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2 Reactions@jessie1990 Jess, I'm so sorry. Somehow I missed your message. That must have been scary. The whole operation I sure has been frightening. I am SO glad you are over, hopefully the worst of it all. When is the chest tube coming out? How is your pain level? 💕
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2 Reactions@nannybb all tubes are out since yesterday 😊 I even had a walk around the corridor not really steady on my feet yet my pain level was really bad last night isn't to bad as of now how are you 🥰
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3 Reactions@jessie1990 I'm so glad to hear you are up and around. That's good news! I talked to the pain specialist Sunday nite on a video call. (Weird, I know) I really liked her. She is trying to get me scheduled to do an ultrasound guided pain shor between my ribs. She has to find out where exactly the nerves are that are giving me trouble. I'm not looking forward to it, but I've got to get rid of this pain and back to work. I'm so happy you are doing well. Keep me posted as you can. 💕
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3 Reactions@nannybb they also had to separate my ribs to I was in so much pain yesterday because they removed epidural pump so the pain was so bad I'm really happy you are getting sorted to I also can't thank you enough for supporting me threw this 🥰 you are so kind thank you ❤️
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2 ReactionsThis is my battle wound ladies and gents 😭
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1 Reaction@jessie1990 Oh my goodness Jess. So they went through your back? Did they use a robot? What are you getting for pain now? I'm assuming they put staples on the inside too (?) It's the separation of the ribs that the 2nd doctor feels is giving me the pain I've had all these months. It messed up some nerves. Have you gotten much of a report from your doctors (like how many lymph nodes they removed?) I have 5 incision scars, and they used glue. Yours looks so much worse. I'm sorry. At least this phase is over. How is your anxiety? Thinking about you...💕🙏
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