Bipolar adult son refuses any mental health treatment - help

Posted by mercerspring @mercerspring, 5 days ago

My bipolar adult son called homeless across the country after two weeks of disappearing. He has gone thru Genrose twice but refused all follow up medication and therapy both times. It has been three years since he last gave away all his possessions and called me scared and homeless. He is 35 and a beautiful kind soul. Just nine years ago he was independent and happy. When my husband passed away he started struggling. When I brought him home this time I explained it was not to sit in my home but rather to come up with a plan to bring him to independence. It has been a week since his return , he shows paranoia, he becomes agitated if one has a different viewpoint, etc… he has not shown signs of harm to himself or others - but believes he is destined to do missionary work ( on his own terms). He helps around the house and is mostly pleasant - but it does involve me walking on eggshells. Saying something that disagrees with his viewpoint brings endless lecturing and agitation - then he eventually goes to his room. He’s quick to say he’s not crazy if I don’t agree with what he sees as his destiny. I have another adult son who lives at home and is prospering but says he will move out if his mentally ill brother stays here and refuses any treatment- his other siblings agree. They do not want to see me repeat the last three years of emotional and financial help for him while he continues to refuse any treatment. I have talked to NAMI and the SE Mn crisis team. I told my son today that he must at least show me all is fine by allowing me to get him a mental health assessment and that no one was looking to force him into anything beyond that meeting (it could help him and it would also provide me a paper trail for helping him in the future if things were out of hand ). He outright refuses and says he will leave the house if I demand this. He says that all the help he provides around the house should show me he is doing well and moving forwards. I believe he feels that he is earning his keep. Talks of doing some volunteer work in town. Im not looking for help in my home and he should volunteer once he is on his own two feet. I believe that his staying at my home is only providing a bandaide to a serious mental health issue. He continually tells me that he is the tip of the sword to help people and feels called to be of help in my hometown. A life as a hometown missionary while living off my good graces. I try to help him see that helping himself is the way towards helping others. It falls on deaf ears. Is it an acceptable or prudent reaction for me to tell him that he will indeed need to leave ( he has nothing but one change of clothes as he gave everything away - it was his calling ) or do I need to wait for him to find his way. He is not dangerous which makes it all feel less clear to me. Does telling him to leave if he refuses all mental help a curse or an eventual blessing ? I can not imagine repeating the path of what I did last time he was homeless where I just allowed him to live in my house while I hoped he would eventually get independent. It is building a wedge between me and my other children. He lived “on his own” ( on my support and blowing thru his inheritance ) in Arizona for a year before disappearing last month. But has not had to stand on his own two feet since my husband died. I believe it’s time. I am strong enough to follow thru. My question is - am I doing him more harm than good ?

Interested in more discussions like this? Go to the Mental Health Support Group.

Profile picture for bewildered @bewildered

@frouke how did you manage life with him having this illness? Is your husband still with you? I find it so hard dealing with our 32 yr old son with bipolar 1. He takes his medication and does therapy but still is not the person he used to be, and sometimes has relapses when the drugs stop working and has to try something else. It’s horrible. I don’t see things getting better, only worse.

Jump to this post

@bewildered
I am so sorry to see your struggle. I know different medicines snd therapies can be tried when one thing does not work ( or stops working ) - but it all takes so much time and trial and error. Regarding personality - My son is himself at times, and someone else at other times. I love him through it all - but it is challenging at times. I am thankful your son is accepting help. That is amazing. Because from that point on at least there is a chance. I am handling this on my own - my husband passed away 9 years ago. If my son chooses to at least acknowledge there is a problem and would be open for help - we would be on the same team to helping him to a full life. Since he refused this he has decided to walk away. NAMI and the crisis center - as well as autobiographies of those who have survived it, and research - has helped me feel grounded …. Information helps me feel settled by knowing that I’m not living this struggle alone . Again, thank you for your reply. And let us hope all will get better. That is my wish for you.

REPLY
Profile picture for bewildered @bewildered

@frouke how did you manage life with him having this illness? Is your husband still with you? I find it so hard dealing with our 32 yr old son with bipolar 1. He takes his medication and does therapy but still is not the person he used to be, and sometimes has relapses when the drugs stop working and has to try something else. It’s horrible. I don’t see things getting better, only worse.

Jump to this post

@bewildered , I stayed with him for several years but getting the care he needed was difficult, in Canada where I live they were closing many hospitals and the patients were abandoned or they chose to live on the streets. He was from the UK and the care for mentally disabled people there was amazing by comparison and he had lots of family there to support him, eventually he went back home and was well looked after, they didn’t give him pills, instead he was given injections twice a month along with therapy. We stayed in touch for years until he died 8 years ago. It’s much harder to get help in my country because our medical system is very different from the US, there’s more to offer and lots of doctors to choose from, truly enviable. I do have to say that sadly you never get back the person that they were before the illness, the most you can hope for is that they take their medication and try to get involved with therapy, I realize that it’s not very easy for you because he’s your child and you always feel responsible for him, a mother’s bond is very strong, I truly hope that you will find peace with him given time, amen.

REPLY
Profile picture for mercerspring @mercerspring

@bewildered
Thank you for your reply. Let me clarify what happened in my home …. My son had a major episode that required treatment three years ago but refused all medication and counseling since leaving Genrose. I have supported him - emotionally and financially since. Invested in his living as full of a life as possible. Enrolled him in study programs, provided housing. Even had him in my home for 7 of the last nine years - which is when my husband passed away . Despite my encouragement and love, mental illness returned and will continue to do so - until I can convince him to be open to getting well. At least giving mental illness treatment a three month chance. I promised my other four children that if he ended up giving everything he owns and ending up homeless again - which he has - that I would warmly welcome him in , but would expect him to pursue mental health help ( therapy or medication or a combination of both ). He has flatly refused. I did not force him onto the streets , I simply stated that for him to be in my home that seeking mental health treatment for at least three months was expected. He chose to walk. Breaks my heart. My son is not his mental illness. It is not his fault. He is so amazing. But bringing his disorder into our home when he completely refuses to help himself is doing none of us a service. I am always here for him. Always. He knows that. My parting words of how much I love him. Regarding the information you shared regarding your home … I am so proud of how you have fought for your son. Medically, emotionally and financially. That’s beautiful. It appears your son is open to help - in all three areas, whereas my son would not do anything to help his mental health. I think what you are providing is exactly what I would be honored to offer my son - but addressing his mental health must be a part of it. Until he accepts that, I can not help. But know…. I even have a signed taped to my front door welcoming him home ( should he come by) and that we love him and are here to help him help himself. I wish you continued strength. Your dedication to your son is beautiful.

Jump to this post

@mercerspring thank you for your kind words and sharing. You have given a lot and been through so much already. You’re right, it’s much easier when they will agree to treatmemt and one gets periods of calmness. Once he gets back to being stable after this last episode, I am praying for a calm period. I am adding you to my prayers that your son seeks treatment for his sake as well as yours and your family. It is so hard to be in that position. Please keep writing and stay in touch, I have found this portal so helpful, at the least to see that we are not alone. We never tell anyone and live with this in secret, it’s so hard. Prayers

REPLY
Profile picture for bewildered @bewildered

@mercerspring thank you for your kind words and sharing. You have given a lot and been through so much already. You’re right, it’s much easier when they will agree to treatmemt and one gets periods of calmness. Once he gets back to being stable after this last episode, I am praying for a calm period. I am adding you to my prayers that your son seeks treatment for his sake as well as yours and your family. It is so hard to be in that position. Please keep writing and stay in touch, I have found this portal so helpful, at the least to see that we are not alone. We never tell anyone and live with this in secret, it’s so hard. Prayers

Jump to this post

@bewildered , I know that you want the best for your son and it breaks my heart to hear how much you’ve been through, I truly feel that mental illness is one of the cruelest disease that can happen in our lives, I used to watch my husband look so lost and frustrated and I felt like my best friend is gone, it was almost like a death had occurred but he was still around physically, the reason why I say that it’s one of the worst diseases because you lose your loved one so quickly and you can’t even discuss the simplest things with them.

REPLY
Profile picture for frouke @frouke

@bewildered , I know that you want the best for your son and it breaks my heart to hear how much you’ve been through, I truly feel that mental illness is one of the cruelest disease that can happen in our lives, I used to watch my husband look so lost and frustrated and I felt like my best friend is gone, it was almost like a death had occurred but he was still around physically, the reason why I say that it’s one of the worst diseases because you lose your loved one so quickly and you can’t even discuss the simplest things with them.

Jump to this post

@frouke
So true. Thank you for reaching out. It is appreciated.

REPLY
Profile picture for suzleigh @suzleigh

You obviously are in a unique situation that most readers here don’t know how to respond. My (now 37yo) son grew up with the extreme end of ADHD — I know nothing like bi-polar, but bear with me.

I think our kids, especially men, are (for lack of better words) offended by the fact that there is something wrong with them. The ego is such that we must take care to not knock them off that delicate balance of mental health concerns and insecurities.

Explaining to your son that his mental health concerns are not his fault, but are within his power to live a greater life, could be a start. Even taking on the blame (your bi-polar is likely genetic) to lift the self-blame off of him. Maybe even having a discussion with a genetics counselor to demonstrate to him that this is something that isn’t his fault, but he has all the power to improve his outcome.

Hope this helps.

Jump to this post

@suzleigh I so appreciate your wise input! My Grandson, who is 25, has a bad case of ADD, and won’t take his medicine! He’s alienated his parents, and most everybody
else, in the family, with his attitude! I took him in, over a year ago, because he had no where else to go! His only friends were those that he played games with, on the internet! He trusted no one, and was very bitter! I had to have a lot of patience with his attitude, many times, but my patience paid off! He came to me, being on the computer, playing games 24/7! It’s been over a year now, where I always showed him, that I loved, and cared for him! I was supportive and gave him some time, so that he could sort out his bitter feelings! Finally, he started coming to his senses, a couple months ago! He has a job, and a girlfriend now, so I see hope of recovery! Patience is a virtue!

REPLY
Profile picture for mercerspring @mercerspring

@bewildered
Thank you for your reply. Let me clarify what happened in my home …. My son had a major episode that required treatment three years ago but refused all medication and counseling since leaving Genrose. I have supported him - emotionally and financially since. Invested in his living as full of a life as possible. Enrolled him in study programs, provided housing. Even had him in my home for 7 of the last nine years - which is when my husband passed away . Despite my encouragement and love, mental illness returned and will continue to do so - until I can convince him to be open to getting well. At least giving mental illness treatment a three month chance. I promised my other four children that if he ended up giving everything he owns and ending up homeless again - which he has - that I would warmly welcome him in , but would expect him to pursue mental health help ( therapy or medication or a combination of both ). He has flatly refused. I did not force him onto the streets , I simply stated that for him to be in my home that seeking mental health treatment for at least three months was expected. He chose to walk. Breaks my heart. My son is not his mental illness. It is not his fault. He is so amazing. But bringing his disorder into our home when he completely refuses to help himself is doing none of us a service. I am always here for him. Always. He knows that. My parting words of how much I love him. Regarding the information you shared regarding your home … I am so proud of how you have fought for your son. Medically, emotionally and financially. That’s beautiful. It appears your son is open to help - in all three areas, whereas my son would not do anything to help his mental health. I think what you are providing is exactly what I would be honored to offer my son - but addressing his mental health must be a part of it. Until he accepts that, I can not help. But know…. I even have a signed taped to my front door welcoming him home ( should he come by) and that we love him and are here to help him help himself. I wish you continued strength. Your dedication to your son is beautiful.

Jump to this post

@mercerspring thank you for sharing more of your story, I had missed your last post about your son moving out already when I first replied. I am so sorry. It is obvious that you love him and have done everything you can for him. It is so hard living with this cloud of mental illness, even when they are not living with us, it’s a constant worry. Even when the medication is working, my son is still not the same person he was 10 years ago. It is like there has been a lot of damage to him physically, emotionally, socially. He doesn’t take good care of himself anymore. He struggles now with relationships with others and has problems with money, spending all he has at times. Many times he refuses to listen to reason and it made life here at home very combative. He has lived on and off with our other two children and that was very hard on them. He is the oldest but they always felt like they had to take care of him, and was always difficult to live with. It’s weird because he was always so nice, smart and athletic, and conscientious growing up. An honor student. It’s heartbreaking to have seen the changes. Life is already so hard. I am sorry that you are dealing with this alone since your husband passed, that must be so hard on you. You are incredibly strong, and I really admire you for doing all that you have. I don’t think I could do it. I have even asked my husband please not to go first because I couldn’t do this without him. And I don’t blame parents that have had to let their adult kids with mental illness go, and become homeless because it is unbearable, and often they reach a point that there is nothing anyone can do. I pray every day now. For a long time I didn’t pray, as I was angry about the unfairness of all this. But praying now gives me an inkling of hope that things will get better. And that’s all we have. I pray that your son seeks treatment and comes home to be near you. I pray that you and I and others on this forum that are struggling and dealing with mental illness can find some peace.

REPLY
Profile picture for foundryrat743 @foundryrat743

@suzleigh I so appreciate your wise input! My Grandson, who is 25, has a bad case of ADD, and won’t take his medicine! He’s alienated his parents, and most everybody
else, in the family, with his attitude! I took him in, over a year ago, because he had no where else to go! His only friends were those that he played games with, on the internet! He trusted no one, and was very bitter! I had to have a lot of patience with his attitude, many times, but my patience paid off! He came to me, being on the computer, playing games 24/7! It’s been over a year now, where I always showed him, that I loved, and cared for him! I was supportive and gave him some time, so that he could sort out his bitter feelings! Finally, he started coming to his senses, a couple months ago! He has a job, and a girlfriend now, so I see hope of recovery! Patience is a virtue!

Jump to this post

@foundryrat743 Thanks very much for your note. My son had me for consistency and love in his life — something ADHD kids require. He did go off his meds for awhile and admits he didn’t do well his first years of college. But! He enlisted in the Army Guard as an E1 and promoted to E6, went on to get his Masters, got commissioned, and is now an Army Captain (Promotable)!!

Your love and patience will continue to gain great results. Take Care.

REPLY
Profile picture for suzleigh @suzleigh

@foundryrat743 Thanks very much for your note. My son had me for consistency and love in his life — something ADHD kids require. He did go off his meds for awhile and admits he didn’t do well his first years of college. But! He enlisted in the Army Guard as an E1 and promoted to E6, went on to get his Masters, got commissioned, and is now an Army Captain (Promotable)!!

Your love and patience will continue to gain great results. Take Care.

Jump to this post

@suzleigh
That is beautiful. Thank you for sharing. A hopeful outcome. My son returned late last night to get out of the cold - after having a Good Samaritan provide a hotel room the previous night. He then proceeded telling me for over an hour about how he knew exactly what his direction was. To let him be a man and take care of his own future. I quietly listened to avoid him storming off into the cold. This morning - after we were both well rested ( well, I was actually up half the night researching how to handle things ) I told him this morning that I love him and I am here for him and reiterated that to stay in my home he needed to accept professional help he deserves - so - as anticipated - he stormed off in search of good samaritans, but this time he left his bag. If he can’t find his good Samaritans I suspect he will come again to tell me how wrong I am (he parted throwing to me ugly words - but it is not my son, it was the mental illness ) and will no doubt count on me backing down as I did three years ago when I trusted him naively that boot strap strength was enough. I love him enough to remain strong for his best interest - true help, no more bandaides. There is hope for my son as well - he just needs to take my hand to be pulled out of the well - rather than trying to pull me in. As that serves no one.

REPLY
Profile picture for frouke @frouke

@bewildered , I stayed with him for several years but getting the care he needed was difficult, in Canada where I live they were closing many hospitals and the patients were abandoned or they chose to live on the streets. He was from the UK and the care for mentally disabled people there was amazing by comparison and he had lots of family there to support him, eventually he went back home and was well looked after, they didn’t give him pills, instead he was given injections twice a month along with therapy. We stayed in touch for years until he died 8 years ago. It’s much harder to get help in my country because our medical system is very different from the US, there’s more to offer and lots of doctors to choose from, truly enviable. I do have to say that sadly you never get back the person that they were before the illness, the most you can hope for is that they take their medication and try to get involved with therapy, I realize that it’s not very easy for you because he’s your child and you always feel responsible for him, a mother’s bond is very strong, I truly hope that you will find peace with him given time, amen.

Jump to this post

@frouke I am sorry for your loss but happy you were able to stay in touch with him. I have heard great things about health care in the UK and that they take care of their people. Here in US it is only getting worse. Our son racked up tens of thousands of dollars in medical bills before we were finally able to get him Medicaid. And not in Wyoming as can only have it if you have an extremely low paying job or are pregnant. Makes zero sense to me. And his disorder is really hard on our marriage and family to try and live normally let alone be happy. After talking to my son today and he was so manic that I am doubtful he can recover this time. I am praying that happiness finally comes in our next life. Anyway, I hope you have found some peace now that your husband’s soul is at rest. Thank you for sharing, and thank you for caring. This site has been therapy for me. I do really need to get some treatment myself or even reach out to NAMI as well. Thank you

REPLY
Please sign in or register to post a reply.