Bipolar adult son refuses any mental health treatment - help

Posted by mercerspring @mercerspring, 5 days ago

My bipolar adult son called homeless across the country after two weeks of disappearing. He has gone thru Genrose twice but refused all follow up medication and therapy both times. It has been three years since he last gave away all his possessions and called me scared and homeless. He is 35 and a beautiful kind soul. Just nine years ago he was independent and happy. When my husband passed away he started struggling. When I brought him home this time I explained it was not to sit in my home but rather to come up with a plan to bring him to independence. It has been a week since his return , he shows paranoia, he becomes agitated if one has a different viewpoint, etc… he has not shown signs of harm to himself or others - but believes he is destined to do missionary work ( on his own terms). He helps around the house and is mostly pleasant - but it does involve me walking on eggshells. Saying something that disagrees with his viewpoint brings endless lecturing and agitation - then he eventually goes to his room. He’s quick to say he’s not crazy if I don’t agree with what he sees as his destiny. I have another adult son who lives at home and is prospering but says he will move out if his mentally ill brother stays here and refuses any treatment- his other siblings agree. They do not want to see me repeat the last three years of emotional and financial help for him while he continues to refuse any treatment. I have talked to NAMI and the SE Mn crisis team. I told my son today that he must at least show me all is fine by allowing me to get him a mental health assessment and that no one was looking to force him into anything beyond that meeting (it could help him and it would also provide me a paper trail for helping him in the future if things were out of hand ). He outright refuses and says he will leave the house if I demand this. He says that all the help he provides around the house should show me he is doing well and moving forwards. I believe he feels that he is earning his keep. Talks of doing some volunteer work in town. Im not looking for help in my home and he should volunteer once he is on his own two feet. I believe that his staying at my home is only providing a bandaide to a serious mental health issue. He continually tells me that he is the tip of the sword to help people and feels called to be of help in my hometown. A life as a hometown missionary while living off my good graces. I try to help him see that helping himself is the way towards helping others. It falls on deaf ears. Is it an acceptable or prudent reaction for me to tell him that he will indeed need to leave ( he has nothing but one change of clothes as he gave everything away - it was his calling ) or do I need to wait for him to find his way. He is not dangerous which makes it all feel less clear to me. Does telling him to leave if he refuses all mental help a curse or an eventual blessing ? I can not imagine repeating the path of what I did last time he was homeless where I just allowed him to live in my house while I hoped he would eventually get independent. It is building a wedge between me and my other children. He lived “on his own” ( on my support and blowing thru his inheritance ) in Arizona for a year before disappearing last month. But has not had to stand on his own two feet since my husband died. I believe it’s time. I am strong enough to follow thru. My question is - am I doing him more harm than good ?

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Profile picture for bewildered @bewildered

@mercerspring thank you for sharing more of your story, I had missed your last post about your son moving out already when I first replied. I am so sorry. It is obvious that you love him and have done everything you can for him. It is so hard living with this cloud of mental illness, even when they are not living with us, it’s a constant worry. Even when the medication is working, my son is still not the same person he was 10 years ago. It is like there has been a lot of damage to him physically, emotionally, socially. He doesn’t take good care of himself anymore. He struggles now with relationships with others and has problems with money, spending all he has at times. Many times he refuses to listen to reason and it made life here at home very combative. He has lived on and off with our other two children and that was very hard on them. He is the oldest but they always felt like they had to take care of him, and was always difficult to live with. It’s weird because he was always so nice, smart and athletic, and conscientious growing up. An honor student. It’s heartbreaking to have seen the changes. Life is already so hard. I am sorry that you are dealing with this alone since your husband passed, that must be so hard on you. You are incredibly strong, and I really admire you for doing all that you have. I don’t think I could do it. I have even asked my husband please not to go first because I couldn’t do this without him. And I don’t blame parents that have had to let their adult kids with mental illness go, and become homeless because it is unbearable, and often they reach a point that there is nothing anyone can do. I pray every day now. For a long time I didn’t pray, as I was angry about the unfairness of all this. But praying now gives me an inkling of hope that things will get better. And that’s all we have. I pray that your son seeks treatment and comes home to be near you. I pray that you and I and others on this forum that are struggling and dealing with mental illness can find some peace.

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@bewildered
Such a beautiful outreach of caring for me and my son. I thank you. I am trying to push hard this time as the younger he seeks help it often proves to be more successful. No guarantees of anything to be sure. But always hope , always prayer. I am trying to be strong with all I have not just for my son, not just for me, not just for my other four children - for our family. That we may come together in strength. Two of my other children also are bipolar - but with medication and therapy they are thriving. What I am going through now is nothing like what I experienced with them. They let me pull them out of the well with my helping hand with gratitude whereas this son pulls with all his might to bring me into his well. Constantly needing saving - but never has a problem. (just ask him). He was hard on me as he took off this morning - once I said my expectations haven’t changed ( before that he wanted to go out for breakfast - expecting that I would “ come to my senses” ) - but I stayed strong ( perhaps even surprising myself ) … but I felt the strength of my family behind me and the strength of the amazing people on this Mayo site as well as the crisis team and NAMI. I have also sought much counseling since his last episode to simply be able to handle it as best as I can. Prepare for the worst - expect the best. Without my husband it is so much more difficult. I also have two siblings severely bipolar (although they didn’t show sever signs before I had children) and my other brother who recent passed dealt with profound autism. My parents had me at nearly 50 years of age - so I do not have that support network as well. But I do have a beautiful and caring sister - though she lives far (& has stage four cancer ) , and some dear friends- sprinkled around the United States . But the boots on the ground are solely in my hands ( or would that be my feet - boots and all ). I try to stay positive and go about my day. Although today is like a waiting game - knowing fireworks are lurking just outside my door. And when I get firmer I am unsure as to whether he could get agitated to aggression ( it’s not his nature - but he is unstable ). Keep me in your prayers. It’s going to be a rough afternoon/evening …. Depending on when he shows up.

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Profile picture for bewildered @bewildered

@frouke I am sorry for your loss but happy you were able to stay in touch with him. I have heard great things about health care in the UK and that they take care of their people. Here in US it is only getting worse. Our son racked up tens of thousands of dollars in medical bills before we were finally able to get him Medicaid. And not in Wyoming as can only have it if you have an extremely low paying job or are pregnant. Makes zero sense to me. And his disorder is really hard on our marriage and family to try and live normally let alone be happy. After talking to my son today and he was so manic that I am doubtful he can recover this time. I am praying that happiness finally comes in our next life. Anyway, I hope you have found some peace now that your husband’s soul is at rest. Thank you for sharing, and thank you for caring. This site has been therapy for me. I do really need to get some treatment myself or even reach out to NAMI as well. Thank you

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@bewildered
Please reach out for help - you deserve it. 💙

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Profile picture for mercerspring @mercerspring

@bewildered
Such a beautiful outreach of caring for me and my son. I thank you. I am trying to push hard this time as the younger he seeks help it often proves to be more successful. No guarantees of anything to be sure. But always hope , always prayer. I am trying to be strong with all I have not just for my son, not just for me, not just for my other four children - for our family. That we may come together in strength. Two of my other children also are bipolar - but with medication and therapy they are thriving. What I am going through now is nothing like what I experienced with them. They let me pull them out of the well with my helping hand with gratitude whereas this son pulls with all his might to bring me into his well. Constantly needing saving - but never has a problem. (just ask him). He was hard on me as he took off this morning - once I said my expectations haven’t changed ( before that he wanted to go out for breakfast - expecting that I would “ come to my senses” ) - but I stayed strong ( perhaps even surprising myself ) … but I felt the strength of my family behind me and the strength of the amazing people on this Mayo site as well as the crisis team and NAMI. I have also sought much counseling since his last episode to simply be able to handle it as best as I can. Prepare for the worst - expect the best. Without my husband it is so much more difficult. I also have two siblings severely bipolar (although they didn’t show sever signs before I had children) and my other brother who recent passed dealt with profound autism. My parents had me at nearly 50 years of age - so I do not have that support network as well. But I do have a beautiful and caring sister - though she lives far (& has stage four cancer ) , and some dear friends- sprinkled around the United States . But the boots on the ground are solely in my hands ( or would that be my feet - boots and all ). I try to stay positive and go about my day. Although today is like a waiting game - knowing fireworks are lurking just outside my door. And when I get firmer I am unsure as to whether he could get agitated to aggression ( it’s not his nature - but he is unstable ). Keep me in your prayers. It’s going to be a rough afternoon/evening …. Depending on when he shows up.

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@mercerspring I’m happy that your other kids are thriving even with this bipolar. Maybe it is possible. What medications do they take? Our son has tried so many so am losing hope. Right now ( in hospital still) he is on Invega, Hadol ( both anti-psychotic monthly shots) lithium, and depakote for mood stabilizers. It’s a lot. Seemed better last couple days but was in an awful manic, accusatory state this morning on phone. Beside myself again. My husband got upset and left. Just wondering what medications your others are doing

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Profile picture for bewildered @bewildered

@mercerspring I’m happy that your other kids are thriving even with this bipolar. Maybe it is possible. What medications do they take? Our son has tried so many so am losing hope. Right now ( in hospital still) he is on Invega, Hadol ( both anti-psychotic monthly shots) lithium, and depakote for mood stabilizers. It’s a lot. Seemed better last couple days but was in an awful manic, accusatory state this morning on phone. Beside myself again. My husband got upset and left. Just wondering what medications your others are doing

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@bewildered
They both used lithium I still stabilized and then sought out counseling. They return to lithium as a counselor recommends. My brother is on a huge list like your son and he too has trouble finding stabilization. It’s so hard to watch. Sending blessings.

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Profile picture for mercerspring @mercerspring

@bewildered
Thank you for your reply. Let me clarify what happened in my home …. My son had a major episode that required treatment three years ago but refused all medication and counseling since leaving Genrose. I have supported him - emotionally and financially since. Invested in his living as full of a life as possible. Enrolled him in study programs, provided housing. Even had him in my home for 7 of the last nine years - which is when my husband passed away . Despite my encouragement and love, mental illness returned and will continue to do so - until I can convince him to be open to getting well. At least giving mental illness treatment a three month chance. I promised my other four children that if he ended up giving everything he owns and ending up homeless again - which he has - that I would warmly welcome him in , but would expect him to pursue mental health help ( therapy or medication or a combination of both ). He has flatly refused. I did not force him onto the streets , I simply stated that for him to be in my home that seeking mental health treatment for at least three months was expected. He chose to walk. Breaks my heart. My son is not his mental illness. It is not his fault. He is so amazing. But bringing his disorder into our home when he completely refuses to help himself is doing none of us a service. I am always here for him. Always. He knows that. My parting words of how much I love him. Regarding the information you shared regarding your home … I am so proud of how you have fought for your son. Medically, emotionally and financially. That’s beautiful. It appears your son is open to help - in all three areas, whereas my son would not do anything to help his mental health. I think what you are providing is exactly what I would be honored to offer my son - but addressing his mental health must be a part of it. Until he accepts that, I can not help. But know…. I even have a signed taped to my front door welcoming him home ( should he come by) and that we love him and are here to help him help himself. I wish you continued strength. Your dedication to your son is beautiful.

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@mercerspring You are doing the right thing - don’t give upon your tough love!

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Profile picture for rashida @rashida

@mercerspring You are doing the right thing - don’t give upon your tough love!

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@rashida
Thank you for the support - he feels like I pushed him out … in actuality it’s the hardest thing I’ve ever done. As keeping him at home would be easy for me ( he is lovely and helpful - despite being in need of mental health help ) - but it would all be for me. To know he’s safe. To share his company. None of it would be about what he needs and deserves the most - help. True mental health help ( however that would look ) so he can live a more peaceful and productive and stable life. It’s what he deserves.

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Profile picture for mercerspring @mercerspring

@rashida
Thank you for the support - he feels like I pushed him out … in actuality it’s the hardest thing I’ve ever done. As keeping him at home would be easy for me ( he is lovely and helpful - despite being in need of mental health help ) - but it would all be for me. To know he’s safe. To share his company. None of it would be about what he needs and deserves the most - help. True mental health help ( however that would look ) so he can live a more peaceful and productive and stable life. It’s what he deserves.

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@mercerspring I hear you!

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Profile picture for rashida @rashida

@rashida
Well / he walked. Refused mental health evaluation to stay here. Refused a bus ticket to a warmer climate. Refused a drive to the homeless shelter 50 miles away. No doubt shocked that I still insisted in him getting help. But I will be okay - broken hearted for my son- but okay, because I know I am fighting for his future to be all that he deserves.

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@mercerspring someone recently sent me this while I am going through some difficulty with two of my three “children” (in their early forties) and it resonated with me. Of course, my problems with my kids are nowhere near as challenging as yours. My heart goes out to you and all mothers dealing with any mental health challenges.
https://m.youtube.com/watch

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Profile picture for rashida @rashida

@mercerspring someone recently sent me this while I am going through some difficulty with two of my three “children” (in their early forties) and it resonated with me. Of course, my problems with my kids are nowhere near as challenging as yours. My heart goes out to you and all mothers dealing with any mental health challenges.
https://m.youtube.com/watch

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@rashida
I just watched it - thank you so much for sharing. Perfect video at the perfect time. 💙

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