Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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@nannybb thank you so much 💓

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@jessie1990 @nannybb
I shared this in another thread. I thought that I'd share it here as well:
Just some thoughts that have helped me. You can't change what has or hasn't been done. That can consume you with unhealthy thoughts. I know. I have been there. I try to just move forward. Harder said than done, but I found it has helped me physically, mentally and emotionally. It also allows me to be more objective with my current health challenges, find the best care team to help me with those challenges, and move forward with the best treatment possible. Make any sense?

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Makes all the sense in the world. That really is most of the reason I sought out a second opinion. I'm tired of just waiting for things to not be defined so I can move forward. I'm usually not a "wait and see" kinda person. Thanks for your insights❣️

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 @nannybb
I shared this in another thread. I thought that I'd share it here as well:
Just some thoughts that have helped me. You can't change what has or hasn't been done. That can consume you with unhealthy thoughts. I know. I have been there. I try to just move forward. Harder said than done, but I found it has helped me physically, mentally and emotionally. It also allows me to be more objective with my current health challenges, find the best care team to help me with those challenges, and move forward with the best treatment possible. Make any sense?

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@tomrennie yes totally agree this waiting on surgery is driving me nuts cause I'm afraid incase it changes while I wait my brain is on overdrive 24/7 thinking the worst all the time

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Profile picture for jessie1990 @jessie1990

@tomrennie yes totally agree this waiting on surgery is driving me nuts cause I'm afraid incase it changes while I wait my brain is on overdrive 24/7 thinking the worst all the time

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@jessie1990 Somehow, you have to choose to not do that. I wish that I had a magic pill to give you to help. I, and many others on here, would love to take it to. Unfortunately, it doesn't exist. All you can do is try your best and try to make your best a little better each day. Don't be too hard on yourself. Baby steps. Ok?

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Profile picture for Turkey, Volunteer Mentor @tomrennie

@jessie1990 Somehow, you have to choose to not do that. I wish that I had a magic pill to give you to help. I, and many others on here, would love to take it to. Unfortunately, it doesn't exist. All you can do is try your best and try to make your best a little better each day. Don't be too hard on yourself. Baby steps. Ok?

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@tomrennie thank you so much 🥰

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Profile picture for jessie1990 @jessie1990

@tomrennie yes totally agree this waiting on surgery is driving me nuts cause I'm afraid incase it changes while I wait my brain is on overdrive 24/7 thinking the worst all the time

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@jessie1990 One other thought, (and you may already know all of this), but I am using breathing techniques and some meditation in an effort to decrease stress which can produce the primary stress hormone cortisol. This hormone, in turn increases glucose. Sugar has been shown to increase the growth of some cancers. I know decreasing or trying to lower your stress level is very difficult with all you have already been through. It is, I am sure, the unknown of what might happen in your future. I also pray. Do I still get anxious? Yes. But I have more moments of relief doing these "extras". I hope you can have some relief soon from YOUR anxiety. 💕

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He has a podcast. I looked him up under his name. The people he has on are excellent.

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https://youtube.com/@campbellteaching Let me know if this is correct. He is an English doctor and I believe he was a professor.

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Heck. I think I just posted about dementia to the wrong person. I can't find my post to delete it. I hate when this happens.

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Profile picture for nannybb @nannybb

@jessie1990 One other thought, (and you may already know all of this), but I am using breathing techniques and some meditation in an effort to decrease stress which can produce the primary stress hormone cortisol. This hormone, in turn increases glucose. Sugar has been shown to increase the growth of some cancers. I know decreasing or trying to lower your stress level is very difficult with all you have already been through. It is, I am sure, the unknown of what might happen in your future. I also pray. Do I still get anxious? Yes. But I have more moments of relief doing these "extras". I hope you can have some relief soon from YOUR anxiety. 💕

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@nannybb yes I listen to YouTube deep body relaxation breathing techniques sleep hypnosis I've been suffering with anxiety last 5 years way worse now tho past few months I've generalised anxiety social anxiety and health anxiety disorders so battling 3 of them every day isn't easy 🥹 thank you so much 🥰

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