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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@jessie1990 Took half of it as in, it was part of a biopsy? I know when they did my biopsy, the doctor found out later that the tumor had shrunk. I wanted to know if it got smaller because he took part of it for the biopsy, or it got smaller on its own. The fact we don't get answers to these things is frustrating in and of itself. The doctor treats it like it is nothing. Which goes back to my gigantic post on being seen.
@nannybb no they took half of tumor by going down my throat because my pulmonary doctor said he could take it that way but when he went in it was actually stuck to my tube wall so he couldn't get it all so only got half I need to have proper surgery now to remove the rest think he removed like 40% of it but that was sent to lab that along with 2 biopsys by him and another hospital came back a benign carcinoid
@jessie1990 Ok, I get it now. I went back and read some of your previous posts and was confused. Now I really understand why you are anxious. I am so sorry it was not a success the first time. Where is your pain coming from? The first procedure site, or from having pneumonia? So many different modalities all at once it seems. A domino effect?
@nannybb I honestly have no idea what is causing my pain it's lower lung mainly feels like it's burning also I've said it to my pulmonary specialist he said my chest wall seems to inflamed so I don't no what is going on I've had pneumonia back in July I've also had a partual callapse and an abcess in that same lung also
@jessie1990 Have all the other issues resolved? (other than the rest of the tumor) Surely they won't operate on you if you have any of these other modalities. Pneumonia can be huge and so for an abscess. Were all of this things present at the same time? I'm still not clear on that.
@nannybb yes pneumonia is gone not sure about abcess but my lung specialist put me on a week of antibiotics yes they sure were all at the same time I was in hospital with pneumonia they told me the end of my lung was callapsed then they found the carcinoid then I went for my surgery and when he was removing the half of the tumor he found the abcess to
@jessie1990 Jessie, how sick you must have been!! I'm so sorry. I can't even imagine all of that at once. Have they set an actual date for your next surgery? Do you have a good family/ friends system that can be there for you? I sure hope so. 🙏
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2 Reactions@nannybb to be honest I actually didn't feel sick I feel more sick now waiting on surgery then I did before all this happend nope no date yet said the middle of Dec but said they can't garrantee me it will happen then so I just have to wait till they ring...yes I have my hubby my mam my dad my brother sister in law my kiddies aunts cousins my hubby's friend was killed here on Saturday night so just getting ready to go to his funeral 🥹
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1 Reaction@jessie1990 Oh Jessie...that is horrible. Praying for you and your family.
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2 Reactions@nannybb thank you so much 💓
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