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Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30, 2025

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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jessie1990 | @jessie1990 | Nov 17, 2025
In reply to @tomrennie "@jessie1990 Downdrafts from thunderstorms. It isn't uncommon for our summer temperatures to hit 115 Fahrenheit or..." + (show)
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@jessie1990 Downdrafts from thunderstorms. It isn't uncommon for our summer temperatures to hit 115 Fahrenheit or more. The intense heat can cause powerful thunderstorms.

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@tomrennie -3 here tonight big frost on the way 🥶

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jessie1990 | @jessie1990 | Nov 17, 2025
In reply to @ggiinnaa "@jessie1990 I was diagnosed with a mass in my lung in early January a couple of..." + (show)
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@jessie1990
I was diagnosed with a mass in my lung in early January a couple of years ago. I was sent to a local pulmonary doctor and called every week for an appointment. I was told that I was next on the list. After 3 months I was finally told he was retiring. I was then sent to a pulmonary doctor in another town. In June I saw him and had a bunch of tests completed. All came back negative for cancer but…., he did not believe the tests results. He sent me to a cancer doctor where she decided to do all of the testing and more over again. Only 1 biopsy came back positive for cancer. Finally in August I had both the top and bottom right lobes removed. I had both Adenocarcinoma cancer and carcinoid cancer different cancers in the different lobes. Thank goodness the carcinoid tumors grow slowly. Waiting is a big part of this game!!! I still have more tiny carcinoids. I do not know what comes next but I doubt if they can take out any more lung tissue
Good luck during the long waits. Keep busy
My question is…. Can a carcinoid tumor turn into an Adenocarcinoma tumor????

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@ggiinnaa was your carcinoid typical or atypical

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Turkey, Volunteer Mentor | @tomrennie | Nov 18, 2025
In reply to @nannybb "@tomrennie Thank you so much My son has gotten involved. I'm now scheduled for an MRI..." + (show)
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@tomrennie Thank you so much My son has gotten involved. I'm now scheduled for an MRI on Tuesday. Maybe something will show why I'm on such pain.

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@nannybb Good luck today with the MRI.

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nannybb | @nannybb | Nov 18, 2025
In reply to @jessie1990 "@nannybb best of luck" + (show)
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@nannybb best of luck

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@jessie1990 Hey. Thank you! Because my son made the appt. I think I misunderstood. It was a CT. (without contrast ) which always confuses me . It makes me wonder exactly what they are looking for. I should get the results later today.
I have acupuncture at noon. Thanks again for thinking of me 💕

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jessie1990 | @jessie1990 | Nov 18, 2025
In reply to @nannybb "@jessie1990 Hey. Thank you! Because my son made the appt. I think I misunderstood. It was..." + (show)
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@jessie1990 Hey. Thank you! Because my son made the appt. I think I misunderstood. It was a CT. (without contrast ) which always confuses me . It makes me wonder exactly what they are looking for. I should get the results later today.
I have acupuncture at noon. Thanks again for thinking of me 💕

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@nannybb let me no how it goes 🥰🥰

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nannybb | @nannybb | Nov 18, 2025

The report just came through. The only thing I am seeing as a change, may be two more nodules. The test of the report looks unremarkable. Still leaves me wondering why I am in such pain. HELP 🙄

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jessie1990 | @jessie1990 | Nov 18, 2025
In reply to @nannybb "The report just came through. The only thing I am seeing as a change, may be..." + (show)
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The report just came through. The only thing I am seeing as a change, may be two more nodules. The test of the report looks unremarkable. Still leaves me wondering why I am in such pain. HELP 🙄

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@nannybb don't unremarkable mean good

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nannybb | @nannybb | Nov 18, 2025

Yes, that means basically no changes.
I just have to find out if the nodules they found this time, are the same they saw post-,op. 😊

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nannybb | @nannybb | Nov 18, 2025
In reply to @nannybb "The report just came through. The only thing I am seeing as a change, may be..." + (show)
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The report just came through. The only thing I am seeing as a change, may be two more nodules. The test of the report looks unremarkable. Still leaves me wondering why I am in such pain. HELP 🙄

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Thanks for the hugs!

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