Thank you so much for checking in and letting us know how you are doing. I certainly feel for you - this is a very hard situation for you to wait for an emergency and not be able to do anything to avert or delay it. I admire your courage and your determination "not to worry about it." This seems to be the most reasonable approach you can take right now.
Remember we are here for you whenever you need to talk. Best wishes to you for a good Christmas and a wonderful 2018!
I love that you continue to keep in touch with me.We don't know what to think. His function got to 6.7%. Next lab it was 17%. Dr didn't believe it..wanted him to redo it in a week...course he didn't. Next one is for 3 mo later. He had such low bp, that it is possible that stopping his high bp meds finally worked to help his kidneys. So, we are just in a holding pattern. Things seem about the same, as far as symptoms..sleepy and ended. I hope you had a good Easter! Angie
It was so good to hear from you again. My Easter was good. Went to church and spent time with family and friends. What about your Easter?
It sounds like as if your husband's "holding pattern" (as you call it) is a difficult one for you personally.
How are you personally doing with these challenges? Do you have enough support from family, friends, church etc? Are you able to get out and enjoy some time away from home?
It was so good to hear from you again. My Easter was good. Went to church and spent time with family and friends. What about your Easter?
It sounds like as if your husband's "holding pattern" (as you call it) is a difficult one for you personally.
How are you personally doing with these challenges? Do you have enough support from family, friends, church etc? Are you able to get out and enjoy some time away from home?
Hi @angiede2001
I certainly can relate to the "holding pattern" Yes, we want to see our loved ones get better each day but when that does not happen, we become discouraged. That is so normal for the caregiver to feel a moment of despair. I have experienced that feeling many times when I was taking care of my husband in the last years of his life; however, I also knew that it was one more day that I had him in my life to enjoy even though he was very sick and needed constant attention. If you can get away for several hours or have friends over to break the
tension, that would help. In my journey, I did have help three days a week which was a very big deal for me even if only 2 hours each time. I also put myself on the treadmill everyday for 20 minutes each day which helped with the stress. Please know you are not alone
in your quest for better health for your loved one. Several weeks ago, I lost the love of life and now realize the "holding pattern" was one more day with him. Take care!! ozys
It was so good to hear from you again. My Easter was good. Went to church and spent time with family and friends. What about your Easter?
It sounds like as if your husband's "holding pattern" (as you call it) is a difficult one for you personally.
How are you personally doing with these challenges? Do you have enough support from family, friends, church etc? Are you able to get out and enjoy some time away from home?
Sorry..didn't answer very quickly and then found out I had to redo my password. Phone isn't working well..so..frustration..avoidance. 🙂 I had a good Easter also. My kids came to church with us and then out to lunch. There were icy road conditions, so we all had to go home. Yes, this holding pattern is very hard. I tend to isolate some. I don't really know the answers to the questions people ask. We have always had some marital problems, so when I become angry, then I have to deal with guilt. His kidney functions was 17% 2 mo ago. The dr didn't believe it. The dr wanted him to redo it in a week, but of course, Jack didn't. Jack had it redone yesterday, and his level is 18%. Creatinine is down below 4 again (from 6.8). I think he feels better, so he has more energy and can enjoy upsetting me...how is that for honesty 🙁
It was so good to hear from you again. My Easter was good. Went to church and spent time with family and friends. What about your Easter?
It sounds like as if your husband's "holding pattern" (as you call it) is a difficult one for you personally.
How are you personally doing with these challenges? Do you have enough support from family, friends, church etc? Are you able to get out and enjoy some time away from home?
It was so good to hear from you again. My Easter was good. Went to church and spent time with family and friends. What about your Easter?
It sounds like as if your husband's "holding pattern" (as you call it) is a difficult one for you personally.
How are you personally doing with these challenges? Do you have enough support from family, friends, church etc? Are you able to get out and enjoy some time away from home?
It was so good to hear from you again. My Easter was good. Went to church and spent time with family and friends. What about your Easter?
It sounds like as if your husband's "holding pattern" (as you call it) is a difficult one for you personally.
How are you personally doing with these challenges? Do you have enough support from family, friends, church etc? Are you able to get out and enjoy some time away from home?
I wrote an answer, but it didn't go anywhere :). He is at 18% now, and creatinine is under 4. We have never gotten along well so as he begins to feel better, he seems to have the strength to enjoy upsetting me more. Jekyll and Hyde routine. I don't do really well with the challenges..tend to isolate, coz don't like to be judged for telling the story of how it really can be. I do have a friend or two that I share with. I am in a Bible study, Sunday School class and choir.. good church folks, but not too many I will really share with. Even my best friend..feel like she is avoiding some of the conversation I need to spill. She told me that she thought I would be handling this better, as a Christian. She is prob. trying to avoid making such a HUGE error again. It may help to spill to you. We need a lot of work done on the house, and I will have to fight with him, because he doesn't want anyone messing with his stuff ( garage..measurement, house needs to be jacked up). His potassium was low, but they are just going to give him a supplement for 3 days and then have me increase it in his diet.
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Ty..you have an awesome Christmas also. God bless you.
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2 Reactions@angiede2001 Hello Angie:
I've been thinking about you as we approach the Easter holiday. How are you doing?
I look forward to hearing from you when you have an opportunity to post.
Teresa
I love that you continue to keep in touch with me.We don't know what to think. His function got to 6.7%. Next lab it was 17%. Dr didn't believe it..wanted him to redo it in a week...course he didn't. Next one is for 3 mo later. He had such low bp, that it is possible that stopping his high bp meds finally worked to help his kidneys. So, we are just in a holding pattern. Things seem about the same, as far as symptoms..sleepy and ended. I hope you had a good Easter! Angie
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Hug
2 Reactions@angiede2001 Hello Angie:
It was so good to hear from you again. My Easter was good. Went to church and spent time with family and friends. What about your Easter?
It sounds like as if your husband's "holding pattern" (as you call it) is a difficult one for you personally.
How are you personally doing with these challenges? Do you have enough support from family, friends, church etc? Are you able to get out and enjoy some time away from home?
I look forward to hearing from you again.
Teresa
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1 ReactionHi @angiede2001
I certainly can relate to the "holding pattern" Yes, we want to see our loved ones get better each day but when that does not happen, we become discouraged. That is so normal for the caregiver to feel a moment of despair. I have experienced that feeling many times when I was taking care of my husband in the last years of his life; however, I also knew that it was one more day that I had him in my life to enjoy even though he was very sick and needed constant attention. If you can get away for several hours or have friends over to break the
tension, that would help. In my journey, I did have help three days a week which was a very big deal for me even if only 2 hours each time. I also put myself on the treadmill everyday for 20 minutes each day which helped with the stress. Please know you are not alone
in your quest for better health for your loved one. Several weeks ago, I lost the love of life and now realize the "holding pattern" was one more day with him. Take care!! ozys
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Like -
Helpful -
Hug
1 ReactionSorry..didn't answer very quickly and then found out I had to redo my password. Phone isn't working well..so..frustration..avoidance. 🙂 I had a good Easter also. My kids came to church with us and then out to lunch. There were icy road conditions, so we all had to go home. Yes, this holding pattern is very hard. I tend to isolate some. I don't really know the answers to the questions people ask. We have always had some marital problems, so when I become angry, then I have to deal with guilt. His kidney functions was 17% 2 mo ago. The dr didn't believe it. The dr wanted him to redo it in a week, but of course, Jack didn't. Jack had it redone yesterday, and his level is 18%. Creatinine is down below 4 again (from 6.8). I think he feels better, so he has more energy and can enjoy upsetting me...how is that for honesty 🙁
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Hug
1 ReactionPotassium is low, but I think they will fix that pretty easily...pills for 3 days, then increase it in his diet.
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1 Reactionso sorry, Ozys. Sounds as though you were really close to him.
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1 ReactionSorry, Ozys. Sounds as though you guys were really close
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3 ReactionsI wrote an answer, but it didn't go anywhere :). He is at 18% now, and creatinine is under 4. We have never gotten along well so as he begins to feel better, he seems to have the strength to enjoy upsetting me more. Jekyll and Hyde routine. I don't do really well with the challenges..tend to isolate, coz don't like to be judged for telling the story of how it really can be. I do have a friend or two that I share with. I am in a Bible study, Sunday School class and choir.. good church folks, but not too many I will really share with. Even my best friend..feel like she is avoiding some of the conversation I need to spill. She told me that she thought I would be handling this better, as a Christian. She is prob. trying to avoid making such a HUGE error again. It may help to spill to you. We need a lot of work done on the house, and I will have to fight with him, because he doesn't want anyone messing with his stuff ( garage..measurement, house needs to be jacked up). His potassium was low, but they are just going to give him a supplement for 3 days and then have me increase it in his diet.
-
Like -
Helpful -
Hug
4 Reactions