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Living with Neuropathy - Welcome to the group
Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.
I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.
We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?
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HugInterested in more discussions like this? Go to the Neuropathy Support Group.
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@itsmeagain
I’m Joyce and have CIDP (the p being polyneuropathy) and of course it’s nothing short of annoying and uncomfortable.
I’m taking Alpha Lipoic pills which has lessened discomfort in my feet which were extremely uncomfortable when in bed.
@delta1 Thank you for reaching out. I have had peripheral neuropathy for at least 30 years. 10 years ago I discovered I also have autonomic neuropathy. and Last month I learned that I have Autonomic Autoimmune Functional Neurologic Dysfunction.
For many years I have worn Birkenstock sandals Narrow, and still do. Recently, finding need for closed-toe shoes and not liking the Birk prices (over $100), I started searching and now also wear Dansko and Keen with confidence. I can wear some styles of Easy Spirit and Avia tennis shoes for up to 6 hours at a time. I need good arch supports, a narrow heel cup and wide toe box. It is a tough foot to fit and Birks work well for me in the narrow cut, regular cut is sloppy. The cork bottom and insole is the thing that makes them work for me.