Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

carmennieves | @carmennieves | 4 hours ago

I have
PN on both feet that seems to be going up my legs and I have trigeminal neuralgia on my right side of my face. I will be going on my third infusion of ketamine. Has anyone tried this

crazycatlady4110 | @crazycatlady4110 | 2 hours ago

Has anyone tried Qigong for possible pain relief and if so, did it help?

rivermaya34 | @rivermaya34 | 2 hours ago

In reply to @crazycatlady4110 "Has anyone tried Qigong for possible pain relief and if so, did it help?" + (show)

@crazycatlady4110 The Dr's at the emergency vet hospital I used to work at used it for animals, but I have never seen it used in humans (personally). Unfortunately, I cannot vouch for that one :/

fred101 | @fred101 | 26 minutes ago

I am an 81 year old Vietnam Veteran and believe I have as bad a case as one can have of Peripheral Neuropathy along with other conditions and borderline sugar diabetes!! I have 16 different doctor and none have been able to figure out how to help[p this old man!!!!
I also took Ketamine treatments (2) and no help at all!! There is anew drug still in testing stages Would love to be a part of- I think it is called DRL-271 but lost my notes!!! This terrible case has spread to my whole body and I have nearly intolerable pain 7/24. I am highly allergic to drugs also, so that does not help my cause. I do get a little short term relief when I used Sombra that you can purchase at Amazon, but does not last long and have to use on nearly all of my body. I have a little hope that maybe having big Pharma out of our lives now may somehow help- hopeful anyway!!!!