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Moderator

Living with Neuropathy - Welcome to the group

Posted by Colleen Young, Connect Director @colleenyoung, Jul 14, 2017

Welcome to the Neuropathy group.
This is a welcoming, safe place where you can meet other people who are dealing with neuropathy. Let’s learn from each other and share stories about living well with neuropathy, coping with the challenges and offering tips.

I’m Colleen, and I’m the moderator of this group, and Community Director of Connect. Chances are you’ll to be greeted by volunteer patient Mentor John (@johnbishop) and fellow members when you post to this group. Learn more about Moderators and Mentors on Connect.

We look forward to welcoming you and introducing you to other members. Feel free to browse the topics or start a new one.
Let’s chat. Why not start by introducing yourself? What concerns would you like to talk about?

Interested in more discussions like this? Go to the Neuropathy Support Group.

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jmmyj22 | @jmmyj22 | 4 hours ago

Hi I was told to check into forums to see if I might be able to get some ideas that may help because I've tried everything I know of. I have neuropathy in my feet and legs and I can no longer walk so it's been more then rough.

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Mentor
John, Volunteer Mentor | @johnbishop | 2 hours ago
In reply to @jmmyj22 "Hi I was told to check into forums to see if I might be able to..." + (show)
Profile picture for jmmyj22 @jmmyj22

Hi I was told to check into forums to see if I might be able to get some ideas that may help because I've tried everything I know of. I have neuropathy in my feet and legs and I can no longer walk so it's been more then rough.

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Welcome @jmmyj22, So sorry to hear that you have joined our neuropathy club. It can be frustrating trying to find something that provides relief and it sounds like you are at a point where a lot of us have been in your neuropathy journey. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. Probably the best suggestion I can offer is to learn as much as you can about your condition and what treatments are out there that might help. If you haven't already seen it, the Foundation for Peripheral Neuropathy has a lot of great information including webinar videos that you can view on their YouTube channel.
- Foundation for Peripheral Neuropathy: https://www.foundationforpn.org/living-well/
- FPN YouTube Channel: https://www.youtube.com/@foundationforperipheralneu4122

You also might want to scan through the Neuropathy Support Group to see a list of the discussions started by members with neuropathy - https://connect.mayoclinic.org/group/neuropathy/

You mentioned you have tried everything. Are you on any medications for treatment?

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