Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30 1:48pm

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

Interested in more discussions like this? Go to the Neuroendocrine Tumors (NETs) Support Group.

nannybb | @nannybb | Nov 12 12:46pm

In reply to @jessie1990 "What time is it in United States now it's 11.20pm here in Ireland" + (show)

@jessie1990 U.S. is 7 hours behind Ireland. Right now, it is 10:45 a.m.

jessie1990 | @jessie1990 | Nov 12 1:00pm

In reply to @nannybb "@jessie1990 Man. No wonder you are anxious. So your doctor is basically on holiday. Geez. I..." + (show)

@nannybb yep his on holidays and my God yes I am super anxious I thought it be all sorted by now but nope I still have a few weeks wait and nurse said she can't garrantee I be sorted by Dec could be in the new year they will be in touch she told me