Benign carcinoid tumor in bronchi tube

Posted by jessie1990 @jessie1990, Oct 30 1:48pm

Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx

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jessie1990 | @jessie1990 | Nov 12 10:25am

In reply to @nannybb "@jessie1990 The 5 lymph nodes were clear. Hallelujah. I was tremendously thankful for that." + (show)

@nannybb one of mine were clear he said more then likely they all are

jessie1990 | @jessie1990 | Nov 12 10:26am

In reply to @nannybb "@jessie1990 lol...looks like the young people have anger management problems. Kinda scary." + (show)

@nannybb oh my God yes they sure do just turned the legal age to drink you see drink just doesn't suit some people they get so aggressive

jessie1990 | @jessie1990 | Nov 12 10:28am

In reply to @nannybb "@jessie1990 You may have to ask for something if they do not initially just offer it..." + (show)

@nannybb I haven't met the main surgeon I met someone on his team so I have no idea who he is nor what he looks like 🥹

jessie1990 | @jessie1990 | Nov 12 10:31am

In reply to @nannybb "@jessie1990 My surgeon admitted when he actually went in to operate, the tumor had shrunk. He..." + (show)

@nannybb I thought by half of mine been removed it will make surgery abit easier he said no it won't it make surgery any way easier so that kind of makes me scared

jessie1990 | @jessie1990 | Nov 12 10:32am

In reply to @nannybb "@jessie1990 How very sad for her, as well as your family. I'm sorry." + (show)

@nannybb thank you I'm praying some day she will see what pain it has caused for us and she will get the help she needs

jessie1990 | @jessie1990 | Nov 12 10:34am

In reply to @nannybb "@jessie1990 I have to work. There is only me to look after me. My son helps..." + (show)

@nannybb ya I'm the same I was working wit the elderly for awhile had to leave because my anxiety got so bad then all this happend so now I stay at home my partner and oldest son works my 2 girls go to school I'm hoping when all this is done I can go back to work someday myself

nannybb | @nannybb | Nov 12 11:01am

In reply to @jessie1990 "@nannybb oh my God yes they sure do just turned the legal age to drink you..." + (show)

@jessie1990 Totally agree. My friend, I think I mentioned in here somewhere, was very mean and aggressive. I had to end the friendship. Not worth it. Plus she would hide what she was drinking and how much. To be fair, I think she drank because of physical pain, but to me, that is not a healthy solution.

nannybb | @nannybb | Nov 12 11:04am

In reply to @jessie1990 "@nannybb ya I'm the same I was working wit the elderly for awhile had to leave..." + (show)

@jessie1990 I hope that for you too. My work gets my mind off of things. I tend to go over stuff in my mind. Like over and over. Not good. When I'm really working, I don't have a lot of time for ruminating.

nannybb | @nannybb | Nov 12 11:06am

In reply to @jessie1990 "@nannybb I haven't met the main surgeon I met someone on his team so I have..." + (show)

@jessie1990 Can you ask to meet him to ask more questions? That's kind of weird.

nannybb | @nannybb | Nov 12 11:15am

In reply to @jessie1990 "@nannybb I thought by half of mine been removed it will make surgery abit easier he..." + (show)

@jessie1990 I would think at the very least, it would shorten the time he has to be in there to get the rest of it. Your case seems way more complicated than mine was. I'm wondering if he is going to make sure he doesn't need to check more lymph nodes. Has he discussed that with you? I made the surgeon sit down and tell me every aspect of his plan. I even went back a second time after the biopsy and before the actual surgery.