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Benign carcinoid tumor in bronchi tube
Hi I've been diagnosed with a benign typical carcinoid tumor in my bronchi tube in right lung was found when I went to A&E with pneumonia back in July of this year I've had 2 bronchoscopys 2 biopys which showed benign carcinoid tumor I was sent for ct scan mri scan and pet scan pet scan was clear I was put under general anesthetic as my lung specialist said he might be able to remove tumor by going down my throat instead of haven surgery but didn't work but he was able to take 40% of tumor out as it was blocking my air way that's how pneumonia set in the 40% he removed also came back benign carcinoid 1 lymph node was removed and checked also clear now I need surgery to remove the rest I'm so confused as doctor said its a benign tumor then Google is telling me it's a low grade cancerous tumor but doctor nor lung specialist said anything about cancer just said its benign doesnt benign mean non cancerous and can any one tell me how surgery went thank you bless you all xx
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@jessie1990 Jess, you had a much more invasive procedure than I did. I just don't understand why my pain is still elevated. Are you off of your pain meds.? I sure hope so. They will be doing an ultrasound while inserting a needle between my ribs to deliver pain meds. If that works, they will determine the need for the next step. I have not gotten full information of what that consists of, but I guess it would be a more permanent "fix". 💕
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1 Reaction@nannybb yes I'm off meds a week after surgery I hope that works for you 🙏
Jess, I'm sure hoping it works for me too. Are you going to be able to go back to work? 💕
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1 Reaction@nannybb I'm hoping to go back soon part time though this time don't think I be able for full time anymore
@jessie1990 Hey Sweetie ! I HAVE
to work full-time if possible. Wish I didn't have to. I also have to move in the next two months, so I will no longer have a roommate. Rents here are horrible. Just take it a day at a time. You are doing magnificent!
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1 Reaction@nannybb what is it you work as I was first a cleaner then went on to do my health care assistant course I've received a letter today for the 10th of July for a nurse but I've looked her up said she's oncologist is it normal to see one even though tumor was typical and all lymph nodes were clear
@jessie1990 Jess, Most recent job was because of Covid, I had to become a housekeeper for a gigantic retirement/ nursing home community. I moved from Fl. to Ore. to be with family when Covid hit and there were almost no jobs to be had. If I am repeating myself at any point, ignore...lol
The grounds used to be a Catholic University campus. It is still owned by the Catholic Church (Sisters of the Names of Mary and Jesus). Some residents are retirees, while others are Sisters who live there still. I work for a specific group of Sisters (most of the time).
I have done several jobs in my lifetime. I worked clinic and hospital as an M.A. for a few years, but enjoyed being an ECE teacher, then a professional nanny the most. I wish I could go back to being with little people. I may try one more time.
As far as you going to an oncologist, did they just make an appt. for you without discussing the matter? If they did, I would have several questions. I was sent to one before my surgery, but she did absolutely zero for me. Basically just read my chart and checked my lymph nodes on my neck. Sometimes, they DO follow up with chemo etc. which is when I would expect you to be seen by one of them. But I would kind of doubt that in your case since, like you said, everything came back benign. Can you email someone on your medical team to enquire of the reason? I would have thought your follow-up would be x-rays or a CT in 3 months time. Maybe a nurse oncologist can order that ? A bit bizarre 🤔
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1 Reaction@nannybb you use be busy busy 🤣 I worked for apple computer don't no if you ever heard of that company then I worked in nursing home also then I went to fast food for awhile then quit when my mental heatln got really bad... I'm act so confused because when nurse rang me two days before Christmas said tumor was fully removed and lymph nodes were all clear no need for any other treatment I might give her a ring later and see why I've been sent to her